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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    That statement, by itself should help you stay on GFD, whether or not you are labeled Celiac. Some of the secondary effects of your disease process can take several years to reverse. Stay the course. Subclinical malnutrition is the norm, rather than the exception, and few doctors do nutrition. In the face of overwhelming evidence, traditional medicine is...
  2. Wheatwacked
    In my case, not POTS. I did have years ago, it was called Postural Orthopedic Hypotension and I probably was vitamin deficient then. Situp or standup brain blood pressure drops and you faint. I do not know why it stopped. The closest thing I can compare this to is when I was put under with nitrous oxide by the dentist. Going down down down. And it happened...
  3. Wheatwacked
    I had an episode last night. I was feeling unusually good, both physically and mentally and watching a movie. I am anorexic so don't usually have an appetite, but there I was feeling good and hungry. So I ate. I had a coke, some prosciutto, cooked salami, and provolone. Not the best choice but I have been eating this occasionally and enjoying it with no reaction...
  4. Wheatwacked
    Sorry, one final comment on Prednisone. In the early '70s my mom's best friend was diagnosed with liver cancer and was given 6 months to live. She was treated with prednisone, I don't know the dose or form, and died seven years later.
  5. Wheatwacked
    Since the prednisone works, and the Pepcid doesn't make a difference, stick with the prednisone and start GFD. One side effect of prednisone is an "unrealistic sense of well-being".(???) Pepcid has been implicated in kidney failure. I was on a course of 60 mg APO Prednisone (not prednisolone) for 10 days to treat gout. At the end of the treatment I was surprised...
  6. Wheatwacked
    It amazes me that mainstream medicine would recommend bread to treat any gut problem. Like throwing gasoline on embers to see if they are extinguished. But the rest of the WebMD article is not bad. Many doctors would blame the patient as acting out because as we all know, bread is good (best thing since sliced bread) and all those people who complain are...
  7. Wheatwacked
    I am partial to Cream of Rice. Lots of room temp liquids and Cream of Rice, flavored to taste. My grandmother gave it to me and it still soothes my stomach. Also consider Alka Selzer, if there is no risk of Reyes Syndrome. Aspirin, contrary to common belief, helps my indigestion and then there is the bicarbonate. Not Cream of Wheat which puts a hard lump...
  8. Wheatwacked
    It happened to me when I was 63. Now that I have been GFD for three years, I am seeing complaints, some from early childhood just correcting themselves. Whatever your specific diagnosis, if a Gluten Free Diet proves to help you, there is no other treatment.
  9. Wheatwacked
    When my son was born in 1976, everyone, including the medical community tried to convince my wife that his exploding belly that I referred to then as Biafra baby belly was a result of her anxiety and a course of Valium for her would cure him. It did not. Eventually we found the only doctor in the region knowledgeable in Celiac. The boy was biopsied and after...
  10. Wheatwacked
    People get all freaked out when you say you are using Prednisone because it is a steroid and we all know that steroids are bad and are used to cheat in sports, and everyone knows. Wrong. A prednisone story for perspective. My last black lab was on prednisone from nine months old until he died at nine and a half years old of degenerative myelopathy...
  11. Wheatwacked
    Dr Joel Fuhrman, Eat to Live proved to me that the concept of the SAD diet is real and worldwide. Dr Davis, Wheat Belly has the best practical advice and proved to me that the S in SAD is for sandwich and recovery is possible. His suggestions have worked remarkably well for me. I started with debilitating fibromyalgia at age 60, controlled with Prednisone...
  12. Wheatwacked
    Sahil, there is not much more frustrating then to watch our children suffer. It isn't their fault. "In many kinds of kidney disease, inflammation occurs when immune complexes deposit in kidney. Immune complex is a combination of antigen and antibody and formed when immune system is weak or immunity is poor." Prednisone treatment for nephrotic syndrome...
  13. Wheatwacked
    I am sorry if I give that impression. I have never voluntarily eaten barley, hate it. Barley is a wheat like grass and rye is a wheat grass. I clump them all together as wheat. I will try to avoid that. I also believe that it not just the gluten causing diseases, there are other problematic proteins in the wheat grasses, especially in commercial wheat...
  14. Wheatwacked
    I agree with cyclinglady that it sounds suspiciously like plain old food poisoning, then again, it is flu season. I hope you have gotten over it.
  15. Wheatwacked
    I am using the liquid. Better control. So, after two doses I am recognizing significant improvement. Specifically my perceived toe and foot temperature has improved. They do not feel as cold, numbness is improving. Early days but looking good. Brewers yeast is a form of yeast, so I do not think there is a gluten concern, just because it is also used...
  16. Wheatwacked
    Amy, Yes the wheat affects the opioid receptors so you are addicted to wheat. That is why it is in most foods. In addition to fighting the cravings, you will be mourning the loss of a very old and dear friend. I found a research study on the quality of life relative to undiscovered celiac disease. Life is better without wheat. Read the previous posts. I had...
  17. Wheatwacked
    I suddenly remembered a TV commercial from the 50's watching Arthur Godfrey or someone. Something like this: "Tired, run down? You may have Iron Poor Blood. Get Geritol and get your energy back!" At least that is what I heard in my head. So I bought a bottle, real cheap. The effect for the first week was like drinking a 5 Hour Energy. More than met my expectation...
  18. Wheatwacked
    There is no downside to a wheat free diet, Celiac or not, other than a massive loss of revenue for the food and pharmaceutical industries. Wheat based breakfast cereals are only a "nutritious part of a healthy breakfast" because of the added vitamins and minerals. The 25,000 or so strains of modern semi dwarf wheat, which is today about 85% of commercial...
  19. Wheatwacked
    Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google...
  20. Wheatwacked
    Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost...
  21. Wheatwacked
    Celiac Disease is damage to the nooks and crannies in our intestines leading to malnutrition, vitamin deficiencies with all the various symptoms that make it so hard to diagnose. Then you add years of the antacids, antibiotics, Tylenol, opioids, alcohol, etc., each with their own particular side effects and damage. Now you've got a toxic environment that...
  22. Wheatwacked
    Apoptosis is the body killing off old or defective cells. Iodine is its main tool. Insufficient iodine causes slow healing. Working Theory; As a celiac you have malabsorbtion syndrome also, so you are even more likely than the typical American to be iodine deficient. Among other things it will cause slow healing, low T3 and low T4 and high TSH and poor energy...
  23. Wheatwacked
    My suspicion is dehydration caused by too much fiber. Combined with your cold, fever and perhaps any medications, loss of appetite and the high fiber content of the chia, slowing down the passage of the post nasal drip thereby giving it more time to irritate. I had a similar experience with Graviola during a phase of anorexia, when I would take it without...
  24. Wheatwacked
    Same stuff, different brand. Ingredients Mung Bean Starch. Cellophane. I don't know why I thought glass. The Hokan Saifun is $2.09 for 3 noodle cakes 3.75 ounces. ingredients: mung bean flower and water. After it is cooked I snip it with scissors. Saifun noodles are known as: Mung Bean Threads, Cellophane Noodles, Bean Threads, Silver Noodles, Jelly...
  25. Wheatwacked
    Hokan Bean Thread Cellophane noodles. also called Saifun. Publix supermarket has it on the Ethnic food aisle bottom shelf below the Tamari, with the other aisian noodles.
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