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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, @AlexisC25! Thanks for sharing! I have been participating on this forum for many years and echinacea as a help for gluten flareups is not one I have run across before. But who knows, it might turn out to be helpful to many. We are always open to new ideas and echinacea is a trusted naturopathic remedy that has been around for a...
  2. trents
    Welcome to the forum, @concernedmomx4! This sentence from the printout results you posted may be key here: "Low IgA antibody levels suspected." This is a reference to what we call "total IGA". Total IGA is not an test for celiac disease per se but a measure of the entire immune system IGA load. If total IGA is low, it will suppress individual IGA scores...
  3. trents
    There are different chemical formulations of vitamins and some are more bioavailable than others. The common supplements you see on store shelves tend to be less bioavailable because they are compounded to increase shelf life. The more bioavailable forms will be more expensive, however. It pays to do some research on this. https://perniciousanemia...
  4. trents
    https://nationalceliac.org/blog/what-is-a-gluten-challenge/ I promise you, an official diagnosis will not have much effect in convincing skeptical relatives that you have a "real disease" that requires you to avoid wheat/gluten. I think you already have the evidence you need by your dramatic improvement when you have eliminated gluten from...
  5. trents
    Welcome to the forum, @Bennyboy1998! Were you already eating gluten free when the endoscopy/biopsy was performed? Have you had any celiac antibody testing done? There is also the possibility that you have NCGS (Non Celiac Gluten Sensitivity) which is 10x more common than celiac disease and shares many of the same symptoms. There is no test for it...
  6. trents
    Jitka, why are you seeing an allergy specialist about a celiac diagnosis. Celiac disease is not an allergy. It is an autoimmune disorder. Completely different immune system pathways.
  7. trents
    No, the genetic testing is not affected by going off gluten because you're talking about something you are born with. We were referring to antibody testing to biopsies when we said all testing is affected by going gluten free.
  8. trents
    Welcome to the forum, @Hawk4! You should not begin the gluten free diet until the endoscopy/biopsy is performed (should you decide to go forward with it) since going gluten free now will allow healing of the villous lining of the small bowel to begin, and the damage to that surface is what the biopsy is designed to detect. Being dairy intolerant...
  9. trents
    Welcome to the forum, @Laura Q! It is not abnormal to see a little blood when wiping for various reasons. Rupture of a small blood vessel, hemorrhoids, physical trauma of stool passing through the colon/rectum, constipation-straining at stool, etc. This happens with me now and then. This would not have anything to do with commencing a gluten free diet...
  10. trents
    Yes, that's it. If your score was 10x normal you would likely be declared as a celiac without further diagnostics. Since it is not, you will likely be recommended for an endoscopy with biopsy to check for damage to the small bowel villous lining that is characteristic of celiac disease.
  11. trents
    Welcome to the forum, @Smiles7127! The primary celiac antibody test used for diagnosing celiac disease is the tTG-IGA (Tissue Transgltaminase IGA). Yours' is negative. The Gliadin AB Iga is a secondary test used and not as reliable an indicator of celiac disease as is the tTG-IGA. By that I mean it is less definitive for celiac disease than is the tTG...
  12. trents
    Welcome to the forum, @Di Wallace! No apologies necessary for being a newbie. We all start at zero with this at one point in time. From the way you spelled "Coeliacs" I assume you are in the U.K. Unfortunately, U.K. doctors seem not to be very forthcoming with their patients when it comes to sharing details about their lab work and your system apparently...
  13. trents
    I would try a magnesium supplement as low magnesium can contribute to constipation. And dairy is one of the main sources of magnesium in our diets, something you have recently eliminate from her diet. Magnesium Citrate or Magnesium glycinate are much better absorbed than the more common magnesium oxide supplement.
  14. trents
    Thanks for reporting back. When you aren't sure whether things are gluten free or not, assume they aren't gluten free. It's not worth the risk. What is the high end of normal for total IGA (Immunoglobulin A IGA)? On this forum, we are used to only being concerned about it being lower than normal as that would have an effect on the accuracy of IGA-based...
  15. trents
    The onset of celiac disease can happen at any stage of life. Before onset you will possess the genetic potential but all other tests will be negative.
  16. trents
    Your mother is what we call a "silent" celiac. Undiagnosed silent celiacs, and those who are diagnosed but who chose to ignore the need to eat gluten free, can go for years without symptoms until the damage to the villous lining of the gut gets so bad that their health begins to suddenly crash. But, has your mother and for that matter, have you actually been...
  17. trents
    So, to repeat RMJ's question, is the blood showing up in your stool? Man, this is no slow leak! Either that or it seems like you have some autoimmune thing going on that is eating up your red blood cells.
  18. trents
    Welcome to the forum, @Toparsenalfan! Are you attempting to go gluten free now? You never actually state that but you seem to imply that in your second post when you ask, "how did you get through it while getting off gluten?" Gluten has addictive properties and stimulates the opiod receptors. That is a well-known factoid in the celaic community...
  19. trents
    So, all the health experts tell us we eat way too much refined sugar and it causes obesity, diabetes and cardiac disease. All true. So, the food industry, in response to that, removed the refined sugar and replaced it with "0" calorie artificial sweeteners, some of which have cancer risk attached to them. So, the food industry responds to that issue and replaces...
  20. trents
    Not sure what the FDA requirement is but I often see them listed in ingredient labels. Most sugar alcohols are not broken down well before they reach the colon and therefore can cause a lot of flatus. Erythritol is different in that respect. It is broken down and 90% absorbed before it gets to the colon. The only knock on it that I am aware of is that...
  21. trents
    Erythritol avoids many of the problems associated with other sugar alcohols and is safe unless used in large quantities.
  22. trents
    Certainly, there should be some gluten-free beers you should be able to drink safely. There are some made from wheat/barley "gluten removed" beers that meet the less than 20 ppm labeling set by the FDA for being able to use the term "gluten free" and then there are some beers made from non-gluten grains like sorghum that are safe for even the most sensitive...
  23. trents
    Welcome to the forum, @Dave Neff! More info would be appreciated. How long ago were you diagnosed with celiac disease? Have you been diligent with the gluten free diet? Have you had follow-up testing to check for celiac antibodies or a follow-up biopsy to check for the condition of your small bowel villi and healing progress? Are...
  24. trents
    Welcome to the forum, @CdnAmy! The raw score for your Immunoglobulin IGA is not very helpful without the reference range used by the lab doing the analysis. There is no industry standard for these ranges. So, please include the range for negative vs. positive. Was this the only antibody test run for celiac disease? Consuming gluten for only two...
  25. trents
    Coffee is very acidic and many people find it gives them tummy burn and/or acid reflux. Recently, I have been using a low acid coffee by Folgers and it has made a huge difference. It does taste somewhat different but if you keep drinking it every day it becomes the new norm. https://www.amazon.com/dp/B01MY5UV95?ref=nb_sb_ss_w_as-reorder_k0_1_7&amp=&...
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