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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Welcome to the forum, Hnm44! There is not a quick answer to your question as the issue really isn't the concentration of gluten in the food you eat but the total amount of gluten consumed per day. The 20ppm limit of the USA FDA and the 10ppm limit of some of the "certified gluten free" certifying bodies obscures the fact that it is actually the total...
  2. trents
    Lauren, in the celiac population there is a tendency to develop intolerance to some other foods that do not contain gluten. Chief among them are dairy products but also oats and egg intolerance are not uncommon. It may be because of the damage to the small bowel villi or because the proteins found in these other foods mimic the effect of gluten in some people...
  3. trents
    Cheryl, I agree with Wheatwacked about the nutritional deficiencies. This goes hand in had with celiac disease. The inflammation it produces in the small bowel lining damages the villi and can greatly reduce the efficiency of nutrient absorption. Which celiac disease blood test or tests were run? There are several that can be run.
  4. trents
    Have you considered you may be intolerant to other, non-gluten containing foods such as dairy, oats or eggs? Recently, there was research shared in this forum about how certain spices contain proteins that mimic the effect of gluten in some celiacs.
  5. trents
    Someday, you son will be very grateful that his mom (parents?) got on top of this at an early stage of his life. Most of us suffered with it for many years before ever getting diagnosed and by the time we were diagnosed there was damage to body systems that could not be reversed, mainly due to the nutritional deficiencies from malabsorption that celiac disease...
  6. trents
    By the way, what are your son's symptoms? What led to this investigation of celiac disease?
  7. trents
    Welcome to the forum, Astrobug. We all do, but in different ways. The hardest part of celiac disease for many of us is the limitations it puts on our social lives. For some, it's downright isolating. But let me ask you, do you still eat out at restaurants?
  8. trents
    Let me correct something I said here: "The tTG-IGA is considered to be the centerpiece of celiac antibody testing. That one is negative. But with children, whose immune systems are not fully developed, it will may be negative even when they have celiac disease." If your pediatric GI doc wants to do an endoscopy with biopsy, ask about how many samples...
  9. trents
    Welcome to the forum, Lauren0204! The tTG-IGA is considered to be the centerpiece of celiac antibody testing. That one is negative. But with children, whose immune systems are not fully developed, it will be negative even when they have celiac disease. That is the value of running additional antibody tests as was done for your son. His positive Gliadin...
  10. trents
    No, the distraction would be good.
  11. trents
    kk, are there fat soluble versions of other B vitamins besides Thiamine?
  12. trents
    Why is it called "The United Kingdom of Great Britain and Northern Ireland" and not "The United Kingdom of Great Britain, Northern Ireland, Scotland and Wales"? Do the Scots and the Welsh feel left out?
  13. trents
    Does the UK not include Scotland and Wales? Are they sovereign countries?
  14. trents
    So, Christiana, I note that you identify as "British" and not "English". Have the terms "England" and "English" fallen out of favor? And is Great Britain the equivalent of the United Kingdom?
  15. trents
    Blimey! WA stands for Washington state in the Pacific northwest of the USA.
  16. trents
    Is Oz really used for Australia? Must be an unofficial abbreviation. The only Oz I'm familiar with are where Dorothy and the Tin man live.
  17. trents
    Oz?
  18. trents
    Slim to none, Eileen. And his tTG-IGA, which is the center piece of celiac antibody testing, is significantly greater than 10x normal. I'm guessing by the way you spelled "ceoliac" that you are in the UK. If so, it is common for physicians there to give an official diagnosis of celiac disease without an endoscopy/biopsy when the serum antibody test scores...
  19. trents
    Welcome to the forum, Elizabeth! There was an article on the forum recently outlining research about certain spices having proteins similar to gluten that cause reactions in some people with celiac disease. You might search for it using the forum search tool and also google it. I cannot remember the specifics. But aside from gluten and spices, there can be...
  20. trents
    Thanks for the update and it is good to hear of your progress. People with celiac disease often develop intolerance to other foods that do not contain gluten. I believe that anything we eat which is causing inflammation anywhere along the length of the intestinal track can contribute to bowel movement irregularity because it may interrupt peristalsis...
  21. trents
    For follow up and to assess healing and compliance with gluten-free diet you can also have her tested for antibodies in six months or a year. If her IGG is lower or within normal range then you are accomplishing what you need to. The inflammation of the small bowel lining when gluten is ingested is what damages the villi. The inflammation produces antibodies...
  22. trents
    You also have the option, jlmarti, of assuming she does have celiac disease and putting your daughter on a trial gluten free diet. If her symptoms improve you likely have confirmation.
  23. trents
    jlmarti, sorry I'm not yet seeing a post in this thread by knitty kitty. Do you see one? Your response would indicate that you do. I'm asking because this might indicate some problem with our forum software.
  24. trents
    Welcome to the forum, jlmarti! The IGA Quant is also known as total IGA. When total IGA is low it can skew other IGA parameters downward so as to produce false negatives. Your daughter's total IGA is within normal range. The elevated IgG can indicate celiac disease. The GI doc may wish to do an endoscopy with biopsy to check for damage to the villi...
  25. trents
    Have you had a CBC (complete blood count) and a CMP (complete metabolic panel) done lately? I'm just wondering about things like iron deficiency anemia. Any labs out of whack?
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