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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    It has been found that each glutening will cause damage to the intestine, which takes about three weeks to heal. Meaning, if you get glutened every three weeks, you'll never heal completely. But I agree that you can't get too paranoid and constantly worrying about it, as that would cause mental problems and stress that could shorten your life as well....
  2. Ursa Major
    Can you post the exact ingredients? If there was rice flour, and especially soy, that could be the problem. I also can't tolerate any starches and will get gas and bloating when I eat them. I am sort of okay with baking something with light buckwheat flour once in a while (mixed with ground hazelnuts and ground almonds for making cookies or a crumb crust...
  3. Ursa Major
    Jerry, since you've been on the gluten-free diet for a little while now, I'd guess they'd be negative.
  4. Ursa Major
    Looking at it from a different angle: Your mother went on the gluten-free diet, it made her feel better, her intestines are now healed (or much better, anyway). Gluten will make her sick. The doctor might decide she needs to do a 'gluten challenge', to prove she has celiac disease by a biopsy. What does that mean? It means, many GI doctors tell their patients...
  5. Ursa Major
    Nope, that would be impossible. At least you now know what is wrong, and keep up the gluten-free diet.
  6. Ursa Major
    I think it can't hurt to try the gluten-free diet, what have you got to lose? It really might help, if your husband is willing to give it a good try, without cheating. And you're right, the combination of symptoms could be celiac disease or gluten intolerance. If the gluten-free diet doesn't help, at least you'd be able to look elsewhere. By the way,...
  7. Ursa Major
    Charlie, as you can see, I am intolerant to all lectins as well. I don't know if you have checked out the site I am linking to in my signature yet. It's a good one to read through. Egg is one lectin you didn't list. I believe that cashews belong to the legume family, and are therefore not okay for you (I definitely react to them). If you can still...
  8. Ursa Major
    If you go with Open Original Shared Link you can do the gene test, and the gluten intolerance test, as well as malabsorption, dairy and soy. And with them, you can do all that while being on the gluten-free diet. They do stool testing, which is far more reliable and sensitive than the blood tests and the biopsy. Also, they test for the celiac disease genes...
  9. Ursa Major
    Hi Barbara, and welcome to this board. Here is a link to Nini's website, where you'll find her 'newbie survival kit' by scrolling down to the very bottom. Open Original Shared Link It has invaluable information on getting started after being diagnosed with celiac disease, and will save you from doing a lot of the research yourself.
  10. Ursa Major
    Thank you Karen, for starting this thread! Again, welcome, Ashley, I am soooooo glad that everything is straightened out, and we can all be friends who help each other make life with celiac disease easier. I love the cello! I started taking violin lessons in December, and still sound sort of awful (surprising myself at times with some beautiful sounding...
  11. Ursa Major
    This is my take on this study. First of all, 49 people is a rather small sampling. Some got capsules with 0 mg gluten, and if some actually took 50 mg a day, they must have sort of staggered how much people took. If some only got 0 gluten, there were less than 49 people getting gluten. Some tiny amounts, some more. One person who got 10 mg of gluten...
  12. Ursa Major
    Hi, and welcome to this board. Poor little guy! It sounds like he may have more than one intolerance. I think you're right in feeding him gluten-free. I am baffled about the iron. Try switching to a different brand to see if it makes a difference. Mind you, I just remember what happened to me when I was severely anemic a few years ago and was taking iron...
  13. Ursa Major
    Yes, coconut oil does taste like coconut. But it won't leave a strong coconut flavour. You may be right about the olive oil being fine.
  14. Ursa Major
    Hi, and welcome to this board. It seems to me that the GI is useless and doesn't know what he is talking about. You may have a house full of people who may be gluten intolerant, but don't necessarily have celiac disease. But being gluten intolerant (or gluten sensitive) is every bit as serious as celiac disease. Often it will cause neurological symptoms rather...
  15. Ursa Major
    What your friend needs to do is talk to her father's doctor. The doctor needs to go to the nursing home and make them understand that his diet is medically necessary, and can't be deviated on. Maybe a nutritionist can go and talk to the staff and educate them. Somebody they will listen to needs to tell those blockheads at the nursing home that they are...
  16. Ursa Major
    You certainly were being careless in not washing your hands immediately after making the sandwiches. I wouldn't call it stupid, though. And yes, you apparently glutened yourself doing that. You live and learn! I hope you'll feel better soon.
  17. Ursa Major
    The baby may have decided to turn, being head down now (a good sign), and is pushing on something that causes those problems. Since you don't have diarrhea and don't feel glutened, and the baby is happily kicking away, I wouldn't be too concerned. Also, you may have started those contractions (don't remember what they're called, too long ago ) that...
  18. Ursa Major
    If the recipe calls for vegetable oil, any oil would work. I've been substituting ingredients in recipes all my life, and know this for a fact. My only concern is, that olive oil is not heat stable, and turns toxic at high heat. Coconut oil would be a better choice.
  19. Ursa Major
    Be VERY careful with a cleanse. It was what made me desperately ill in May of 2005, and put me over the edge into full-blown celiac disease.
  20. Ursa Major
    It takes up to five years for the deposits under your skin to clear that cause DH (but I believe I read that two years is average). During that time you can get the odd outbreak here and there, without actually eating gluten. Now, if you actually eat gluten, you'll likely get a major, terrible outbreak. Limiting your iodine intake is supposed to help a...
  21. Ursa Major
    Angie, a year ago I had the same problem, which then moved onto the rest of my fingers, and kept moving down my hand, until half my hand had no feeling. It had absolutely nothing to do with celiac disease. My chiropractor diagnosed it as nerves pinched in a muscle in the back of my shoulder. The nerves to the hands run right through this muscle, and my...
  22. Ursa Major
    Now THAT is hilarious! Oops! That's about as bad as what my sister did once, when she was about 10 or so. She wanted to buy film for our (the kid's) camera. She saw a dispensing machine outside the pharmacy, which said something about 'thin film', and thought it was film for a camera. When she got home and opened the package, she found long, skinny 'balloons...
  23. Ursa Major
    It is possible that by the time you go to bed you are so overtired that you can't sleep. You may need more sleep than 8 hours a night right now, and go to bed earlier. And on your day off, you might have to let the housework be, and sleep in till noon, until you adjust and stop being so exhausted. Who is it going to serve if you run yourself into the ground...
  24. Ursa Major
    Ouch, that is dangerously high! Yes, donating blood is a good way of doing this. Also, don't eat any red meat, or organ meats until your ferretin comes down. Here is a link to a bunch of other links, that might help in figuring out what to do. Open Original Shared Link Also, make sure your multi-vitamin (if you use one) doesn't have iron.
  25. Ursa Major
    Omega 3 fatty acids will regulate blood pressure. It will make it go up when it is too low, and lower it when it is too high. In the winter, your best bet is cod liver oil, as it will also give you the much needed vitamin D (unless you're in Australia, of course, where it's summer right now, in which case you just take fish oil). The Carlson brand is best...
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