elye
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Latest Celiac Disease News & Research:
Everything posted by elye
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I'm really late entering this thread, and haven't read the last couple of pages closely, but as I was reading near the beginning I kept thinking, "Vydorscope, you need a home glucose monitor!" And then I read this quote of yours...so, you are on the right track. Listen, to hell with waiting two weeks for a machine--get to your drugstore and buy a glucose...
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Yep, I've taken ginger (mind you, it was before my celiac was diagnosed so I'm not sure which brands are gluten-free) for nausea, particularly when I had morning sickness during pregnancy. It never worked very well for me, at least not nearly like the Gravol always has. I have heard many times that if you can manage to get some real ginger root down, raw...
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hey, mandigrl1, Sorry I've taken so long to get back to this post! Gravol is the brand name for dimenhydrinate, quite an amazing drug for nausea, particularly motion sickness. I've taken it in suppository form to stop the nausea/vomiting when I've had the flu, and it really works. It also whacks you out, so you will sleep. It's available over the counter...
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Hi, Mandigirl! Sounds awfully like the flu to me...aches and pains all over, severe nausea. How about your head, is it aching or splitting? These are classic influenza symptoms. However, as we've seen, some of these symptoms seem to suggest accidental glutening for some. I'd still put my money on the flu, and take a gravol...can't hurt, and it settles...
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How's this for scary...we all know the connection between various autoimmune disorders, particulary type one diabetes and celiac disease. My wonderful endocrinologist who I have had for twenty-five years looked quite puzzled last summer when I told him my GP had run the blood work for celiac because my iron was low, and that it came back positive so I was...
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Hi, Kayjay, Definitely follow up on your thyroid...right after my first baby was born thirteen years ago, my thyroid plummeted (as apparently it can for a few months following pregnancy) and I had the symptoms of hypothyroidism as a result. It did normalize after about a year. I now have hypothyroidism for real, and am on meds for it (celiac and low thyroid...
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Thanks...you guys are awesome!
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I have had an endocrinologist for over twenty years, as I'm a diabetic along with everything else. He found my thyroid to be low just before Christmas, so he put me on 0.1 mg of Eltroxin at that time. I have had to have it tested every month since then and for another three months to come. Yep, he isn't kidding around--he wants to get my numbers stabilized...
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You guys are always so helpful, I figured I'd have a response from here well before I could find it on the D.Q. website or infoline. Is dairy queen ice cream gluten-free? How about the sauces they put on their sundaes, like the chocolate fudge stuff? Thanks a bunch!
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Just an aside about sepia--I have been taking it for years as a very effective remedy for premensrual moodiness...ya know, when you're exploding at everyone and dissolving into tears over nothing. It really works for me, if I take a dose just when I feel the yuckiness beginning.
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While we're on the subject of malt, I'll share the biggest frustration I have as a celiac: not the missed take-out pizza or New York Bagels or meatball subs, but the hands-off Kellog's cereal, many of which are completely gluten-free until you get to the last ingredient--malt flavoring! AUUUGGGHHH! How frustrating...SOOOO close to gluten-free. Such teasing...
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I'm still here! I've been writing the local papers and news stations with info on celiac, begging someone to do a big investigative feature. So far, I haven't heard back from anyone. I know we've talked about targeting Oprah, but how about some other big American names, especially those in the medical industry...perhaps Dr. Phil? (He may be very interested...
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Lonewolf, what a very sad story you've told and I'm so sorry your father and grandmother suffered as they did. I'm lucky enough to still have both parents with me, and I've vowed to try and get them to try eating gluten-free as they both have conditions that could very well be from years of malabsorption. My dad's blood work was negative and this is making...
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ARCHIVED Moments Like These Make Coping Easier!
elye replied to covsooze's topic in Coping with Celiac Disease
Isn't it amazing what our kids absorb from us? My nine year-old has diagnosed more unknowing celiacs than I have, I think, including his teacher, who he heard complaining of tiredness and abdominal pain, and a boy on his baseball team who was also complaining of the classic symptoms. What extraordinary kids we have! -
I have been type one diabetic for thirty-three years, and a known celiac for six months. I remember the overwhelming feeling of hopelessness, of "there's no way I can manage BOTH of these diseases at once!" that I lived with every day the first few weeks after being told I was celiac. But I must say that it really does get easier with time. In fact, the...
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I'd bet a million to one you've got hypothyroidism, and it is bizarre that your GP hasn't given you the standard blood test yet. I've got an underactive thyroid, and have been on the replacement hormone for a couple of months. I wasn't really symptomatic, just a general tiredness, but you have the CLASSIC symptoms: swollen neck where the thyroid gland is...
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Being a type one diabetic along with celiac, I've had to become something of an expert on preventing yeast invasion. I've only had a couple of yeast infections in my life, but I've also become proficient in natural remedies to stave off an infection when I feel one starting. First of all, the antibiotic-yeast connection is a definite. The antibiotic kills...
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My parents are eighty, and I've suspected that my dad is celiac as he's had the classic digestive symptoms for years. He was tested two weeks ago, and was negative. Now, we all know that this can mean nothing. Now, my mother I have also been wondering about for some time. She was just diagnosed with degenerative disc disease, and is in great pain. I...
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Here's a very interesting one for you all: I went to our local celiac group meeting recently, and the speaker was the national chairman. I've heard him speak before, and man, this guy knows his stuff. Anyway, about halfway through his discussion on heredity and celiac, he said: "the gene responsible for starting up celiac disease, on the short arm of the...
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ARCHIVED How Strict Do We Need To Be?
elye replied to radman's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Nancy, FASCINATING. I am going to google zonulin right now. I am also a type one diabetic, so this very pertinent information for me. Thanks! -
ARCHIVED How Strict Do We Need To Be?
elye replied to radman's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
At the risk of getting too far off this topic (which was originally, let me think...going gluten-free or gluten-lite), I want to ask a question that is generally related to many of the posts. I can understand how the malabsorbtion conditions can be caused by celiac disease: lower intestine damage, consequent inability to absorb important vitamins and minerals... -
ARCHIVED Size Seven In The Morning, Twelve At Night...
elye replied to elye's topic in Coping with Celiac Disease
Ah, digestive enzymes...yes, I have read many places that celiacs should be throwing these back throughout the day, and I'd forgotten about it until now. I'm gonna pick up a bottle tomorrow. It's quite hilarious...I'm sitting here reading all your posts with my jeans undone, as per usual at seven p.m. every night. Amazing--these jeans were loose this morning... -
ARCHIVED Size Seven In The Morning, Twelve At Night...
elye posted a topic in Coping with Celiac Disease
Got a question for everyone...I've read a few posts from people who start off the day fine (and we're all gluten-free by this time), but gradually start to bloat through the day until they are REALLY bloated by evening. Well, this has been me for years, before the celiac diagnosis and still now that I am gluten-free. Does anyone know why this is? How come... -
Hear, hear...and maybe those who are curious to find out what gluten is may stumble upon the symptoms of celiac disease, and will suddenly say to themselves, "Hey! That sounds just like me....I'm depressed...and constipated...and ache all over...I'd better find out more about this"... Only good things can come of this cartoon, pragmatically speaking. We...
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ARCHIVED Negative Blood Test...but I Dunno...
elye replied to elye's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks so much, Nini...excellent info. I'm copying it off to go over with the family, as there may be more questionable "negatives" when others eventually get tested.