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Nic

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Everything posted by Nic

  1. Nic
    My son is the same way with the soy milk. I put him on rice milk instead. He drinks the plain Westsoy Rice Milk but I make it into chocolate milk for him to drink. In his cereal he just uses it plain, I also cook with it. The vanilla version is good too, it is very subtle. Don't buy the Rice Dreams rice milk because it does contain some barley (I am...
  2. Nic
    If you noticed on Alexis' website under the day 8/10, they say that people from a celiac message board were offended by what they said. They go on to state they did not mean to be offensive and then give a list of all these people who have celiac and were not offended. But what they leave out is how rude and offensive her responses have been to the people...
  3. Nic
    Hi, we never had any rash issues so I can't judge based on the description. But I would have to assume if you noticed it after introducing wheat there is a good chance there is a wheat problem. Nicole
  4. Nic
    I will also add that for those of us who have Celiac children, it is certainly more than a "pain in the butt". To watch your child suffer terribly, for some of us for years, for others maybe not so long, but to watch them suffer even for a day is horrible. And now that they are gluten free and healthy (thank God) we have to watch them struggle with their...
  5. Nic
    What kind of problems does your daughter have? My son has always been a big sweater and more recently has been feeling sick to his stomach (like he is going to vomit) and week in the legs (says his legs are shaky) when it is too hot. I just figured he was one of those people that cannot handle the heat. Nicole
  6. Nic
    Congratulations on the weight gain and growth!! During the first year and a half my son was gluten free he gained 15 pounds and grew 6 and a half inches. It is so exciting to see them thrive. Nicole
  7. Nic
    As an infant his hypotonia was so bad that he could not bare any weight on his legs at all. That is what first clued us in. He also couldn't suck well and had very little appetite. At 5 months he was drinking between 3-5 ounces per bottle with no interest in cereals or other baby food even though he was drinking 4 ounces when we left the hospital (he...
  8. Nic
    Hi, you are right, it is subtype 7,6. He was tested through blood about a year ago and it came back negative but we know how that can go. He currently does eat gluten but I would say he is about 50% gluten free as it is easier for me to cook gluten free for the whole family since my other son is Celiac. But he does still eat gluten for lunch everyday....
  9. Nic
    HI, my oldest son has Celiac and carries the DQ 2 gene. I had my youngest son tested just for the gene through Enterolab and he has the DQ1 and DQ3 genes. They said not Celiac but gluten sensitivity genes. I have been reading a lot about the DQ1 gene and the slight possiblity of Celiac related to the gene. But all of the articles are connected to Dr....
  10. Nic

    ARCHIVED Constipation

    Nic replied to missmommy's topic in Related Issues & Disorders

    When my sister, not a Celiac, was in the hospital after the birth of her second son she was extremely constipated. The nurse said if you mix prune juice with apple juice and then warm it (yuck) it works very well. We have never tried it but at least it is a natural remedy. Good luck.
  11. Nic
    My doctor took me and all of his patients off the patch as it has a higher risk of dangerous side effects than the pill.
  12. Nic
    Hi, I guess you have a couple of options. You can make him gluten heavy for a while (I am not sure how long) and then test again. Or, you can try the gluten free diet and see if he reacts positively. Being you are a Celiac there is a good chance he is carrying the gene as well so it could be likely that he is Celiac also. At 2 he is still young enough...
  13. Nic
    I have no idea if it is Celiac related but my son, who was diagnosed 2 years ago, bruises terribly. I know that most 6 year olds have plenty of bruises but he seems to be a bit much. I'm interested to hear what other people have to say.
  14. Nic
    Hi, where did you buy the container for the sandwiches? I am in a panick about keeping things hot or cold as I am also sending lunch with my son for the first time this year. Nicole
  15. Nic
    Hi, I am not sure anything should be considered as safe without asking. My 6 year old is the one with Celiac and we learned early on you always have to check. For example, we went to the Rain Forest Cafe and asked for the mini hotdogs with no buns. Well, we found out that their hotdogs come frozen and already in the bun. Bascially the are just nuking...
  16. Nic
    Hi, I have read about other people on this board who were not DQ2 or 8 positive. I believe statistically it is like 90 some odd percent of people with Celiac carry one of those two. But it isn't 100% carry it so the change is still there. Also, maybe he isn't Celiac but instead gluten intolerant. The symptoms would be the same and so would the treatment...
  17. Nic
    Hi, my son is a little older, he is going into first grade. But he was diagnosed when he was in pre-school. When he started school the doctor had to fill out a physical form and he put on it that Jacob had Celiac Disease so it is on record but when he was diagnosed, it was in May of his pre-school year and we didn't bring a note, I just spoke to them. ...
  18. Nic
    I am hoping all goes well for your cat. How old is he? We lost our beloved Grizzly Bear (a cat) 2 years ago to kidney failure. She was 17 years old. We actually decided to put her down because she was so sick and the doctor said it could go on that way for several days or up to a week or more. She was no longer eating or drinking and couldn't walk anymore...
  19. Nic
    Hi, I am glad your family is doing so much better. It is shocking how many different symptoms are caused by food allergies/intolerances. My oldest son is a diagnosed Celiac and is also dairy intolerant. His primary symtoms were constipation (chronic and severe). Gluten free helped but dairy free really fixed him it seems. My youngest son, according the...
  20. Nic
    My son struggles more with the dairy than the gluten. He loved his milk before we realized he was intolerant. He was not formally tested for milk so we didn't really know if it was lactose or casein. But when we took him off dairy, we took him off any form, even the little bit you might find in packaged cookies. We read every ingredient the same as with...
  21. Nic
    Hi, my 6 year old son is Celiac and dairy intolerant. Oddly, the syptoms that led us to the Celiac were actually caused by the dairy. He was constipated, which I know you are not, but his poop was never hard. And when he did go, MY GOODNESS, he would fill the toilet with soft poop. We couldn't imagine how all of that poop fit inside of him. And yes,...
  22. Nic
    I had chicken pox at 17 so I remember them vividly. The bumps looked like they had a bubble on them. Very ichy, started with just a few and then it spread all over, even on my gums. From what I understand, the rash wouldn't be worsening if it were due to the shots. Let us know what it is.
  23. Nic

    ARCHIVED 504

    Nic replied to Nic's topic in Parents, Friends and Loved Ones of Celiacs

    Hi, being a teacher myself I have never had a student with a 504 although I have had plenty with medical conditions. I work in an inner city where most of the families in my school are under educated and live in the projects, they might not be aware it exists. For my own son, he started kindergarten last school year and we were very lucky because there...
  24. Nic
    In case anyone wants to know, I just received an e mail back from Kraft regarding my attempts at making their pudding dairy free (it is also gluten free). I had tried the instant pudding with rice milk and failed terribly as it was just a cold vanilla soup . They said that I can make the cooked pudding using soy milk but that it would just come out a...
  25. Nic
    This is a great idea. Even if he never gives it to her, it will give him a chance to get in touch with his own feelings and understand them better. Also, don't forget that teenagers think they are un-touchable. That is why they so freely try alcohol, drugs, and unprotected sex. They don't believe anything bad will happen to them. This is probably...
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