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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Beverage
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I am now experimenting with another B vitamin...niacin. Naturopaths have long recommended the flushing form of niacin (nicotinic acid, not nicotinamide) to clear out atherosclerosis. My boyfriend has that really bad, had a heart attack and 4 way bypass, so we were trying it for him, and I started with it also. I read some studies about flush niacin and...
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Hi. I also had big improvement by taking B-12, but not until I used the methyl form Methylcobalamin. I take this one as recommended by others here: https://www.amazon.com/gp/product/B003BHUZ68/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 My other big improvement, especially with asthma was B-1 Thiamine, as recommended by @knitty kitty , to...
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Traces of wheat
Beverage replied to Oldturdle's topic in Gluten-Free Foods, Products, Shopping & Medications
Never ever for me. No noticeable symptoms does not mean no autoimmune response. -
Make sure you are going to a hematologist or doc really knowledgeable about blood tests. I was told all my life to take more iron as I had anemia, but this was very harmful to me. Not until I was 19 did I finally get to a hematologist for some other issue (probably when my Celiac's was first triggered) that diagnosed me with Thalassemia. His diagnosis...
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And eliminate oats. Some are sensitive to oats the same as the other grains. And oats are the next most cross contaminated grain. I eventually was able to eat purity protocol oats, but I strongly recommend you eliminate them for awhile until you know for sure.
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Before I was diagnosed, I was 30 lbs overweight. Dropped it all and more in a month after going gluten free, I was a skeleton underneath. It's taken me 5 years to put back on muscle after that. The naturopath that diagnosed me said that he regularly has patients that are 100 lbs and MORE overweight, some even 300 lbs overweight before diagnosis. So yea,...
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Look into candida albicans overgrowth in the intestines. It could be dying off as a result of cutting out the foods that feed it, which is a good thing, but when it dies off quickly, it feels horrible. I had it and it felt like I was hit by a truck, a very big truck. My naturopath had me go on a rotating supplementation of vitamin C, garlic, oregano oil...
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List of his papers: https://scholar.google.com/citations?hl=en&user=oRnx2NUAAAAJ&view_op=list_works&sortby=pubdate One of his papers on covid and niacin: Sufficient niacin supply: the missing puzzle piece to COVID-19, and beyond? Dmitry Kats, Ph.D., M.P.H. Division of Epidemiology and Biostatistics, EPIDEMIOLOGY...
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B vitamins regulate a lot in our bodies. I am finding much improvement in my sleep by adding specific B's, in addition to a multi-B supplement. And only take in the morning. Lately, I have added B3 flushing niacin and niacinamide, and finding that really helps. @knitty kitty probably would have more specific info on that.
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I don't know if it works on pericarditis, but the B3 flushing niacin protocol by Dmitry Kats, an epidemiologist, has helped me in preventing sickness and overall reducing inflammation, another significant step in reducing my asthma. I also gave some flushing niacin and niacinamide to my 30-something neighbor who got break through covid, and was going down...
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Unfortunately, with an auto immune disease like Celiac's, anything causes an attack, anything except a microscopic amount.
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Whoa whoa whoa. This is massively bad and very dangerous advice. Celiac's is an auto immune disease and the only treatment available is to be completely gluten free.
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If I ever get the tiniest thought of cheating, I remember my mother (who I got it from), went undiagnosed until the very end, who was one of the smartest, funniest, feisty, and full of life person I've ever met, and then I remember how she ended up with severe dementia and completely incapacitated, my brother having to change her diaper, and she didn't know...
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Look in the articles section in here, there is a lot of great info, especially "gluten-free Diet 101" For your 5 month old, I'd talk to a good doctor about what to do. I have read a few articles about exposing babies early to gluten...I can't recall exactly what it was, to do it early or to delay it. You'll have to talk to your doc, but read up on it...
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I totally agree with that decision. I found it very very hard to keep my kitchen free from cross contamination without doing that. Also be aware that 1st degree relatives will need to be screened, and their doctors made aware of a relative with Celiac's. Here's some info from the U of Chicago, the leading Celiac's research univ: https://www.cureceliacdisease...
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Reacting to certified gluten free foods.
Beverage replied to littleMrs's topic in Coping with Celiac Disease
I have an official diagnosis from a naturopathic MD based on 3 things: 1) positive Celiac blood tests 2) positive DNA test 3) positive response to a gluten free diet. This is medically sufficient for a diagnosis, biopsy is NOT required. In the past, it was considered the "gold standard", but it is not conclusive when negative, and the medical community... -
Possible Celiac?
Beverage replied to CeliMomi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Seriously, I'd just get a different doctor. A negative biopsy is NOT conclusive of no Celiac's, as it is too easy to miss. And biopsy is going more and more as not required, especially for children. -
Seronegative 5 year old?
Beverage replied to Karly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are going to try the gluten free diet, please consider this. I had to make my kitchen 100% gluten free before I felt better. I got rid of all pots & pans with non-stick coating and cast iron skillets, also wooden spoons. My boyfriend can have gluten beer in the house, but if he wants toast, he makes that in a little kitchenette in the garage... -
Oats can be a real problem. I cannot tolerate the typical gluten free oats, like Bob's Red Mill, perhaps they are under the legal limit but not low enough for Celiac's. But I can eat "purity protocol" oats. Here's an article: https://www.glutenfreewatchdog.org/news/oats-produced-under-a-gluten-free-purity-protocol-listing-of-suppliers-and-manufacturers...
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I remember seeing the separate videos of these women back then (not this interview video), but they've all been removed. VAERS is notoriously under reported, and way behind, a few more deaths of young healthy people from the rare blood clot issues from a month ago were just posted. I've had reactions to the TDAP vaccine.
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My symptoms are getting worse.
Beverage replied to Alfrieda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I felt like a truck hit me after going gluten free, for about 2 months. I did not have the typical intestinal symptoms before, but was bloated, about 20 lbs overweight after being very slim my whole life, failing kidneys, and lots of severe allergies and asthma. After going gluten free, I dropped 30+ lbs the first month, underneath I was a bag of bones,... -
We've had some friends with no reaction to the Phizer, one felt like she was hit by a truck after the 2nd shot. But definately more reactions with the Moderna. The worst was one guy in 50's who had a sore arm in the Moderna on the first shot, and ended up in the hospital with high fever and very ill after the 2nd. It's been a month and he is finally back...