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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. "KAN-101 is an investigational drug that aims to re-educate the immune cells that drive celiac disease, so they do not respond to gluten antigens, while leaving the healthy components of the immune system intact." (From: https://celiac.org/about-the-foundation/featured-news/2022/01/anokion-announces-kan-101-phase-1-success-phase-2-plans/) Doesn't sound...
  2. I corrected something I said as I typed something other than what I meant to say. Please see the underlined portions in my first post.
  3. https://ods.od.nih.gov/factsheets/Niacin-HealthProfessional/#:~:text=High doses of nicotinic acid,12%2C28%2C36]. "High doses of nicotinic acid taken over months or years can also be hepatotoxic; effects can include increased levels of liver enzymes; hepatic dysfunction resulting in fatigue, nausea, and anorexia; hepatitis; and acute liver failure [...
  4. The chances are high that you have celiac disease. The centerpiece of the antibody testing you had done is the tTG-IGA and it is positive. It would have been more helpful if you had included the reference ranges for each test as different labs use different reference ranges for positive vs. negative. or high vs. normal in this case. You also have a positive...
  5. The EMA is the least sensitive antibody test for celiac disease but the most specific. So, there's about 0 chance you don't have celiac disease.
  6. Welcome to the forum, Kelli! For us to be able to say much about your celiac serum antibody test numbers we would also need to see the reference ranges for negative vs. positive. Different labs use different reference ranges. There is not an industry standard. Can you post that info? But my guess is yours represent strong positives. Yes, when the numbers...
  7. It might be possible to reintroduce gluten gradually without causing severe illness but that would not avoid harm to the villi of your small bowel. Some celiacs are "silent" when it comes to symptoms but the damage done to the small bowel lining is universal. It's what defines celiac disease. Celiac disease does not "go away". It's not an allergy that you...
  8. Your question to Cristiana about whether or not her friend started slow and built up to it suggests to me you are considering more than just an occasional impulse indulgence. Starting slow implies systematic cheating.
  9. Two biscuits, if I recall correctly. I'm fine for about two hours after getting glutened but as soon as the stomach starts to empty into the small bowel, the agony begins. I believe I have also experienced a similar reaction when getting glutened from cross contamination on occasion. Happened once after ingesting a shake with some chia seeds in it that came...
  10. Most of us who have been gluten free for long periods of time find that when we get a significant amount of gluten (talking more than cross contamination, here) we react much more strongly than before gluten free when we were eating gluten regularly. We lose whatever tolerance to it we once had. Speaking personally, when I mistakenly eat something with a...
  11. Welcome to the forum, Sebastian! Essentially all of your symptoms are commonly found in the celiac community. The infection is probably not related to celiac disease, at least not directly. Many or most of the symptoms you describe are likely related to nutritional deficiencies which goes hand in hand with celiac disease. celiac disease is...
  12. Recent research has identified eating out as the #1 undermining factor sabotaging the intentions of those believing they are eating gluten free.
  13. Operating on the assumption that anything that causes inflammation of the villi would produce tTG-IGA antibodies, e.g., Crohns, I linked that article for OP in my above post.
  14. This is something that has always confused me. Can villi be damaged by other factors besides gluten and not give off tTG-iga antibodies. Is it only the inflammation caused by gluten ingestion or can any inflammatory process that damages the villi produce tTG-IGA antibodies? And if it's only gluten, then why is tTG-iga positive not considered a lock for celiac...
  15. Kate, a pharmacist will seldom be able to give you information about gluten in meds. What the pharmacist can do is to provide you with contact information for the manufacturer. The manufacturer is the one you need to query.
  16. I would also suggest you talk to your doctor about getting on short-term immuno-suppressant therapy with prednisone or something similar. Sometimes that will quiet down an over reactive immune system and put you on the path to healing.
  17. Do you still consume dairy and oats (even gluten free oats)?
  18. I would urge you to look at the nutritional value of that cereal. Apart from the enrichment additives, there is almost "0" nutrition.
  19. I agree with JillG. And I would also make sure he gets put on a good gluten-free multivitamin, a gluten-free B-complex, and D3. Is your son physically active?
  20. Their website says it is produced on equipment that also handles tree nuts and peanuts. Nothing about equipment that handles gluten containing grains. Perhaps you are reacting to some other ingredient.
  21. I would add a high potency B-complex to that, gluten free of course. The B-vitamins are water soluble so no danger of overdosing toxicity. Might not help but can't hurt.
  22. Give it about three months next time before you reach a conclusion. Have you been checked for heavy metal toxicity?
  23. From her first post: Only the weird thing is that my legs, arms and body do get a visible tan after exposure to the sun. Only my face has always been extremely pale, since I eat gluten-free, I have gotten a lot more color (less gray and pale) on my face. But I had also hoped that my face would tan in the summer, because that pale does not seem healthy to...
  24. Ask your GP or gyno doc for a referral to an endocrinologist.
  25. But the issue OP is asking about is not pale skin per se but the uneven distribution of it on her exposed areas.
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