Jump to content

ironictruth

Advanced Members
 View Profile  See their activity

  • Posts

    473

  • Joined

  • Last visited

  • Days Won

    5

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ironictruth

  1. ironictruth
    Good lord! A new baby after a high risk pregnancy and now this! I hope you are getting plenty of rest and some down time for yourself.
  2. ironictruth
    They may not have run those tests. They are liver enzymes, I'm just wondering if you happen to know if they were done fairly recently. If not, it may be good to inquire. Keep us posted!
  3. ironictruth
    You are on the right course. What was the lab range for EMA? Might also look at the liver with a high Alk Phos and positive TTG if the biopsy does not show celiac. I assume your ALT and AST were done? How high was the Alk Phos? Do not worry too much yet It will drive you nuts!
  4. ironictruth
    Good Lord I just had a really long response to you and my phone crashed. The study done last month out of Columbia was for TTG negative DGP positive. What they found was DGP Is not as accurate as Thought and gives false positives. interestingly, in this particular study the most accurate of the DGP tests happened to be the iNova combined screen, the...
  5. ironictruth
    So...looks like that the deamidated test is Inova's dgp screen. That specific test combines the dgp iga and igg antibodies. Inova also makes dgp tests that separate the antibodies so that you would get one reading for the IGA and one reading for the IGG separately. I have tested positive 4 times to the test you test positive for roughly between 28...
  6. ironictruth
    Excellent point GFinDC about contacting local groups! You might be able to try searching for a provider here as well: Open Original Shared Link
  7. ironictruth
    The DGP is certainly positive. Even the newer test can be a false positive though. I tested positive to one DGP test and negative on another within days. This can also happen to first degree relatives. So, I am in your boat as I have a first degree relative with celiac. Cycling Lady is right. Find a celiac saavy GI. I would not waste your time with...
  8. ironictruth
    I agree with both Gemini and Cycling Lady on their points. DGP is roughly a decade old, with perhaps just newer use in the states. All I am trying to point out is that there is research studies done on false positive DGP and some of the subjects were even gene negative. So if you find yourself getting sicker with no improvement on a gluten...
  9. ironictruth
    DGP can absolutely be false positive. Google will not tell you that but I have found multiple studies in journals showing this and have also been told this by two different celiac clinics. I myself test positive to DGP when the assay is ran one way and negative to it when run another way. It is only a matter of time before the rest of Google University stops...
  10. ironictruth
    I am going to Mass General in Boston to rule out celiac. I picked it because one of the docs is a lead researcher and it is a 5.5 hour drive. Plus they did a virtual visit with me which was great. Admittedly, my first actual visit was short and it felt like a long haul for a quick 20 minutes. I spent about $250 on hotel, gas, food and tolls. I stayed...
  11. ironictruth
    Could be the gluten. Could also be the excess carbs and sugar. Which, if you are anything like me, you certainly have added a few things you have been missing. Try some protein when you intake gluten.
  12. ironictruth
    Yes. Use sparingly. I was on the lowest dose prn for months, only using roughly 1 or 2 every several days. I only started taking it because 1) it was implied that my symptoms were due to anxiety and I was willing to see if they would resolve ( actually was telling nuero doc about head pressure and he said to try one. I already had). 2) I was at my wits end...
  13. ironictruth
    Did you go gluten free? If not, then you should be fine with your current diet. However, while you wait for an endoscopy feel free to eat your favorite pasta, donuts, cakes, breads, because you may not see them again.
  14. ironictruth
    Teeth grinding can cause pain in the neck/muscle. I hope you get some answers soon!
  15. ironictruth
    btw...you don't grind your teeth when you sleep do you?
  16. ironictruth
    I have this as well. Got it after my first gluten challenge (winter of 2016), a swelling in the right neck. It started with a strange zap like sensation and slowly turned into a more chronic pain. After months, I finally begged my old primary for an ultrasound which showed up looking like Hashi's with a tiny 3 mm nodule. Only one antibody test was run and...
  17. ironictruth
    Was any other test listed in the panel? EMA OR DGP?
  18. ironictruth
    Ttg 6 is the antibody involved with the brain. There have been studies on ALS symptoms being related to gluten. There is also a correlation between celiac and MS, but it is just that, a correlation. God, I read somewhere about a guy on a plane who had Celiac neurological symptoms and happened to be sitting near a physician who told him a minimum...
  19. ironictruth
    Celiac panel is TTG, DGP, EMA. A overall IGA should be run to make sure you are not deficient. You have positive thyroid antibodies, and, I learned this the hard way, there is a second thyroid antibody test. Although, your one is already positive. You should have all of your thyroid levels done to see how it is functioning and possibly an ultrasound...
  20. ironictruth
    I did not realize you had H. pylori as well as gastritis. This, and the ppi's may be what is going on. Are you also on antibiotics?
  21. ironictruth
    What blood work? I find more and more reading on Here that many GIs do not run the whole panel. TTG, DGP, EMA and overall IGA. 6-8 samples for biopsy including at least one from the duodenal bulb. If you were not gluten free for long before the test, or on a challenge, the results are probably accurate and point to not having celiac. If symptoms...
  22. ironictruth
    You mentioned doing a neuro work up in Boston. There is also a Celiac disease Research Center At the Pediatric Hospital in Boston at Mass General. Why don't you give them a call? In fact one of the docs there is well-known. Alessio Fasano. In some of his writings he references TTG 6 which is an antibody that is associated with some neurological...
  23. ironictruth
    Hugs. I wish I had advice. Can you do nutrition drinks? Are you absolutely positive no gluten is sneaking in through your meds or through a weird ingredient listed in your food? Let us know your results. More hugs.
  24. ironictruth
    Marsh is a scoring system for degree of damage to intestinal villi. Keep us posted on the results!
  25. ironictruth
    You did not have the whole celiac panel. DGP and EMA should be tested. The PPI can cause a lot of bathroom trouble. PPI's can interfere with digestion as well. Do they have you on a plan to taper off?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.