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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    I agree with Elonwy. If it was indeed gluten that made you bloat like that, those are the likely suspects. On the other hand, are you sure you aren't intolerant to soy? They both contain soy. Just a thought.
  2. Ursa Major
    Sonja, I totally understand what you're saying. Don't worry what others say, just go ahead and try the diet, you have nothing to lose. You waited until after the biopsy, no need to wait any longer. By the way, even if the doctor claims that your intestines look fine, most of the time they really can't tell without a microscope if the villi are damaged...
  3. Ursa Major
    Rebecca, I doubt that the results you had with the diet, and getting sick at the bowling alley are a fluke at all. I truly believe you need to be gluten-free, as well as your girls. If they had ANY inflammation of the bowels, they need to be gluten-free! For your doctor to say they should eat gluten until their villi are completely destroyed is very irresponsible...
  4. Ursa Major
    David, if you're still waiting for your endoscopy and biopsy, you need to stay eating gluten, or it will be negative. On the other hand, since you feel much better gluten-free, maybe you might just want to cancel the biopsy? It may not be worth it to keep poisoning yourself. I think that awareness has risen, rather than more people actually having celiac...
  5. Ursa Major
    Dear Kate, I truly sympathize. Unfortunately, it is possible that right now you simply don't tolerate any grains or starches very well. You may just have to stick to naturally gluten-free foods for a while, in order to heal properly. I know it sucks, as that is what I have to do (possibly for the rest of my life), but it is worth it to feel better. And...
  6. Ursa Major
    I am very sorry about the whole awful family situation. I can totally relate to getting used, worn-out things for gifts. My parents-in-law hated me (well, my mil still does, my fil is dead), and gave us their 30-year-old double bed, with the old, falling-apart mattress, for our wedding present! And they were loaded. They decided to buy themselves new bedroom...
  7. Ursa Major
    That's interesting, and probably not a coincidence. It is a well-known fact that gluten will cause infertility and other disturbances of the reproductive system. And it appears that going gluten-free has normalized your cycle to where it should be.
  8. Ursa Major
    Lisa, are you living with your grandmother? That would obviously make it worse for you. It must be hard not to have her support, especially since you don't have a mother. Good for her boyfriend to tell you he didn't care how much your meal was. He is supportive in his own way by saying that. And I like what the waitress said, she must know at least a little...
  9. Ursa Major
    Sorry you're still sick. Yes, it is just fine to wear whatever makes you feel comfortable. If you feel cold, pile on the layers, and when you're too hot, take them off. No need to drink your tea plain. Sweeten it with honey or maple syrup, those are fine. If you have any (or somebody can get it for you), drink Echinacea tea. It revs up your immune system...
  10. Ursa Major
    My oldest daughter's kids all have intolerances. All but one (of five) is intolerant to dairy. None of them had the symptoms you describe, but rather, the dairy would cause awful eczema for them, which cleared up when she eliminated dairy from her diet. With your family history, I would bet on it being a gluten response. There is only one way to find out...
  11. Ursa Major
    Lisa, the only time when it matters how high your fever is, is when you're poisoned. In which case your body won't know when to stop the heat, and it can kill you (normally it won't get higher than your body can handle). Having a fever means that your body is fighting something, and not a concern in itself. Don't try to bring it down, it is meant to kill...
  12. Ursa Major
    I am glad you now know. Have you and your husband been tested? Those girls obviously inherited celiac disease from somebody!
  13. Ursa Major
    Sarah, I will try to find the evidence. In the meantime, I have read enough stories by people here, and in books by serious researchers like Dr. Green, that have me convinced that you really don't outgrow celiac disease. Many times have I read about a child being diagnosed, getting better and considered cured. Only to develop severe health problems down the...
  14. Ursa Major
    Darlene, who is planning on doing a gluten challenge with all of you? If gluten is a problem, and you do have the genes, the gluten challenge would likely make you very ill, for no good reason at all. Especially since you would need to eat at least four slices of bread for six months to a year to even have a remote chance of testing positive, since you would...
  15. Ursa Major
    I agree. But I also believe that it can be caused by gluten intolerance. So, no matter what, trying the gluten-free diet would be the next step. Doctors have been useless, time to take things into your own hands. If you start feeling better on the gluten-free diet, you'll have your answer.
  16. Ursa Major
    Are you saying you are feeding your child gluten cereal? Why not just make your house gluten-free, and buy him gluten-free cereal, that will remove all of the temptation. If the stuff isn't in your house, you won't be able to eat it. And your child won't even miss it.
  17. Ursa Major
    Okay, this is how you do it: When you reply to somebody's post, or start a new topic, you know you see above the message window a bunch of icons. You can bold your message, italicize it..........etc. One of those icons is a globe with a chain link. That is the one you use to make URLs into valid links. If you want to paste a link, you click on this...
  18. Ursa Major
    Beautiful pictures, Lisa! We had +17 degrees Celsius last week, which was just insane. Today it is -4 degrees, and we have a sprinkling of snow on the ground. We better have a white Christmas this year, last year sucked. The kids didn't even get to go skiing last year and weren't happy about it.
  19. Ursa Major
    You may not get an immediate reaction any more. For me it sometimes takes a week after being glutened before I get diarrhea! But it always comes at some point. So, just in case, don't venture too far from a bathroom for the next few days. On the other hand, you may not get obvious reactions now. For some people it takes eating gluten for a while before...
  20. Ursa Major

    ARCHIVED Symptoms

    Ursa Major replied to newg's topic in Coping with Celiac Disease

    Have you eliminated dairy as well? People with celiac disease can generally not tolerate dairy until the villi heal, and many can't tolerate casein (meaning all dairy, because casein is the protein in milk) and won't ever be able to have milk. So, eliminating gluten might be eliminating half the problem, and you might start feeling even much better if...
  21. Ursa Major
    Low ferretin levels and anemia are amongst the most common symptoms of celiac disease. In fact, it is now believed that all people with iron deficiency should be tested for celiac disease. With some it was the only obvious symptom, even if their villi were completely destroyed.
  22. Ursa Major
    Hi Ada, and welcome to this board. I am glad you were diagnosed, as now you can get well. It takes a while to get the hang of the diet, but you'll be fine. Check out Nini's 'newbie survival kit', it has a lot of valuable information, that will help you know what to eat, what shampoo, conditioner, lipstick etc. is safe and a whole lot more. Here is the...
  23. Ursa Major
    Obviously all was NOT well with his biopsy. If they find any inflammation at all in a toddler's intestine, and shortening of the villi, that means he has damage. Especially with his villi already being damaged (which would only get worse, of course), a borderline blood test, and the celiac disease genes, there is no doubt in my mind he has celiac disease...
  24. Ursa Major
    I agree that most doctors are simply ignorant of celiac disease, thanks to them not being taught what the symptoms are (other than diarrhea and weight loss). They mean well, but are clueless. Like my own doctor. All summer last summer she tested me for parasites, bacteria, blood in the stool and many other things. Eventually, when I told her point blank that...
  25. Ursa Major
    Ark, apparently, the other problems I was talking about had already shown up, as in neurological symptoms, like irritability, fatigue, tantrums, eventually he'd likely suffer from severe depression, or even schizophrenia. Also, neuropathy is a common problem, with losing feeling and/or functioning of first hands and feet, and eventually not being able to...
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