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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Hey, it just occurred to me that if that tooth has a mercury amalgam, and he pulls it, maybe some of your other problems will improve, or even resolve once it's GONE.
  2. Fiddle-Faddle
    This is an adaptation of Robyn Ryberg's biscuits, found here on celiac.com Ingredients: 1/3 cup shortening
  3. Fiddle-Faddle
    I think we should all write to Red Lobster and give them an earful about how many customers they are losing. Or we could just keep ranting here on this thread, and when it gets long enough, I'll send the link to the corporate office. Geeze Louise, we could steam or broil our own unseasoned seafood and meat--why on earth would we want to go to a restaurant...
  4. Fiddle-Faddle
    I'm so sorry to tell you this, but spelt is a form of wheat. While it does contain less gluten than regular wheat, it is still gluten. Sorry!
  5. Fiddle-Faddle
    The stomach pain going through to the back is exactly how I described my severe acid reflux. In my case, it did have a lot to do with the gluten, but there were other issues involved as well (a hiatal hernia, acidic diet, etc). I think what everyone else is suggesting is probably more likely to be one of your issues, but just in case, I thought I'd post...
  6. Fiddle-Faddle
    I've gone through this so many times with doctors on so many issues besides for celiac, I can empathize! In fact, I feel anger on your behalf at how you've been treated. Sometimes, it seems that nobody ever listens to parents. Not doctors, not in-laws, not friends, not teachers. I've been given seriously wrong information so many times, I've lost count...
  7. Fiddle-Faddle
    Prayers and positive energy sent your way--hope you feel better soon!
  8. Fiddle-Faddle
    If the test you are referring to was an endoscopy/biopsy, it is entirely possible that you DO have celiac disease, rather than gluten intolerance, as the endoscopy/biopsy can rule celiac in, but it can't rule it out. And if you have one of the genes for celiac, I would bet that you do have celiac. For many (though probably not all), gluten intolerance...
  9. Fiddle-Faddle
    I was thinking he might go for a tomato sauce if it were on the side and he got to dip each noodle in it?
  10. Fiddle-Faddle
    Last time I checked, I thought that Nestle chocolate powder was okay. You're right, thoouh--Ovaltine has malt, so it is NOT safe. (Waah--I miss my Ovaltine! ) Are you using milk for his chocolate milk? You might consider taking him off dairy altogether if he has celiac, at least, temporarily. If his villi are damaged, that's what is supposed to produce...
  11. Fiddle-Faddle
    From what I have read, the pasta machine is a waste of time for gluten-free use. But you can get rice noodles VERY cheaply at Asian stores. If there isn't one near you, you can probably order through Amazon. The best rice pasta is from Kinnikinnick (a Canadian company)--it isn't as cheap as regular pasta, but if you order in bulk, it's not bad, and you...
  12. Fiddle-Faddle
    I, too, have found that I have spent way less on food since going gluten-free (though admittedly, I've spent more time in the kitchen!). Kids are crazy about chicken nuggets, and you can make those from scratch (gluten-free, of course) very easily and much more cheaply than buying frozen. For example, you can buy chicken tenders in bulk, roll them in...
  13. Fiddle-Faddle
    Welcome aboard! Sounds like you are definitely on the right track if you see improvement already! I never used teething biscuits on my babies, and that was way before I ever heard of gluten! It's simply not healthy for them to be eating something when they are not hungry. Note--if the baby is breastfeeding and wants to suck for comfort, that's a different...
  14. Fiddle-Faddle
    The problem is, most of the research is funded by the drug companies. And when they get a result that doesn't point to profits (i.e., diet change resulting in cure), they don't publish their findings. If anything, they hush it up.
  15. Fiddle-Faddle
    I registered to be a bone marrow donor 2 years ago--I guess this explains why I haven't been called?
  16. Fiddle-Faddle
    Be advised! The biopsy for DH is quite deep, and is almost certain to leave scars--which for me, were nearly as itchy as the DH for about a year and a half. They have since faded to white, but during that first year and a half, they were quite red and very noticeable.
  17. Fiddle-Faddle
    Welcome, LIzard! You haven't failed anyone, you're a great mom for caring so much about your son! Breading is easy gluten-free. You can do gluten-free bread crumbs (easy with all the crumby breads you can buy!), but it's simpler to use either potato buds as breading or what I use, which is just plain ol' cornmeal. If you want a batter-type breading...
  18. Fiddle-Faddle
    That doesn't make sense--so many people DIE waiting for bone marrow donors who match. It's such a long shot to find even one who matches. I sure as heck wouldn't want MY child to die if the alternative would be to have a bone marrow donation from someone with celiac!!!! I mean, think about it--wouldn't any mother say, "Yes, we'll keep him gluten-free...
  19. Fiddle-Faddle
    The one logical flaw I see is that it seems that a lot of doctors are using the gene test to determine that a patient DOES NOT need an endoscopy. That would mean that there's a possibility that a lot of people who DO have damaged villi aren't even being examined. And of course, an endoscopy can be awfully hit-or-miss, even if you do have villi damage. ...
  20. Fiddle-Faddle
    Aren't more doctors considering DQ1 as being celiac-specific? Open Original Shared Link and Open Original Shared Link among others. Sorry, I'm in a rush--hope I didn't misread those!
  21. Fiddle-Faddle
    My daughter had reflux--the easy cure was to nurse her half as much (one side instead of two) twice as often (well, maybe not so easy, as that meant nursing 20 times a day instead of 10, but at least that meant I got to sit down!). That pretty much ended the reflux. I don't know about Prevacid, but I bet someone who knows will post!
  22. Fiddle-Faddle
    I am so glad you found about about celiac and about this board!! WELCOME!! I'm kind of rushed this morning, so please forgive me if I sound brusque. I am furious that your pediatrician didn't help you. Please do some research on your own into autism and Asperger's syndrome. You might not need it--but you might. My son had similar issues to your...
  23. Fiddle-Faddle
    My oldest did experience what you describe. He is almost certainly celiac (had many symptoms--we never bothered with testing, but only figured out the gluten thing with him a couple of years ago) and also had developmental abnormalities and was diagnosed as autistic at age 3. Before you get nervous, he is doing wonderfully well, and today, at age 12,...
  24. Fiddle-Faddle
    Roben Ryberg wrote a whole gluten-free cookbook that calls for only cornstarch and potato starch--no other flours or starches. You do need xanthan gum, though It's called, The Gluten-Free Kitchen. The biscuit recipe is amazing, and the breads, while noticeably different from "gluteny" breads, are quite tasty, especially right out of the oven.
  25. Fiddle-Faddle
    I wonder if there's a relationship between the CVID and being formula-fed? Ursa, I think you did breastfeed, but if you and your son both had celiac stuff going on, then maybe the gluten/casein going through the breastmilk might be a differing relationship with CVID? Now, compared to most celiacs, I seem to be the picture of health (hardly ever get sick...
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