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mommida

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mommida

  1. mommida
    I thought other posters had it right in the responses. Call it Celiac/ allergy/ or whatever seems to ring a bell for people that you aren't eating gluten for health reasons. I don't want someone to stop looking for answers to WHY gluten is making them sick. If gluten excerbates medical conditions, there could be a serious illness that can only be helped...
  2. mommida
    No eggs. No omelettes, quiche or any basic egg based meals. Cherrybrook Kitchen has a nice pancake mix (gluten, egg, and casein free). I love the cookbook, The Allergen-Free Baker's Handbook How to Bake without, Gluten, Wheat, Dairy, Eggs, Soy, Peanuts, Tree nuts, and Sesame, by Cybele Pascal. People who have NO diet restrictions have loved the cakes...
  3. mommida
    Well I have some concerns as to not finding the medical reason gluten consumption is making you feel so sick. For example... My daughter has Eosinophilic Esophagitus. It has "trigger" foods or airborn "triggers". Gluten can be the "trigger" for some affected individuals. Eosinophils can be in any part of the GI track and now they are "lumping" all the...
  4. mommida
    The genetic test is not 98% accurate. You could have fallen into the known 2% missed range. Not all Celiac genes are known at this time. & Every test done has at least a 30% error rate in human handling.
  5. mommida
    I would get them tested as soon as possible. School physicals are due soon too. Parent guilt over the frustration of the situation would be over too. You can all go gluten free together. (You'll bond like you never imagined.)
  6. mommida

    ARCHIVED Biotin?

    mommida replied to bartfull's topic in Coping with Celiac Disease

    I swear by taking Biotin! The main food source would be consuming animal liver. Not gonna happen for me that way. I have found no research saying that it can be harmful either. My hair falls out after I have been glutened too. I currently am not taking probiotics. Just food sources.
  7. mommida
    I use jam and jelly for baking. Make some jelly roll cakes. Use it a layer under frosting for cakes.
  8. mommida
    Well at least 30% of undiagnosed Celiacs have poor functioning gallbladders. It could be Celiac. There are a lot of variations for Celiac and other GI disorders. You have been tested for a few of these already. You need to keep eating gluten until the testing is done.
  9. mommida
    That is correct some genetic testing can just add to the puzzle. They don't know all of the genes associated with Celiac and there is still error rate. At least 30% possibility of human error for any test. Our genetic testing experience... My daughter positive for DQ2 and DQ8. My testing completely negative for any known Celiac genes and clearly not...
  10. mommida
    You could have the genetic testing done to see if you are positive for known Celiac genes. That is not the "gold standard" diagnoses though. It is also known that a gluten free diet is helpful in treating IBS and autoimmune disorders.
  11. mommida
    Happy Birthday Peter!
  12. mommida
    I'm in Oxford. I heard that Lucky's Health food in Lake Orion was trying to help organize a local group. Have you checked in the health food store off Dixie in the Waterfall shopping complex? If you need to chi chat send me an e-mail. Laura
  13. mommida
    I do think it is possible to have had a false negative Celiac test. It is also possible that gluten can "trigger" other disorders. (Eosinophilic disorders for an example.) Keep a food journal since many sensitive people have more than one allergen to avoid.
  14. mommida
    America is the most tolerable country in the world. I'm sick of too many constantly bashing Americans. Even if you are just visiting you have freedom of religion and free speech all the freedoms we are given, are given to you. Americans consistantly give to charity that help worldwide organizations. So don't turn one ignorant person at a picnic into...
  15. mommida
    Out back Steakhouse in Rochester, MI had gluten free bread! It does have egg in it. I'm not sure about the casein. It tasted really good.
  16. mommida
    I hope you find your answers soon! No matter if the test is negative, you can still give gluten free a try.
  17. mommida
    When my daughter was diagnosed the dietician called and cancelled the appointment told us to by Danna Korn's book and come to this site. Can you look up T.H. and private message them?
  18. mommida
    Before I was diagnosed with Hashi's I thought I was going to die after eating what tasted like pure salt shrimp. I felt like I couldn't drink enough water to get the salt taste out of my mouth. My face and neck felt like it was puffing. Not hot, like an allergic reaction. (It really did puff as that is one of the symptoms of Hashi's.) Get checked out...
  19. mommida
    Testing is going to be a bit harder because she is only 14 months. (Notorious for false negatives in patients under 24 months.) She needs to keep eating gluten until all the testing is done. If you are in lower pen. of Michigan the top 2 pediatric gastroenterologists I've heard of, Dr. Hernando Lyons at St. John's hospital and Dr. Bellknap (spelling might...
  20. mommida
    If you find a flour blend that you can have then it has to work well for that particular recipe. Like Tom Sawyer gluten free flour mix has gelatin in it and works better for us because it has to be egg free too. The gelatin helps hold the recipe together even though I am using a different substitute for the egg. (gelatin can be used as an egg substitute...
  21. mommida
    The dirt bag of veggies was a product of Mexico distributed by Meijer's. Now I'm just hoping it was dirt.
  22. mommida
    I have substituted gluten free flour mix that I have had on hand because I ran into problems finding the super fine rice flour. Tom Sawyer gluten free flour mix was great in the recipes it has a bit of gelatin in it. Happy baking! Time, patience, and practice.
  23. mommida
    We just had a bag of frozen veggies it tasted like dirt. I looked back in the baking dish and sure enough it looked like it was speckled with dirt. YUCK!
  24. mommida
    I am so sorry for your loss. My thoughts and prayers are with you and your family. ((HUGS))
  25. mommida
    A woman's immune system has to shut down so it will not harm the baby. That is wy you are warned duing pregnancy to stay out of crowds during flu season and such. That is why I gained weight like it was going out of style after being yelled at for the first 5 months. It was absolutely uncontrollable I ate more in the beginning of the pregnancy not the...
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