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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Hello, Maggie! I enjoyed Jennifer's book, too. That we're basically starving to death because we cannot absorb sufficient vitamins and minerals is absolutely right. B12 does make us feel more energetic, but B12 needs the other B vitamins to work properly. B12 works closely with Folate B 9. Taking B12 by itself can cause a deficiency in Folate...
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Hello, Celiac Disease damages the villi in the small intestine so that nutrients (vitamins and minerals) are not absorbed in sufficient amounts. Thiamine is the vitamin that we run out of first because our bodies use so much of it, especially if we are physically and emotionally stressed. Thiamine can only be stored for a few weeks at most, but...
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Genetic testing - questions
knitty kitty replied to BunnyMummy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @BunnyMummy! Having genes that code for Celiac Disease does not mean that you have active Celiac Disease, however, since you have autoimmune thyroid disease and IBS symptoms (which overlap with Celiac symptoms) proper testing for active Celiac Disease should be done. Some people invalidate their antibody tests by not eating... -
Welcome to the forum, @Kareg! How was your daughter diagnosed? By blood tests? By endoscopy? Often people go gluten free before all testing is done which negates the test results. What were your daughter's symptoms that led to her diagnosis? If she continues eating gluten, symptoms can become worse.
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@Vicrob, I'm doing a happy dance! Love hearing about your improvements with Thiamine! You can always increase your Thiamine dose gradually. As long as you're seeing improvement, increasing thiamine doses is safe and helps resolve symptoms. Small doses throughout the day helps, especially if physically active. Yes, Thiamine does...
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@Always-Hungry-Kate, I referred to one of your previous posts in which you said you had been consuming drinks like Ensure and Boost. These drinks certainly do contain added vitamins and minerals which could have contributed to your high levels of B 6 and carotene. Blood tests for vitamin levels are not accurate measurements of the amount of vitamins...
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Bone health, Osteoporosis and Vitamins
knitty kitty posted a blog entry in Thiamine Thiamine Thiamine
Interesting Reading about vitamins needed for bone health Nutritional Aspects of Bone Health and Fracture Healing https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5804294/ And... There is a significantly inverse relationship between dietary riboflavin intake and prevalence of osteoporosis in women but not in men: Results from the TCLSIH... -
@Always-Hungry-Kate, I referred to one of your previous posts in which you said you had been consuming drinks like Ensure and Boost. These drinks certainly do contain added vitamins and minerals which could have contributed to your high levels of B 6 and carotene. Blood tests for vitamin levels are not accurate measurements of the amount of vitamins...
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Questions about Test Results
knitty kitty replied to KGB1819's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm familiar with Dry Eye Disease and Sjogren's Syndrome. I've found correcting nutritional deficiencies and changing to a Paleo diet has improved symptoms. Changing ones diet changes the kinds of bacteria that live in the intestines. A Paleo diet allows for beneficial bacteria to become more dominant. The bad carbohydrate-loving bacteria that promote... -
Recovery from stomach bug with Celiac
knitty kitty replied to Msteele's topic in Related Issues & Disorders
@Msteele, Whether your daughter is fighting Covid or another bug, vitamins like Thiamine B 1, Vitamin C and Vitamin D helps us fight infections. Vitamin D helps regulate the immune system when the level is greater than 32 ng/mL (80 nmol/L). Thiamine in the form called Benfotiamine has been shown to improve gastrointestinal symptoms. Patients... -
Coeliac as a teenager
knitty kitty replied to emma1semrad's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Happy to help! Do look into the Autoimmune Protocol Diet (AIP diet) and choose low histamine foods. During immune reactions and autoimmune reactions, our body makes and releases histamine. Histamine causes inflammation which helps fight off antigens like gluten or pollen. Histamine is also found in foods. High histamine foods include... -
Coeliac as a teenager
knitty kitty replied to emma1semrad's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@emma1semrad, Thought of another article that might be interesting to you. It's about female athletes and Thiamine improving their performance. The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/ -
Could the itching be due to Histamine Intolerance? Histamine Intolerance—A Kind of Pseudoallergic Reaction https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8945898/ Evidence for histamine release in chronic inducible urticaria – A systematic review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9365951/ A Histamine-Free Diet Is Helpful for...
