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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Bob, how high is your ferretin, what is the number?
  2. Ursa Major
    You are right, Ravenwoodglass, I didn't even see that. Doctors CAN NOT see with the naked eye if there is villi damage, it has to be examined by a microscope. Mallory, I really hope they took plenty of biopsies to look at to be sure. Also, before you gave up, did you try going dairy and soy free? Many of found that just being on a gluten-free diet was...
  3. Ursa Major
    Mallory, did you have the endoscopy AFTER being gluten-free for three months? If that is the case, any sign of celiac disease might have healed in that time, even if there was damage to your villi before. So, your endoscopy really means nothing, other than that NOW there is no damage to your villi. Anyway, it has been found that one of the very best treatments...
  4. Ursa Major
    Celiac disease is not contagious, so won't 'transfer' to anybody in that way. But it is genetic, and of course any child of somebody with celiac disease can have the celiac disease genes, and be predisposed to getting it (or even being born with it already). And that chance is fairly high. Infertility appears to be a common problem for both men and women...
  5. Ursa Major
    Melanie, I find that all lectins cause me to have joint pain and extreme fatigue (not necessarily bowel and stomach issues at all, other than rice). And salicylates give me body aches, and also fatigue. So, you might want to eliminate all lectins for a while to see if it will help your joint pain. For more information, follow the links in my signature...
  6. Ursa Major
    You have a diagnosis of celiac disease. If you haven't been gluten-free, it is no wonder you're feeling terrible. At your age it isn't too likely that you have already developed cancer. Celiac disease can cause you to be in agonizing pain, and you can even die from malnutrition. Before you bother with more testing and doctors, you really need to try being...
  7. Ursa Major
    I usually get a stomach ache within an hour. Within a few hours I will sink into a deep black pit of depression, paranoia, extreme irritability, angry outbursts and anxiety. By the next day I'll be bloated and have bowel cramps, as well as joint pains and possibly a migraine, and I'll feel utterly exhausted. Then I'll either get constipated, or get diarrhea...
  8. Ursa Major
    RiceGuy, buckwheat is not a grain, but a seed (buckwheat belongs to the same family as rhubarb). I find that I can't tolerate dark buckwheat, but light buckwheat is okay once in a while. I love cream of buckwheat from Bob's Red Mill once in a while for breakfast. I cook it with some ground hazelnuts added, and put a cut up apple or pear in. Delicious....
  9. Ursa Major
    I am intolerant to lectins. That includes ALL grains, including rice and corn. Especially rice will cause symptoms very similar to when I eat gluten (which I don't, of course). I thought that I would outgrow some of those intolerances, but so far I haven't.
  10. Ursa Major
    Wow, I didn't know there were Aldi stores in America! I used to help my dad do our weekly grocery shopping at Aldi (in Germany) as a kid. But I don't think there are any in Canada, or am I wrong?
  11. Ursa Major
    You know, Elizabeth, that 'serious C' can be a symptom of a glutening as well as D? Especially if it is accompanied by bloating and pain. With me, a glutening can go either way. Sometimes stomach and bowel cramps followed by D, or bloating, severe pain and C. Try drinking some prune juice, or eat some steamed prunes. Also, drinking lots of water is helpful...
  12. Ursa Major
    Hi Tina, and welcome to this board. Your symptoms could very well mean you have celiac disease. And often autism symptoms and developmental delays can be symptoms of celiac disease as well. Those bms that look like mud sound just like me before I figured out the gluten intolerance. One of my symptoms used to be uncontrollable weight gain. It seemed...
  13. Ursa Major
    Your son might be IgA deficient, in which case the other values are meaningless. Also, in children that young the tests (both blood and biopsy) are extremely unreliable, and yield many false negatives. Obviously, there was damage to his bowels, just not what the lab thought meant celiac disease. With his sister being diagnosed through Enterolab, and having...
  14. Ursa Major
    In my experience skin prick tests are pretty useless with a lot of those. Really, an elimination diet is the most useful tool in finding food intolerances.
  15. Ursa Major
    Happy Birthday, Rusla! I hope you had a great day.
  16. Ursa Major
    Most people think that people in Africa don't get celiac disease. The truth of the matter is, that MOST of them are gluten intolerant, but nobody usually knows (unless they eat the surplus wheat countries send for relief), because the grains they usually eat (like millet and teff) are gluten-free. So, I think that many African Americans are gluten intolerant...
  17. Ursa Major
    I ALWAYS had terrible pain in my legs, and really all my joints from the age of three. People would just claim it was no problem, since they were just growing pains (I don't believe there is such a thing, but there is a real reason for those pains). Too bad I never outgrew those 'growing pains' until, at the age of 52, I eliminated all gluten and lectins...
  18. Ursa Major
    Jerry, a few things come to mind. Are you still eating/drinking dairy? That could be the culprit. A lot of people thought they kept getting glutened, only to find out that those 'glutenings' were caused by dairy (or soy). Also, maybe your system can't handle certain foods yet. For the first six months of being on the gluten-free diet, I was unable to eat...
  19. Ursa Major
    Stu, the contamination could have come from many sources. But your symptoms sound very familiar. Your doctor is definitely NOT going to order the test from Enterolab. All regular doctors still rely solely on the outdated methods of bloodwork and intestinal biopsies. NOBODY can stop you from eating gluten-free, and force you to go through with a gluten...
  20. Ursa Major
    Peggy, even Enterolab's tests are not 100% accurate. NO tests are 100% accurate. That said, you said yourself that you had been gluten light for some time before going gluten-free 4 months ago. That could have been enough for your results to come back normal. You obviously have intestinal damage and malabsorption as the result of a gluten intolerance...
  21. Ursa Major
    Obviously, nobody can say for sure that those symptoms are caused by gluten. But they could very well be, I will get some of those when glutened myself.
  22. Ursa Major
    Ami, it is very common for people with celiac disease to feel better at first, but for other intolerances to show up after a month or two of being gluten-free. I suspect that you are intolerant to gluten AND dairy, which is a very, very common combination. A lot of us can't tolerate dairy.
  23. Ursa Major
    Hi Jack, and welcome to this board. The high serum IGA obviously means SOMETHING, and it would be good to find out what it is. Try doing some Internet research on that, to see what you come up with. Osteoporosis is extremely common for celiac disease, and can sometimes be the only obvious symptom. But it can also be a symptom of a casein intolerance...
  24. Ursa Major
    Well, Brian, this is the way I look at it: Our doctors for the most part are pretty clueless. Dr. Fine is a doctor. If you go through Enterolab, and get diagnosed by them, you DID get diagnosed by a doctor! Maybe not your family doctor, but a fabulous doctor nevertheless. So, yes, I definitely believe that everybody who got diagnosed by Enterolab has...
  25. Ursa Major
    The blood tests in children under six are highly unreliable and produce many false negatives. Your son didn't have such awful, life threatening symptoms yet, that would indicate such terrible bowel damage that his bloodwork would definitely be positive, even if he has celiac disease. It really sounds to me as if your son responds well to being gluten-free...
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