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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Is forvia a brand name? Make sure all supplements you take are gluten free. Wheat starch can be used as a filler in pills. Long-term undiagnosed/untreated celiac disease inevitably results in vitamin and mineral deficiencies because of the damage it does to the villous lining of the small bowel, the place where essentially all of the nutrition in our...
  2. trents
    https://www.celiac.com/search/?q=gluten-free medications&quick=1&updated_after=any&sortby=relevancy&search_in=titles Use the Search too built into the forum. It is in the upper right corner of every page where the magnifying glass appears.
  3. trents
    Welcome to the forum, Cheryl. Search this forum and the internet for information. There are lists of gluten free medications out there. The problem can be that generics can be manufactured in various places where the inert ingredients used will vary. Best thing is to contact the dispensing pharmacy and get the name of the manufacture and contact info...
  4. trents
    You may have a dairy intolerance as well as a gluten intolerance problem. Intolerance of dairy is common among celiacs.
  5. trents
    Welcome to the forum, Nita hearn! You are not alone. I am 72 and some of our other moderators on this forum are well past retirement age I am sure. And there are many other seniors and elders who have joined this forum. Being diagnosed at an advanced age with celiac disease is a lot more common than you think. The sad part is that, although celiac disease...
  6. trents
    Having participated in this forum for years, I can tell you that Brits typically are frustrated with the inflexibility and sluggishness of their healthcare system. Some aspects of our USA healthcare is essentially socialized and we are headed more and more in that direction. But now it is "socialized medicine light". There are pros and cons for each...
  7. trents
    Q: "Is one week even remotely long enough??" A: No way! Q: "Is it true that when you go off gluten, you become more and more sensitive to it? A: Typically, yes. Reactions are typically more vigorous. But there will still be great individual variation in reaction to gluten exposure post gluten free diet. I develop intractably vomiting for several...
  8. trents
    But you are missing all the things the UK health system falls short in compared to the USA. For one thing, the UK health system is less flexible than what we have in the USA. Physicians in the UK must follow strictly prescribed protocols in the diagnosing and testing. For another, the wait times for referrals to specialists in the UK is typically considerably...
  9. trents
    Does she have the option of moving off campus after the freshman year?
  10. trents
    I'm not sure if you could pull this off and it would require a lot of diligence but I was wondering if you could make arrangements with the dietary office at the U to send you weekly menus so that you could anticipate what your daughter would need to avoid and what might be safe that is being served . . . and what you would need to ask questions about. What...
  11. trents
    Keep in mind that when they check vitamin and mineral levels in the blood that's not the same as what is getting to the cells that make up the muscles and organs of the body. Monitoring symptoms can be more helpful in addressing nutritional deficiencies than blood work. The body will rob things from storage in order to keep serum levels adequate for metabolic...
  12. trents
    Welcome to the forum, may75! Years ago I had cellulitis on my leg but I can't remember if it was before or after my celiac diagnosis and going gluten free. I haven't been troubled with it since. Does your cellulitis reappear in the same spot every time? If so, I would wonder if it ever gets completely eradicated when you go on an antibiotic regimen...
  13. trents
    @Guest Interesting, While you criticize Jefferson Adams' article here for citing outdated research with small sample sizes, you yourself fail to give any links to support your contrary claims. And I disagree with your contention that Jefferson uses "scare tactics". I also disagree with your claim that he is using outdated research in this article. The...
  14. trents
    Ditto to what Cristiana asked about the blood antibody testing. Normally, that is done before an endoscopy/biopsy as the first step of celiac diagnosis. If the antibody tests throws some positives, then they move on to the endoscopy/biopsy of the small bowel villous lining. Has antibody testing been done? You also have the option of skipping the endoscopy...
  15. trents
    It is absolutely possible to develop celiac disease later in life. celiac disease requires the genes but it also requires a triggering stress event, such as a viral infection, to turn the genes on.
  16. trents
    Welcome to the forum, KateB! You are already on the right track with your level of awareness of the myriad of ways gluten exposure can happen. I will include a link to a primer for beginning the gluten free journey. But don't obsess over this. Start with things that will go in her mouth before you worry about cosmetics, soaps and other external contact possibilities...
  17. trents
    Nothing in those labs to indicate celiac disease but like you say, your weren't eating much gluten at the time due to a general low carb diet. The sed rate (ESR) is high. That is a nonspecific inflammation marker that could be caused by any number of things like RA or Lupis.
  18. trents
    Welcome to the forum, Shireen32! You are what we call a "silent celiac". That is, one who does not manifest obvious GI distress. I was one of those before my diagnosis. Eating gluten immediately before an antibody test blood draw would have no meaningful impact on test scores. Are you being referred to a GI doc for an endoscopy/biopsy of the...
  19. trents
    So, you have a weak positive in one of the antibody tests for celiac disease, that being the tTG-IGG. That one is not as specific for celiac disease as the tTG-IGA or the EMA and a weak positive there could indicate NCGS (Non Celiac Gluten Sensitivity, which some experts believer can be a precursor to celiac disease) or another autoimmune condition. It is...
  20. trents
    Welcome to the forum, Vero1014! There are a number of antibody tests that can be run when looking for celiac disease. Some of them are very specific for celiac disease and others not so much. Celiac disease produces inflammation in the villous lining of the small bowel and this generates antibodies. The most common antibody test that physicians order...
  21. trents
    My apologies! I misread your first post to say there was no damage to the small bowel villi! Normally, the first stage of diagnosis for celiac disease is to check for certain antibodies that are produced by inflammation in the small bowel. If the antibody testing throws some positives then they move on to the second stage, the endoscopy with biopsy,...
  22. trents
    Welcome to the forum, PDawg! On what basis was a celiac diagnosis arrived at? Was a celiac blood antibody panel done? How did the medical experts arrive at a celiac diagnosis vs. NCGS (Non Celiac Gluten Sensitivity)? Celiac disease and NCGS share many of the same symptoms. The difference between the two is that NCGS does not cause damage to the small...
  23. trents
    Since this problem has manifested itself, have you tried other brands of ground coffee to confirm it is gluten causing the problem and not some other property of coffee that you have developed an intolerance to such as histamine intolerance? Coffee can be problematic for some for several reasons.
  24. trents
    IanL, what made you post on this website? Just curious as you say you do not have celiac disease.
  25. trents
    The Mayo Clinic recommends the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the day of blood draw or for two weeks leading up to the day of biopsy. I understand this may conflict with your diabetes control.
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