Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,401

  • Joined

  • Last visited

  • Days Won

    507

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Mental health disorders seem to be more common among the celiac population. Nutritional deficiencies are one reason, as I already mentioned. Another reason is often the social changes celiac disease often demands in order to be gluten free. It can feel isolating. which can lead to depression.
  2. trents
    Why do you say that, Bonnie?
  3. trents
    Welcome to the forum, Bonnie! Did the report include ranges for what is normal? Different labs use different testing concoctions and therefore the ranges are not standard values. So, cant tell much from what you posted except for the EMA which is stated to be positive and abnormal. The EMA is very specific for celiac disease and the chances of a positive...
  4. trents
    Do you know how many samples were taken during the biopsy and from where. The recommendation of this community is at least four samples be taken from the duodenum and the duodenum bulb. Many GI docs doing the scoping may not be that thorough. Damage can be patchy.
  5. trents
    Thanks for the update. You have a leg up on this as you were already eating gluten-free before beginning the gluten challenge in preparation for the testing. Let us know if we can help with anything.
  6. trents
    How much sodium are you getting in an entire sleeve of saltine crackers? How's your blood pressure?
  7. trents
    Welcome to the forum, JosephJW! We have had sporadic reports on the forum of people experiencing similar patterns of reaction to gluten exposure such as you describe. Many times these reports have come from people with celiac disease or gluten sensitivity who travel in Europe and are able to eat wheat products without issue. In part at least, this may...
  8. trents
    What can cause pale stools: https://www.medicalnewstoday.com/articles/324582#causes Has your son had his liver ezymes checked and has he been checked for gallbladder disease? Elevated liver enzymes was what put me on the road to an eventual celiac diagnosis. Took 13 years, however from the onset of the elevated liver enzymes. Concerning the abdominal...
  9. trents
    I might suggest trying a psyllium husk fiber product. Costco's Kirkland Signature Sugar-free Orange flavor brand is gluten free. I use it. Also, magnesium deficiency can cause constipation. But there are many forms of magnesium supplements and they aren't created equal. Believe me, your comment about the saddest summer ever is something every parent...
  10. trents
    Has he had a colonoscopy? How much fiber is he getting daily? Adult recommendation is 25-30g per day. Kids aren't know for liking high fiber foods. Is he physically active?
  11. trents
    Thanks for the additional information. tTG-IGA is 95% specific for celiac disease. The biopsy is confirmation. The chances of it being something other than celiac are pretty slim. But it does seem like something else might be going on in addition to celiac disease if he is eating truly gluten free. Have you checked all his meds, supplements and vitamins for...
  12. trents
    In the U.S., if a food product is labeled "gluten free" it will have met the less than 20 ppm standard. That works for most celiacs but there is a sub group of celiacs that is much more sensitive who require stricter standards. There are a couple of gluten certification groups that use the label "certified gluten free" that meets a stricter standard of 1...
  13. trents
    I agree! When I get "glutened" I am violently ill for several hours. But you know, some people are "silent" celiacs and have no obvious symptoms before going gluten free. I was one of those. It wasn't until I had been gluten free for sometime that I reacted strongly to it like that. It's one of those things our body learns to put up with in some ways while...
  14. trents
    Thank you for the extra information. I remember when Ezekiel bread was a fad. I was diagnosed at about age 51 and I'm 72 now. From what I've read there isn't much difference in the mortality rate for celiacs than for the general population. There are many health issues that can and often due spin off of celiac disease, at least for those who lived with it...
  15. trents
    Thanks for filling in the gaps from that first post. Makes more sense now. But tell me, did you think celiac disease was like type 1 diabetes in the sense that it necessarily manifests itself in childhood? I am perplexed in that lately on the forum we get a lot of people in your age group (which is mine as well) who are surprised when they get a celiac diagnosis...
  16. trents
    Welcome to the forum, Elliemae7395! What kind of sprouts were they? Alfalfa? Bean? Wheat? "The BRAT diet is a restrictive diet that was once recommended for people, particularly children, with gastrointestinal distress like vomiting, diarrhea, or gastroenteritis. Evidence, however, does not support a benefit.[1] As of the 21st century, is no longer generally...
  17. trents
    Welcome to the forum, MominWA! Maybe I missed it in your lengthy narrative but has your son had an endoscopy with biopsy of the small bowel villous lining to confirm celiac disease? That is normally done to confirm celiac disease unless the blood antibody levels are extremely high and in his case that certainly was not true. His antibody score is very...
  18. trents
    Most medical problems that spin off from celiac disease are related to vitamin and mineral deficiencies from malabsorption. The damage done to the small bowel villous lining can make absorption much less efficient. It wouldn't surprise me if your high anxiety level actually has a nutritional deficiency base.
  19. trents
    Actually, from what I've read, mortality rates among celiacs is not much different if any at all from the general population. The biggest threat to mortality is probably an increased rate of small bowel cancer in the celiac population which is 4x what it is in the general population. But it's still pretty rare, even in the celiac population. You have to be...
  20. trents
    May I ask what is your age? Until I read that you have a young son I assumed you were elderly after reading your statement about . . . increased mortality rates in the first year after diagnosis (especially for my age group) . . . Where did you read that stat? I've been a regular participant on this forum for many years and have never seen that stat...
  21. trents
    Keep us posted about the genetic testing results. There are three genes that have been tied to the development of celiac disease. For a long time we thought there were only two but another one has recently been discovered IIR. It could be that both you and your husband only have one or the other but you gave your kids more than one which may have increased...
  22. trents
    And remember, you can develop celiac disease at any age. Just because you and your husband don't have it now doesn't mean you will never develop celiac disease if, in fact, you both have the genetic potential. Have you considered getting genetic testing done to sort that out? You can order home test kits for around $200 U.S. You just do a nasal cheek swab...
  23. trents
    Because the development of celiac disease requires not only the genetic potential but also a triggering event, such as a viral infection or other stress event. 40% of the population have the genetic potential to develop celiac disease but only about 1% actually develop it. Without a triggering event, the genes do not produce an active form of the disease...
  24. trents
    Here is a gluten free k cup coffee: https://www.amazon.com/Donut-Café-Single-Brewers-Classic/dp/B095F8GRL9/ref=sr_1_18?crid=W09BUTUU243X&keywords=gluten+free+k+cups&qid=1690036220&sprefix=gluten+free+k+cups%2Caps%2C151&sr=8-18 I found it by doing a quick search in Amazon. There may be others but I didn't take much time with it. Anther ...
  25. trents
    Welcome to the forum, TinyMiracles! You don't say, so I'll ask this question for clarification. Have you been following a strict gluten free diet since diagnosis? And, how long did you have celiac symptoms before being diagnosed in your teen years? This might be a combination of gluten-induced neuropathology and the damage done by the esophagial dialation...
×
×
  • Create New...