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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Rooks, I would quickly remove your email address from your post. Spammers can harvest it and you likely would be getting tons of spam in your inbox. If people reading your post wish to contact you they can do it with no risk to you simply by using the forum's internal personal messaging system.
  2. trents
    It does get easier. First thing is that through time, education and experience you develop this sixth sense as to where gluten is likely to show up in food items and of the things you need to stay away from so that you don't have to think so hard about it and wonder. You just know and say, "no." You come to realize that the risk is just not worth trying it...
  3. trents
    The villi are microscopic finger-like projections that protrude from the mucosal lining of the small bowel. They are responsible for creating a lot of surface area for the absorbing of nutrients. This is where nutrient absorption happens or doesn't happen. Constant inflammation causes damage to the villi which reduces the efficiency of nutrient absorption...
  4. trents
    Guest Ginny. We don't always know cause and effect but I think the point of the article was to establish a statistical connection. Perhaps in time we will have answer to your questions.
  5. trents
    Are you still eating oats and dairy? About 10% of celiacs react to oat protein the same way they do gluten from barley, rye and wheat. And realize, I'm talking about certified gluten free oats. Dairy, for some celiacs, has been shown to cause villi blunting in the small bowel similar to what gluten does. We often advise people new to the experience of celiac...
  6. trents
    I would contact the manufacturer and find out if this iron product is still gluten free. If they can't assure you it is I would switch to another product that is gluten free.
  7. trents
    Is this a buffered (enteric) iron supplement? Iron supplements can be hard on the gut.
  8. trents
    Thanks for the additional information, MindNumbMama. It gives us a better picture of the precautions you are taking. You seem to be doing what you can do on your end. One thing though. gluten-free bread products are not as nutritious as fortified wheat bread since there are no regulations mandating that niacin and riboflavin be added to the four as is the...
  9. trents
    Short answer: Yes. Did the doctor who did the endoscopy take a biopsy of the small bowel lining and get it tested? I'm just wondering what caused him to tell you don't have celiac disease. The biopsies of the small bowel then need to be sent off to a lab and looked at under a microscope for damaged villi, the proof of celiac disease.
  10. trents
    You're daughter is still eating take out food! Wow! I'd take a serious look at that. There's no way you are going to avoid gluten cross contamination in that scenario unless the eatery is a dedicated gluten free business. Several recent studies have demonstrated that most people who claim to be eating gluten free are actually just getting lower amounts than...
  11. trents
    Low IGA levels can give negative results for the tTG test. The IGA related tests are the ones used to diagnose celiac disease. The tTG-IGA test is the test is the most specific test for celiac disease but it is the least sensitive. The others in the "full" celiac IGA panel are more sensitive but less specific. This might help: https://celiac.org/about...
  12. trents
    Bridget, about 10% of celiacs react to oat protein the same way they do gluten in wheat, barley and rye. And many celiacs find that the protein casein in dairy products causes inflammation of the gut much like gluten does. We often advise people who are just beginning the journey of eating gluten free to eliminate those two foods along with wheat, barley...
  13. trents
    Bridget, The lab values you posted are not helpful because they don't contain reference values. We would need to know what is the threshold value for being positive for each of those tests. Different labs use different reference values. If you don't have celiac disease you may still be gluten sensitive. The symptoms are largely the same. The difference...
  14. trents
    Home test kit using blood sample: https://www.imaware.health/at-home-blood-test/celiac-disease-screening
  15. trents
    Leslee12, please realize that if you are eating gluten free now any testing you would have for celiac disease would be invalid. You would need to go back on eating gluten daily for 6-8 weeks.
  16. trents
    Got it! Why did you eat the chicken sandwich? If you think you have celiac disease or even gluten sensitivity you really need to eliminate all gluten, even trace amounts that might come from cross contamination.
  17. trents
    Don't mean to pry but why are you choosing not to get tested for celiac disease?
  18. trents
    Just be aware that 10% of Celiacs react to oat protein the same way they do the gluten in wheat, barely and rye.
  19. trents
    On the cereal brands not specifically labeled "Gluten Free," check the ingredient list for things like "malt flavoring" which would be made from gluten containing grains. And even at that, because these particular cereals are made from grains that may become mixed with gluten containing grains inadvertently in the growing, transporting, storage and processing...
  20. trents
    B-complex. The various B vitamins work in concert. But keep taking the B12 as well. Taking high doses of B vitamins is safe since they are water soluble and any excess is just peed out.
  21. trents
    You really need to consider taking a gluten free high potency multivitamin and gluten free B-complex. Vitamin and mineral deficiency goes hand in hand with celiac disease since the damage to the small bowel lining creates nutrient absorption problems. That might be part of why you feel crummy when going off gluten. You are not getting the B vitamins that...
  22. trents
    Silent celiac disease refers to those who have celiac disease but who are asymptomatic or have minimal symptoms. Fatigue and brain fog are common symptoms of celiac disease but also of gluten sensitivity. Many celiacs are largely asymptomatic, at least for a period of time after onset of the disease. But eventually there is enough damage to body systems or...
  23. trents
    To put the question another way, do we really know all the genes involved across the spectrum of a population that predispose one to develop celiac disease?
  24. trents
    Glen, if you have celiac disease, there is a 44% chance your first degree relatives will have it as well, even if they seem asymptomatic at this point in time. If people wait until they have dramatic symptoms, irreversible damage can be done to certain body systems.
  25. trents
    GlenY, to be able to say very much about your test results we would need to know what standard the lab used for baseline. Different labs use different standards so it's like comparing apples with oranges. Do you have access to the numbers that would constitute normal range for each of those test results? Celiac disease and gluten sensitivity both often...
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