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CMCM

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Everything posted by CMCM

  1. CMCM
    I've had unexplained high blood pressure for years. I had high bp at 20 when I was quite slim. Doctors couldn't explain it....I wasn't ever all that overweight...about 20 lbs max, and I was a very careful healthy eater and strong exerciser...and although I didn't want to take meds, I did agree to try verapamil on one occasion and hydrochlorothiazide (diuretic...
  2. CMCM
    Well, I'm 56 and just definitively figured this all out a month ago, so it took 56 years...really! As a newborn, I had terrible colic. My mom couldn't breast feed me and I couldn't drink cow's milk. Finally I seemed able to tolerate goat's milk. Things settled down, but my entire life I've had trouble with any and all dairy products, so I actually...
  3. CMCM
    Jay Robb apparently makes some gluten & dairy free protein bars, also an egg white protein powder. has anyone tried them? Any good?
  4. CMCM
    Here's what I'd suggest about your mother in law: Get a bunch of books on this subject...go to Amazon and you'll find several (Dangerous Grains, Wheat Free Worry Free, Against the Grain, Celiac Disease...a Hidden Epidemic). Read as many of these as you can and learn all the facts, and then rattle off all these facts to her. Get a pink highlighter and...
  5. CMCM
    Their gluten free and their regular cookie bags look almost the same. I bought the gluten free ginger snaps but I'm certain they bothered me. They also fall apart horribly, and I've had much better, so I won't buy Mi-Del again.
  6. CMCM
    I really love golden flaxseed...Pizzey's is a great brand. I bought a small coffee grinder ($12) which I use only for grinding the flaxseed. By the way, the seed MUST be ground up to be absorbed, otherwise it just passes thru the body. I really like the taste....I keep a mix of about 28oz water mixed with 1/4 c. pure cranberry juice, and put about 2T flax...
  7. CMCM
    I had trouble with dairy from infancy. In the last 25 or so years I figured I was lactose intolerant. In my testing for celiac (which I have) I also discovered I had casein sensitivity. This doesn't go away, and it can be just as damaging as gluten to the intestines. If your son has celiac or gluten sensitivity, it would be useful to find out if he is...
  8. CMCM
    Heather, it will get better, really it will. Just focus on the positives, and there are a lot of them. My mom was dx in 1969 after 7 years of truly debiliting illness and she was 80 lbs. when finally diagnosed. For 7 years doctors told her it was all in her head, an emotional thing that was making her sick. When a smart, informed doctor finally figured...
  9. CMCM
    I was reading that cola used to have sugar....but they found it was much much cheaper to use high fructose corn syrup...plus, it's actually very addictive and as someone said earlier, it impairs the body's ability to interpret fullness "satiety" signals. Some people hypothesize that the increased presence of high fruc. corn syrup in so many foods is behind...
  10. CMCM
    I don't believe it is accurate to say the CASEIN intolerance will go away. I believe the lactose one possibly would. Lactose intolerance is a sensitivity to milk sugar, whereas caseiin intolerance is sensitivity to the milk protein. I also tested casein sensitive, and I was hoping it would later cease to be a problem, and here's what Enterolab said when...
  11. CMCM
    People rarely have just one allergy or sensitivity. I thought for my entire life (56 years!) that milk was a problem. I thought for 25 years that I was lactose intolerant because that got a fair amount of press time and there was a product to help it (lactaid tablets etc.). Nothing helped all that much, and the lactaid products didn't eliminate the problem...
  12. CMCM
    I had NAET testing done a number of years ago, just out of curiosity, and before I got a definitive celiac diagnosis. The NAET did not identify either wheat or casein as a problem for me, whereas in realty, they are the two things responsible for most of my symptoms.
  13. CMCM
    I'd really recommend the Enterolab full panel test. It's $369, and I THINK some insurance co's might help with it. Still, even if you pay for it all yourself, you can learn a lot. It tests for the genes, so right off you can learn if you have one of the celiac genes, a gluten sensitivty one, or perhaps both. Then you'll at least know if you have a predisposition...
  14. CMCM
    The 0302 gene is one of the celiac genes. Therefore, at the very least you have a predisposition to celiac. I'm guess your 0301 gene is a gluten sensitive one. So you seem to have an even higher predisposition to something going on with gluten, either now or in the future. Your antigliadinIgA was "normal" and so was the Transglutaminase IgA. However...
  15. CMCM
    I had a blood test (admittedly it didn't appear to do all the necessary tests) in 2001 which came back totally negative, very low results. At the time, and for at least 20 years prior to that, I had been plagued with digestive and other symptoms, including back and muscle aches and asthma type symptoms. So from that test, the doctor grandly pronounced me...
  16. CMCM
    I was just reading that fructose intolerance is a big problem for a lot of people, and although I hadn't read this before, it was listed as a major intolerance along with gluten, soy, dairy. I avoid it as much as I can, and actually, since I'm trying to be gluten/dairy free, eliminating those things eliminates a lot of the fructose sources. A lot of people...
  17. CMCM
    Very interesting comments....possible, too I guess. But the whole thing is very unpredictible in the sense that no one thing happens every time. I've had foods that actually started to hurt going down. Then my stomach would start burning and hurting. This was always with bread foods, but not with every bread, which is odd. This changeability is what...
  18. CMCM
    My Enterolab tests took exactly 2 weeks, 14 days.
  19. CMCM
    Enterolab says they can detect antibodies in the stool up to a year after you stop eating gluten. SO...if your body can still produce these antibodies, perhaps they account for the recurring symptoms here and there even though you have cut gluten from your diet. Just a thought...I don't know if this is actually true, but it makes sense.
  20. CMCM
    You don't need 2 genes to have it. I was told that having the gene means you have a "predisposition" to it, and that it would be better to not eat gluten. Remember that there is a segment of those with celiac who have what is called "silent celiac" disease. They have no observable symptoms but intestinal damage is still occurring.
  21. CMCM
    Kari....While a doctor goes to medical school and learns a little about a lot of things, no doctor knows about ALL things. Therefore, be wary of any doctor who tells you you do not have celiac despite having the antibodies. Do lots of your own research....for about $30 you can get 3 very good books on celiac from Amazon: Dangerous Grains, Against the Grain...
  22. CMCM
    In terms of being in a work environment where there is a lot of exposure to flour, I believe it was the book Dangerous Grains that mentioned the very high incidence of celiac in industries such as flour milling etc. where the workers were continually breathing a lot of flour dust. There was a definite connection.
  23. CMCM
    Dianna....what is your situation with dairy? I firmly believe my breathing/asthma symptoms are also connected to dairy as well, not just gluten. I think either one contributes to it, but individually they also can cause it as well.
  24. CMCM
    Oh my YES....in addition to all the digestive stuff, I have spent 25 years trying to figure out my breathing problems, which very much resemble asthma in many ways. Sometimes I'd just wake up with that tight feeling, almost like someone was sitting on my chest. I had this chronic, wheezy cough that would stick around for months and months. I had full testing...
  25. CMCM
    Well, I hate to be so negative, but honestly, allergists have been ZERO help to me and my son over the last 12 to 15 years. We've spent an absolute fortune and learned nothing from them and nothing got better because of them. I took things into my own hands to confirm my own suspicions. You can get your own casein test thru Enterolab. If you just want...
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