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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    It could be the rice cakes, for more than one reason. If you ate Quaker rice cakes, you probably got glutened. On the other hand, maybe you can't tolerate rice. Is that a possibility for you? Rice makes me just as sick as gluten, plus it makes me EXTREMELY sleepy. When I tested rice a year ago (after not eating it for four months), I went to bed at 10...
  2. Ursa Major
    Because of the celiac disease it is possible that you are very deficient in some essential nutrients. It is NOT a good idea to just take a whole bunch of stuff without knowing what you really need. I suggest being tested for deficiencies, to see what you need, if anything. The most important things to test for (because generally, those are the most likely...
  3. Ursa Major
    Sally, I don't want you to feel ignored. I am having similar troubles, but I am still working things out with my doctors. I sent a PM to Georgie, who will have much better advice than me, and will actually know what she is talking about. I expect she'll answer soon, since she is in Australia and 13 hours ahead of my time. Meaning that it is already afternoon...
  4. Ursa Major
    While that is what doctors suggest, from everything I have read, most people will test negative after only three months. And the doctors will then tell them that there is 'no way' they have celiac disease. But even going back to eating gluten for three months is a terrible idea. And as far as I am concerned, any doctor suggesting that people should...
  5. Ursa Major
    Hi, and welcome to this board. Unfortunately, after being off gluten for a year, you would have to eat a lot of gluten (at least four slices of bread a day) for about six months to even have a remote chance of testing positive. For some people it would take more like a year to destroy their villi again to such an extent to be able to test positive. And...
  6. Ursa Major
    The inflammation of the intestine means a great deal. The villi will get flattened if inflammation has gone on for too long. An inflamed intestine without flattening could be the early stage of celiac disease. Did you have the bloodwork done? I think at this point you would do well to just try the gluten-free diet. The doctors have been messing with...
  7. Ursa Major

    ARCHIVED Blog?

    Ursa Major replied to UR Groovy's topic in Board/Forum Technical Help

    Kathy, the forum is not a blog. Here you exchange information with other people. But you can start your own blog as well, as that feature is part of this site, too. Click on 'blogs' up above, and there will be a link where you can sign up to have your own blog. And yes, a blog is like a journal. There you can pretty much say anything you want (within board...
  8. Ursa Major
    Here in Canada the normal range is from 40 to 300. And every time my ferritin would drop below 20, I'd be terribly weak and unable to do anything. Now it has gone up to 105 and I don't have to worry about it any more.
  9. Ursa Major

    ARCHIVED Naturopathic Doctor

    Ursa Major replied to mtdawber's topic in Doctors

    Your doctor looks like a good one. And naturopathic doctors actually get training in nutrition, while MDs get pretty much none, and know nothing about nutrition, and how food can make you ill (or well, for that matter). My doctor didn't get enough training on salicylates and thought most herbs didn't contain a lot. That's why we tried herbals first for...
  10. Ursa Major
    Well, apparently your doctor is testing you for everything BUT celiac disease. In other words, your doctor is lying if she claims she is testing you for celiac disease.
  11. Ursa Major
    Karol, I am glad you finally have an answer to Billy's problems. It's just a shame that he hasn't been on the diet all these years due to doctor's ignorance.
  12. Ursa Major
    When my ferretin level was down to 4 a few years ago, my hemoglobin was still fairly normal (120). But I had all the signs of classic anemia anyway, which were extreme fatigue, weakness (some days my legs wouldn't hold me up, and I had to stay in bed), constant blue lips, paleness, racing heart and others I don't remember. So, you can have obvious signs of...
  13. Ursa Major
    Neither Sudafed nor Halls cough drops will really help get rid of the cold, they just mask symptoms. Here are some suggestions to boost your immune system and speed up healing: Drink Echinacea tea, take lots of vitamin C, up your vitamin A and E, get Zinc lozenges (you can get them with vitamin C and Echinacea even, and in different flavours), they...
  14. Ursa Major
    Thanks, I have a Zellers right here in town, I'll check it out tomorrow.
  15. Ursa Major
    I used to have awful pains in my left eye. I went to eye specialists, and had brains scans as well, but nobody could ever find a thing. Since starting on the gluten-free (and a lot of other things free) diet, I haven't had those pains. And they were really bad, sharp pains, it felt like they were right in the eyeball.
  16. Ursa Major
    A new member named Elvi tried posting, but hit the 'report' button instead. This is what she said:
  17. Ursa Major
    Are you on the gluten-free diet now? If you are, then an endoscopy and biopsy will be useless, because your villi are healing. It is very likely that you'll end up with a false negative result, and the GI telling you that you definitely don't have celiac disease, based on the 'perfect' biopsy. So, if you have been gluten-free, don't do the biopsy. Really...
  18. Ursa Major

    ARCHIVED Naturopathic Doctor

    Ursa Major replied to mtdawber's topic in Doctors

    I am seeing a naturopathic doctor. Here in Canada things are even more complicated. There are naturopathic practitioners, and they can just have taken a weekend course or an online course to call themselves that. And then there are naturopathic doctors, who have had the same amount of training as an MD, from a college of naturopathic medicine. That's what...
  19. Ursa Major
    I hope the film comes out around here soon, I want to see it. When I was still part of one Asperger forum (I am still a member, but have stopped participating), Jerry Newport was there, too. He was attacked a lot, because a lot of Aspies are pretty fanatical about being better than NTs (regular people), and actually believe that they are the next step up...
  20. Ursa Major
    Hi Sarah, and welcome to this board. It sounds like you have found the answer to your family's health problems. Celiac disease/gluten intolerance is genetic. It is not unusual for one, or even both parents, and all or most of the kids to have inherited the genes for gluten intolerance. All of you are feeling better, your bodies are functioning properly...
  21. Ursa Major
    I have never heard of the gluten-free diet causing that kind of problem (or any kind of intestinal problem for that matter). Even though I am generally not too fond of doctors, this time I believe what the doctor told you was the truth. That the blockage was truly caused by adhesions from former surgeries. Make sure your wife keeps being on the gluten...
  22. Ursa Major
    If you are eating white rice pasta, that could definitely make you constipated. You may want to make sure you eat enough fiber, and drink lots of water. Also, try prune juice. Another thing that could make you constipated is dairy. You might want to eliminate it for at least six months as well. IBS is not really a diagnosis. It just means that your...
  23. Ursa Major
    Well, since it is the middle of the night, and only night owls like me are still around, it will definitely take longer than five minutes to be pinned. I'll go and check it out, and pin it for you.
  24. Ursa Major
    I am very sorry to hear that he is so ill. You must all be very upset. And to think he is about the same age as me (I will be 54 in four months)! It freaks me out a little, I have only been gluten-free for just over a year now. I will pray for your brother and your family.
  25. Ursa Major
    Sure, there are two schools of thought. The ignorant one, and the educated one. Apparently, hers is the ignorant one. Her husband might be just as sensitive as you, but doesn't get obvious symptoms from cross-contamination. That doesn't necessarily mean that he isn't doing damage to his intestines every time he uses the same toaster as his wife, for...
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