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Feeling of food getting stuck
knitty kitty replied to HayleighNoWhey's topic in Related Issues & Disorders
People with Celiac Disease have a higher rate of Eosinophilic Esophagitis than those in the general population. Eosinophilic esophagitis associated with celiac disease in children http://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/ Changing the diet by cutting out sugar can help improve Eosinophilic Esophagitis... -
Newhike- Sharing My Experience
knitty kitty replied to Newhike's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Newhike, Thyroid problems are common in Celiac Disease. There's a genetic overlap. Nutritional insufficiency (vitamin and mineral deficiencies) found in Celiac Disease can contribute to other autoimmune diseases. Celiac Disease causes poor absorption of essential vitamins and minerals. Correction of nutritional insufficiency is very important in... -
I developed vitamin and mineral deficiencies before my diagnosis. Thiamine deficiency made me have a voracious appetite at some times and at other times, I had no appetite at all. Thiamine affects the satiety center in the brain that tells you to eat more or you've had enough. Thiamine deficiency also causes nausea. I would wake up ravenous...
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Always Hungry?
knitty kitty replied to AshleyDawn91's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I developed vitamin and mineral deficiencies before my diagnosis. Thiamine deficiency made me have a voracious appetite at some times and at other times, I had no appetite at all. Thiamine affects the satiety center in the brain that tells you to eat more or you've had enough. Thiamine deficiency also causes nausea. I would wake up ravenous... -
Low libido due to coeliac?
knitty kitty replied to ReluctantlyGlutenFree's topic in Related Issues & Disorders
@ReluctantlyGlutenFree, I used high doses to correct my Vitamin D deficiency. I felt much better quickly. Vitamin D deficiency does affect your mood. I was struggling with depression, menstrual problems, and feeling off, but those resolved after getting and keeping my Vitamin D level above 80 nmol/L. Vitamin D is a fat based vitamin. Celiac... -
Low libido due to coeliac?
knitty kitty replied to ReluctantlyGlutenFree's topic in Related Issues & Disorders
Oh, @Scott Adams, I apologize. I had a bit of a visceral reaction due to my own icky experience. It's so much easier to correct a Vitamin D deficiency or insufficiency and look for resolution of symptoms before undergoing HRT. Many doctors, including gynecologists, are clueless about Vitamin D and how nutritional deficiencies can wreak havoc... -
Feeling of food getting stuck
knitty kitty replied to HayleighNoWhey's topic in Related Issues & Disorders
Thiamine has beneficial health effects when taken in high doses. It sort of "kick starts" the body's metabolism into functioning properly. It's truly amazing, the difference. Doses as low as 300 mg/day to as high as 2500 mg/day have been used to correct deficiencies and attenuate disease. See which level works for you. Our bodies can have difficulty... -
BP meds
knitty kitty replied to Dr. K's topic in Gluten-Free Foods, Products, Shopping & Medications
@jbrguy, Have you been checked for nutritional deficiencies? Many newly diagnosed Celiacs suffer from vitamin and mineral deficiencies, especially the eight B vitamins, Vitamin D and magnesium. The B vitamins like thiamine are water soluble and easily excreted if not needed. Thiamine B 1 has been shown to lower blood pressure. Interesting Reading... -
Feeling of food getting stuck
knitty kitty replied to HayleighNoWhey's topic in Related Issues & Disorders
Hi, @Elizabeth M Blair, How much Thiamine are you taking? What form is it in? Have you tried increasing your Thiamine dose and looking for improvement? -
Low libido due to coeliac?
knitty kitty replied to ReluctantlyGlutenFree's topic in Related Issues & Disorders
But, @Scott Adams, she's way too young (32) for menopause! Vitamin D deficiency can cause low libido. Vitamin D acts like a hormone when levels are above 80 nmol/L. Vitamin D helps regulate the immune system, reducing inflammation, and also contributes to making estrogen, and testosterone (yes, women need testosterone, too). Zinc also helps with... -
I'm so glad to hear your neuropathy is improving! Dental visits are a huge stress! Thiamine helps with headaches. A combination of Thiamine, Cobalamine and Pyridoxine B6 work to relieve pain as well! You may feel worse before feeling better.... it's like starting an automobile that hasn't been cranked for a while, a couple of backfires to...