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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    The EMA is very specific for celiac disease. Are you cross reacting to some other food like gluten free oats or dairy or meat glue? To which tTG lab do you refer to? There is a tTG-IGA and there is a tTG-IGG. Have you checked for gluten in any vitamins and supplements you may be taking, medications and oral hygiene products?
  2. trents
    Food allergy testing is notorious for throwing false positives and false negatives such that it often doesn't match up very well with what you actually experience in your actual eating patterns.
  3. trents
    What was confusing, however, was that "a note from the lab to say IgA TTg results to follow came after the result for the anti-tissue transglutaminase had already been given. Rachy265, I expect the physician will want to make a referral to a GI doc for an endoscopy with biopsy of the small bowel lining to confirm the positive anti-tissue transglutaminase...
  4. trents
    So So, Rachy265's doctor was using "anti-tissue transglutaminase" as the unabbreviated form of tTG-IGA. Correct?
  5. trents
    Malt is a sugar that can be derived from sprouted grain and many different kinds of grain can be used.
  6. trents
    But kk, what is the "anti-tissue transglutaminaise" test? The "anti" part is what's confusing me.
  7. trents
    One thing I will add and that is iron supplements are better assimilated when you take them with acidic food like orange juice or tomato juice. Taking a vitamin C tablet along with the iron supplement would accomplish the same thing. Some commercial forms of iron supplements are actually combined with vitamin C in the tablet.
  8. trents
    It doesn't sound like the iron product she is on is buffered (also known as "slow iron") but you might aske the physician about this. I'll try and get back to you about the anti-transglutiminase vs. tTG-IGA. We have some moderators on this forum that work in medical science fields who would probably know the answer.
  9. trents
    Welcome to the forum, Rachy265! Not sure how the anti-transglutiminase differs from the tTG-IGA. I have run across the anti-transglutenminase lab recently on this forum and I assumed it to be an alternate way of expressing tTG-IGA. Now I'm not sure. By the way, when you post test numbers make sure you post the reference ranges for negative vs. positive...
  10. trents
    Xanthan gum does not contain gluten. It's a polysaccharide. "Xanthan gum is a popular food additive that’s commonly added to foods as a thickener or stabilizer. It’s created when sugar is fermented by a type of bacteria called Xanthomonas campestris. When sugar is fermented, it creates a broth or goo-like substance, which is made solid by adding an ...
  11. trents
    Whenever I eat blueberries I have black stools.
  12. trents
    Schar has been in the gluten free food business since the inception of the gluten free food industry and is a trusted producer of gluten free products. I suspect you are reacting to something else besides gluten used in this product. Xanthan gum is a common offender found in many gluten free products.
  13. trents
    Being certified organic has nothing to do with containing monosaccharides, oligosaccharides or polyols. These things are natural compounds found in grains, vegetables and fruits. The first two are sugars and polyols are sugar alcohols. Sugar alcohols are classified as "prebiotics" and considered to be healthy for the gut, though all of them except erythritol...
  14. trents
    Welcome to the forum, Eldene! IBS and other bowel diseases are more common in the celiac population than in the population at large. It is also true that many of us celiacs were misdiagnosed with some other bowel disease when it as actually celiac disease all along. Many primary care physicians are sorely lacking in knowledge about gluten disorders. ...
  15. trents
    Welcome to the celiac club! Big transition, yes! But it will become the new norm.
  16. trents
    No, it doesn't. When all of us first got diagnosed we thought it would be pretty straightforward and simple. We thought, "Okay. Giving up wheat products is going to be tough but I can do that and then I'll get on with life." It seemed rather simple. But we begin to find out that celiac disease has long fingers and many first cousins.
  17. trents
    Good reminder from icelandergirl about gluten free eating and constipation. Try a psyllium fiber supplement.
  18. trents
    Google "meat glue and celiac disease". Here is a link from our own forum articles section:
  19. trents
    Yes, you could be cross-reacting to another food whose proteins are similar to gluten such as dairy or oats or "meat glue".
  20. trents
    Welcome to the forum, phosphene! DGP IGG is quite high! It is not borderline. It certainly can indicate celiac disease but the test is not as specific as the tTG-IGA for celiac disease. One thing that can throw false negatives for the tTG-IGA is low total serum IGA but that test was not ordered. It should have been. Another thing that can drive...
  21. trents
    Welcome to the forum, Tanja! I'm so sorry to learn you are going through this. I have heard it said many times that 80% of the things we worry about never come to pass. My only advice is to just take one day and one thing at a time. A very wise man once said, "“So don’t worry about tomorrow, for tomorrow will bring its own worries. Today’s tro...
  22. trents
    The Mayo Clinic gluten challenge guidelines for those having already embarked on the gluten free journey but want to get tested is two slices of wheat bread (or the gluten equivalent) daily for 6-8 weeks leading up to the day of testing. But recently there is some doubt that even that protocol may not present enough exposure to give reliable test results...
  23. trents
    Welcome to he forum, Ailen! Yes, it is certainly possible to develop an intolerance to rice but that can also be said for any food. What makes you think it is rice you are reacting to? You say you were diagnosed with gluten sensitivity. Were you also formally tested for celiac disease and was that ruled out?
  24. trents
    Welcome to the fourm, joelkeys0519! When did you start the gluten free diet in relation to the antibody testing you have already had? You should hold off on the gluten free effort until all testing, including the endoscopy/biopsy is complete. Otherwise, you will compromise the results and push them in the negative direction.
  25. trents
    Missing one day of gluten would not materially affect the test results. The tests aren't measuring serum gluten levels but antibodies produced by inflammation to the small bowel villous lining produced by gluten consumption over weeks/months for those with celiac disease.
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