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emma6

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by emma6

  1. emma6
    i dont think its that unusual, mine was similar, my TTG IgA was >250 and my TTG IgG was 2 with the negative range being <15 everyone tests differently
  2. emma6
    im sorry you havn't been able to access the blood tests but im really glad your rash has made such a great improvement in just a week thats amazing hopefully you will continue to improve even more i believe there are home testing kits if you really want to pursue it but i dont know how accurate that would be and getting a negative results wouldn't rule...
  3. emma6
    awesome thank you so much! im not in the us so i can't find those particular brands, are they "young green jackfruit in brine" is that the right type? im asuming the ones in syrup would be too sweet. those ideas sound great i didn't even think about using it in a stir fry. i actually just bought some bbq sauce as well. freezing it is a really good...
  4. emma6
    hey krstannkaty did you get tested and rule out celiac disease before going gluten free? if not now is your best opportunity to since you've only been gluten free for a week. most people find it very hard to do a gluten challenge to be tested months or years later. there definetely alot of great vegan and gluten free options, being vegetarian the hardest...
  5. emma6
    thats so exciting! let me know if you need any help with finding gluten-free products or brands when you move here
  6. emma6
    i do take iron and b12 tablets as well but i think it depends on the person and what your levels are at but definitely keep at eye on it thats so exciting! where are you moving to? i'm from sydney, i havn't ate out yet but i know there are alot of options. the grocery stores carry lots of gluten free options so i wouldn't worry too much especially if...
  7. emma6
    i usually buy pre made falafels as the majority i've found are gluten free and vegan. they are really good on a wrap with hummus, lettuce, tomato/salads or even the same on a sandwich. i also eat them with a salad or as a side with a curry. the only recipe i've made from scratch is from Open Original Shared Link also their cheese sauce is really...
  8. emma6
    hey i've been vegetarian for 8 years and gluten free for almost a year. its difficult since they are kind of opposites. i actually just noticed the advertisemnts from the cancer counil here is australia now has meat listed next to alchol, cigarettes and the sun. a few years ago when i read about it, it seemed hot dogs and super processed meats like salami...
  9. emma6
    same stairs and squatting are the absolute worst for me. for pain relief ice and ibuprofen gel are the most helpful for me. for me exercise wise, i've given up on most of the physio exercises and am doing the most i can of movements that don't aggravate the pain. walking as much as i can and exercising as much as i can but stopping a soon as im in pain. im...
  10. emma6
    i know what you mean, its understandable to be disappointed, its so exhausting and frustrating when doctors can't figure out whats wrong with you. i hope you get some answers soon there are alot of very knowledgeable people on this forum who may be able to offer some advice
  11. emma6
    they are all in the ref range so you've tested negative for Celiac, your total IGA is in the normal range as well which means you are not IgA deficient and its unlikely that they are false negatives were you eating gluten for a few weeks before the blood test, if you had already gone gluten free that can also cause false negatives
  12. emma6
    Yes i have celiac been gluten-free for 10 months, had an iron deficiency (was hoping that was the cause of knee pain) and am being treated for suspected sjogrens syndrome. im surprised they didn't do other bloodwork for you, one of the first tests i had in relation to joint pain was for rheumatoid factor, ANA and a few other arthritis type diseases. ...
  13. emma6
    i have a very similar experience i never injured my knees. started getting mild joint pain in 2012 was told it was PFS and given exercises, they didn't help and caused me alot more pain. then in late 2015 its started to get worse saw a new doctor, got xrays and an mri and said PFS and sent me to a physio. the physio pushed me extremely hard on the first appointment...
  14. emma6
    an allergy test for tap water sounds quite suspicious, i've never seen any type of water listed as part of a food allergy test panel. i can't imagine how that is possible to test for, sounds like it would be a extremely rare allergy also doesn't tap water vary depending where you are. do you have a reaction to drinking water? what are your symptoms when you...
  15. emma6
    are you avoiding oats aswell?
  16. emma6
    mine is a small patch in the exact same place on both arms, legs and hands, i've never had anything on my face. not sure if that is common or not. that sounds very frustrating to have everything blamed on having a baby. hope you get some answers soon
  17. emma6
    i just tried i can access some earlier months/years of jama internal medicine but not the may 2017 issue unfortunately it might become available to me at a later date
  18. emma6
    everyone tests differently, most people arn't postive for every test. so having only one positive can still indicate celiac disease. ttg suggests there is tissue damage in the small bowel. i guess it depends on the doctor. the GI i saw was only interested in the endoscopy, he was very much in the school of thought that the biopsy is the only way to diagnose...
  19. emma6
    did you get your iron levels tested aswell? thats also quite a common deficiency for people with celiac i've read people with DH are also less likely to test positive on the blood tests and have more patchy intestinal damage. i also have a rash which i think is DH but every doctor thinks it is something different so that seems to be quite common...
  20. emma6
    i agree that your b12 seems on the low side to me, mine is over 700ng as i was taking tablets for years. it won't hurt to get some b12 tablets or drops you could also ask for a total iga test and the full celiac panel if you want more testing some people do test negative to ttg iga and still have celiac so it doesn't rule it out
  21. emma6
    did they give you any explanation for your positive ANA other than ruling out lupus? i would definitely follow that up it might also be worth buying a blood sugar monitor so you can test when your symptoms are really bad after eating to see if low blood sugar is causing your symptoms
  22. emma6
    @Jm34 how are you doing now? i was following your posts since i have similar symptoms hope you're alright
  23. emma6
    i get similar symptoms from low blood sugar, does it stop after you eat something?
  24. emma6
    thank you for the explaination, makes sense that it is more prevalent among elderly people. i think taking acid is always going to sound very risky to me though as it just makes me think of all the damage acid reflux can do. also those tests sold to swallow a capsule with a piece of sting to test the ph balance of your stomach just sounds like a disaster...
  25. emma6
    taking acid for self diagnosed low stomach acid sounds quite dangerous for an adult let alone a child. i would strongly recommend properly researching all the quackery and pseudoscience alternative practitioners believe before following restrictive diets, jumping on a diagnosis, treatments or paying for unscientific tests. i fell for all of...
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