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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    I agree with you 100%. But really, the doctors don't recognize celiac disease, because the medical schools (which are controlled by the pharmaceutical companies) don't teach them about it! And often what they do teach them isn't accurate. What they teach them is mostly about which drug to prescribe to mask which symptoms.....unless you need an antibiotic...
  2. Ursa Major
    I'm glad you found something you like. It's amazing how many things we learn, just by reading posts, isn't it?
  3. Ursa Major
    Prinsessa, at the age of three the biopsy might be negative, too, as the damage might not be bad enough to show. Are you sure you want to actually purposely try to wreck the villi in your son's bowels to try to get a positive biopsy? Do you know that he could get extremely ill, and nobody has done any studies to see if having celiac disease (and the accompanying...
  4. Ursa Major
    Last summer I went to the ER once, because we thought I had a heart attack. They hooked me up to heart monitors, which 'only' showed severe palpitations (they didn't think they were a problem), did an x-ray of the lungs and liver, and did blood tests. The nurse kept telling me to stop hyperventilating, as she said that wasn't helpful. Duh, I knew that, but...
  5. Ursa Major
    I am not sure talking to your doctor would be helpful, as the medical community mostly doesn't recognize gluten sensitivity as valid. He'd likely say that it's fine for your son to eat gluten. He has the genes that will make him just as sick, but in different ways, as celiac disease. With two of them, he could be even sicker, even though his villi are...
  6. Ursa Major
    Thanks, girls. In the end it comes down to individual taste buds I guess. Gail, thanks for the suggestions. Unfortunately, I am intolerant to all herbs and spices, most seeds and oils, olives, shouldn't really eat spinach.........all due to them being high in salicylates. I would love eating the pizza you suggested, but I wouldn't love being on codeine...
  7. Ursa Major
    That's great news, Stephanie, I know how exciting it is when our babies do something new!
  8. Ursa Major

    ARCHIVED Ursula

    Ursa Major replied to kolka's topic in Related Issues & Disorders

    Hi Kolka, Sorry for not answering sooner, I didn't see your post. The reason my AS wasn't diagnosed earlier - and in fact I diagnosed myself and then went to specialist and he confirmed my self-diagnosis - was simply, that when I was a kid NOBODY got diagnosed. The definition of AS didn't even exist until sometime in the 1980s (I think 1984). And strangely...
  9. Ursa Major
    Prayers going up. I hope he'll be okay.
  10. Ursa Major
    It is unlikely that their staple is one of the gluten grains (that is a mostly European and American thing). Stick with basic foods (vegetables, fruits, meat) and rice and don't even bother with trying to find any specialty items. One weeks is such a short time that you can even bring enough snacks with you. You should be fine.
  11. Ursa Major
    Yes, the Schär pasta is great, no doubt about that. But their waffles have that odd, greasy aftertaste (you know it must be hydrogenated fat, which is extremely unhealthy for you) that I just hate. Good thing, if I'd eat them all the time it would undoubtedly make me sick. And yes, that's (as above) is how you spell it, as it's a Germany company based ...
  12. Ursa Major
    Hi Marie, I am glad you finally came out of hiding! You could try some rye bread. You know, the German kind you find in the Deli section of your grocery store. There are varieties that are only made from rye, no wheat. If you react to it, you can be sure gluten is the problem. If you don't, try barley next (leave a week in between, as you may have...
  13. Ursa Major
    Well, you see, I am intolerant to all grains, including rice, and potatoes (no rice flour) and legumes (bean flour), and really, the only starch I can sort of tolerate occasionally is light buckwheat flour (the dark gives me a stomach ache). Tomatoes give me a migraine. Meaning, really, I better not even go there, I might like it too much. It would be too...
  14. Ursa Major
    If you have celiac disease, one daughter has been diagnosed as well, and one of your second daughter's test results was high, it is VERY likely that it was because of celiac disease as well. If they were my own kids, I'd just put the whole gang on a gluten-free diet, to see how they'll respond to it, and if you can see positive changes. All that besides...
  15. Ursa Major
    Sorry it got postponed, but I am glad it's only a week. I hope you'll all feel better very soon.
  16. Ursa Major
    I know, I shouldn't really be eating any starches, but figure it's okay once on a while. I just bought a couple of personal size pizzas, now that my health food store opened a new gluten-free section. I seem okay with goats milk occasionally, so feta cheese should be fine now and then. Anyway, I was excited about having one tonight, as I haven't tried...
  17. Ursa Major

    ARCHIVED Baffled

    Ursa Major replied to Marlene's topic in Related Issues & Disorders

    Another possibility is a hiatus hernia, and possibly an ulcer in the esophagus due to stomach acid because the hernia lets stomach acid into the esophagus. I had/have that problem. I thought recently my ulcer came back (after I was fine for several years), as I was having those awful pains again, that would make even my back and shoulders hurt, as well as...
  18. Ursa Major
    If you could tell us who you want to contact, maybe somebody else has contact information?
  19. Ursa Major
    Hi, and welcome to this board. I'll make this short, as it's late and I have a migraine. Others will post more tomorrow (or today, I should say). One of our members, Nini, has put together what she calls a 'newbie survival kit', which is invaluable for people new to celiac disease. Here is the link to her website (scroll down to the bottom to find the links...
  20. Ursa Major
    Will doctors still be able to prescribe the antibiotics, if patients pay for them out of their own pocket after the insurance company stops paying for them? Even though it would be wrong and unfair to having to pay for it yourselves, it would be better than staying sick.
  21. Ursa Major
    Gluten intolerance is NOT an allergy, and allergy testing won't detect it, unless your mother is allergic to gluten as well as intolerant (which is possible, but fairly rare). The celiac disease blood tests won't detect gluten intolerance either, and neither would a biopsy. The only foolproof ways to test for gluten intolerance are with Open Original Shared...
  22. Ursa Major
    Hi Sally, yes, you put this post in the right place. Tiffany is right. Especially at the beginning, when you haven't discovered all the pitfalls yet, and aren't too savvy when it comes to eating out, it would be much smarter to really limit going out to eat to about once a month. You need to heal. Your bad mood, inability to concentrate etc. are typical celiac...
  23. Ursa Major
    Personally, I don't believe you have to replace all your plastic containers. Just make sure you scrub them well. If you want to make doubly sure, scrub them first by hand, and then run them through the dishwasher for extra safety. IF (and only if) you find that they cause a problem, you can still do a radical purge if necessary. Only throw out (or give away...
  24. Ursa Major
    Yes, especially the type of gluten intolerance that doesn't cause the villi to flatten (and doctors often won't take you serious if you don't have obvious gut damage) will cause neurological damage instead. It has been proven many times over that celiac disease can cause depression, anxiety, mood changes, autism, ADHD, learning disabilities and even schizophrenia...
  25. Ursa Major
    Probably putting kids to bed, and then too exhausted to come back here. I'm sure she'll be back tomorrow.
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