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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    If you were diagnosed as a toddler, you really don't need any more testing, you still have celiac disease. In those days they falsely believed you outgrow celiac disease, but they were wrong. Teenagers often stop having symptoms for a few years (while the damage continues) for whatever reason. But you pay later for eating gluten again. Everything naturally...
  2. Ursa Major
    Hello Kerstin, and welcome to our boards. I am German as well (still a German citizen), even though I've been in Canada for over 29 years now. I used to get complete meltdowns, where I would go into a rage and hurt myself (cracked a bone on my arm once from hitting my arm against a sharp corner). My son still remembers me throwing his new truck (a recent...
  3. Ursa Major
    Donna, there is no such a thing as IBS, it is NOT a valid diagnosis. All it means is that people have gut problems and their doctors are too lazy or ignorant to figure out why. They take the symptoms and declare them to be a disease. It sounds like your husband's family has celiac disease everywhere. I agree, try to give your husband a good, healthy, gluten...
  4. Ursa Major
    That hard, distended belly is a dead giveaway if you ask me. Plus the fact that anything tight on her belly makes her uncomfortable. I would definitely have her tested. But if the tests are negative, I would just try the gluten-free diet. You are right, it is suspicious that she appears to be addicted to everything containing gluten.
  5. Ursa Major
    I agree, don't take it again. I get a pretty bad reaction to Aspirin (similar to yours, but worse now), and Ibuprofin and Aspirin are both similar. So, don't take Aspirin, either. Try Tylenol instead (possibly with codein). The problem with Tylenol is, that when you take it over a long period (or too much) it can cause liver damage, even liver failure...
  6. Ursa Major
    Thanks, but how do you challenge a charge?
  7. Ursa Major
    They likely are getting some of their ingredients from companies that don't guarantee that they aren't cross-contaminated. Therefore, in good conscience, they can't guarantee a gluten-free status for their products, even though they are probably safe. There are companies out there that guarantee gluten-free status for their vitamins and minerals, like...
  8. Ursa Major
    Happy Birthday, Andrea! I hope you had a fabulous day, you deserve it.
  9. Ursa Major
    Thanks, ptkids for that link! I ordered one of their nice sports bracelets as well as a necklace now, I like them so much better! I sent another e-mail to Medic Alert and told them I am cancelling my order for the sports bracelet, and will return it unopened at their expense as soon as it arrives, as it will be useless to me. I told them I expect them to...
  10. Ursa Major
    Well, I just need to vent, I am awfully angry. I got a new medic alert bracelet a few months ago, a beautiful silver one, which cost us over $80.00. They left one line open for engraving, in case something needed to be added at a later date, which would cost us $5.00, instead of buying a new bracelet. I have wanted a sports bracelet for a while, for...
  11. Ursa Major
    NOBODY ever HAS to do a gluten challenge for any kind of testing. This is like saying that in order to prove somebody is really a diabetic, he should eat lots of sugar to the point of a diabetic coma, to prove they really have a problem with insulin. If she is told later how sick she was while she was eating gluten, and she got better without it, that should...
  12. Ursa Major
    Her stuff looks like works of art, too bad she is so far away from me!
  13. Ursa Major
    Jenny, the little guy is barely four. He is still little and can change an awful lot in a year. But what is wrong with being a follower? If all the people in the world would be leaders, we would only have bosses, and no people to work under them. What a crazy world that would be! The other kids like him, that is a good sign. He is a happy little guy and...
  14. Ursa Major
    Is your son still consuming dairy? Dairy is known to be terribly constipating in some individuals. Before I would give him medicine, I would try a dairy free diet in addition to the gluten-free diet.
  15. Ursa Major
    Are you still consuming dairy? The fact is, that dairy doesn't give you calcium, but rather causes you to lose it. Studies have shown that nowhere in the world is the osteoporosis rate as high as in North America, where also dairy consumption is the highest in the world. Dairy leeches calcium out of your body. Dairy can also cause blunting of villi, and...
  16. Ursa Major
    Karen, your info is confusing. You are saying According to what you are saying here, you have the type that will kill you in five years, yet that is good news? I suspect that there is a typo in here. When you get the testing for Addison's done, make sure you get at least two draws of blood for the cortisol levels done that day. In fact, four is...
  17. Ursa Major
    Why do you think she needs any kind of milk at all? Babies that are weaned (the same as animal babies) don't need any more milk, ever. I wouldn't have her drink milk at all, no matter what kind. If you want to give her some milk on cereal, go for rice milk. Soy is one of the worst foods out there (if you even want to call it a food), and a potential allergen...
  18. Ursa Major
    Your allergist is WRONG! Some babies are born with celiac disease, and started having the damage done in utero already. There are parents of kids here who almost died before they were a year old because of celiac disease. Testing would be useless for several reasons. To begin with, the false negative rate for kids under six is already quite high. And because...
  19. Ursa Major
    I think she should have the medic alert bracelet anyway because of her asthma, and it would be good to have celiac disease on it as well. If she is ever in an accident and already in shock, being given something that will make her really sick (gluten) on top of being in bad shape already, can't be good at all. I have a medic alert bracelet for various...
  20. Ursa Major
    No, for the Enterolab tests you do NOT have to eat gluten. They are accurate for about a year after you stop eating gluten. You are not a hypochondriac. A lot of us were considered hypochondriacs before figuring out the gluten connection. If the doctors are too dumb to figure it out, it must all be in our head, right? Wrong! They are the ones with the...
  21. Ursa Major
    I totally agree with the two previous responses. This is just ridiculous. After six weeks gluten-free, eating gluten for two weeks will not likely result in a positive biopsy, even if originally you had blunted villi. You would need to eat gluten for at least three months to have a chance of an accurate biopsy at this stage (and it may still be a false...
  22. Ursa Major
    Yes, I think it is a legitimate concern. That is why I would have sent a fruit basket instead, or bought reading material as in non-food items. Because eating gluteny foods is especially not great when lying around, either. Still, I am sure he appreciates your gifts and the get-well wishes, even if he has a problem with the foods.
  23. Ursa Major
    Have you been tested for vitamin/mineral deficiencies? You could get those symptoms from anemia (due to ferretin levels too low, or B12 deficiency), or low vitamin D, magnesium and/or other things. You could also have adrenal and/or thyroid problems. If your adrenal glands aren't making enough cortisol and/or aldosterone (my problems), you could get that...
  24. Ursa Major
    You have nothing to worry about with a reading of 105, especially after eating something like pasta! Even if you would have had one spike of 150, it wouldn't be a cause for concern. Only if you have consistently high readings do you have a problem. My mother developed type II diabetes when she was my age, and so did my older brother. That is why I have...
  25. Ursa Major
    What about corn? My new granddaughter would have a 'fussy time' every night and wanted to be carried around. She would also have bad gas and would cry and wiggle during the night, never sleeping for long. My daughter claimed that it was from swallowing too much air, because she gulps her breast milk, beause it shoots out too fast (I had the same...
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