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mommida

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mommida

  1. mommida
    It is a really good thing gluten free products have a BAD reputation right now. Every one thinks they taste terrible and the price is so much higher.
  2. mommida
    Perhaps you might want to look into Eosinophilic Esophagitis. Those food globs that are from previous meals might have been stuck in your esophagus. Trying to lie down causes painful GERD like feeling , but definately small "burp" vomitting is a symptom.
  3. mommida
    I was totally bored tonight and decided to stop by. I went through my Daughter's Celiac diagnoses at 16 months old and her Eosinophilic Esophagitis (EOE) when she was 6 years old. She is now 15. My advice... Get to a gastro. doc. ASAP Discuss what an endoscopy will be ruling out/diagnosing. As EOE is suspect, the "trigger" may be an airborne...
  4. mommida
    Have you seen pictures of undernourished alcoholics (beer belly), starving children, end stage chronic illness? All have large protruding bellies. The body does try and hold on to all nutrients and tries to protect vital internal organs in the trunk of the body. It is a misleading visual for starvation, inflammation, constipation in a person who can be...
  5. mommida
    You were on a gluten free diet for the blood draw - so it is useless. If you are doing a good thorough job eating gluten free it should be negative. Your positive gut damage is proof of Celiac. It has been said Celiacs need about 2 years to heal the gut. I did hear of a case of medication (for a mental disease) caused Celiac like gut damage...
  6. mommida
    Could be symptoms of gallbladder issues. What tests were done to rule out gallbladder issues? I had my gallbladder taken out a few years back and felt so much better after. I tell you don't fear having a surgery that is going to make you feel so much better. (If it is your gallbladder.)
  7. mommida
    Could it be like a spouse/life partner saying, "We are pregnant."? As a concept you are a united team. Less chance of cross-contamination by meaning gluten is not allowed at this table.
  8. mommida
    I didn't mean it that way.
  9. mommida
    I'm glad you have answers for the pain and know have the information to get and stay healthy! Let's try and stay positive here. (If you knew about the current implosion of troubles that have crushed my spirit this week and left me cussing and swearing and praying you would be shocked I could even say this to you or anyone right now.) You are allowed...
  10. mommida
    Many things could have changed in 1.5 years for the tests. I think you are on the right track going gluten free as I have found numerous reports gluten free helps for auto-immune illnesses. You have been feeling better, and a gluten challenge could make you very ill. I would what for an accidental gluten exposure to see how you feel for further proof.
  11. mommida
    Go back to the doctor's, there is a chance you missed something else. Don't make any diet changes, as diet may determine other food intolerances or immune reactions. Sorry about the constipation. We have dealt with that. Or best advice~ figs. A high dose of magnesium and high fiber with iron too. (anemia can cause constipation) All those little...
  12. mommida
    I don't put full trust in the genetic testing. There may be a language barrier to how you are explaining Celiac. It is an auto immune disease~ the body's immune system attacks and destroys normal healthy tissue of the small intestine. If I remember right the starving children of Belgium during World War 2 helped find the gluten free diet treatment...
  13. mommida
    Genetic testing is not as accurate as whatever percentage you were told. My daughter tested positive for both DQ2 and DQ8. My genetic test taken through a different doctor's office was negative. As the lab tech seemed so flustered about the blood draw and the inconvenience to day. I had contacted Prometheus labs to question the results.. Like did...
  14. mommida
    You are right to be concerned with the low growth rate. There are any number of illnesses/disease that can start from these symptoms. food sensitivities, parasite infection, H. Ployri., congenital defect, hernia, Celiac, eosinophilic gastrointestinal disorders, and the short list of usual suspects. You also have to consider the gut may really be out...
  15. mommida
    You have to eat gluten during the testing. Anxiety is a symptom, most likely from vitamin B 12 deficiency. Changing your diet seems overwhelming at first. There are so many products on the market now and the general population has more knowledge. You need to have a positive attitude of "what you can eat"; don't concentrate on can't. Good...
  16. mommida
    To go for a Celiac diagnoses she has to eat gluten. If she is still having problems, like a gluten reaction when she hasn't had gluten that you are aware of- get the endoscopy. She may have another disease/ disorder that may have a connection to Celiac. H. Ployri., congenital defect, hernia, parasitic infection, and Eosinophilic Esophagitus all have...
  17. mommida
    If you think there is still some underlaying issue, go back to the doctor for further testing.
  18. mommida
    We have eaten Culver's 3 times now. It has been a good experience. There is no ketchup, mustard, or mayo put on to save you from cross-contamination. You should have received single serve packets. From what I observed, the buns are placed on a warming rack. I had one bun out of 4 that the bag was open. I examined the bun and the area where to...
  19. mommida
    Sorry to hear you are going through all of this. ((HUGS)) cyber hugs to you Continue to eat gluten through out your testing. To really find answers you will probably need to have an endoscopy with biopsy. Have a full discussion with your doctor to understand what medical issues can be ruled out or diagnosed with the biopsies. (also make sure the...
  20. mommida
    At this point, you can get a baseline of where Celiac damage is at. (It seems you feel strongly that it is Celiac) An endoscopy can rule out any other diseases/issues that you may also have. A big problem in diagnoses for gut issues, they can present the same symptoms.
  21. mommida
    If it's possible, switch doctors. You need a doctor who works with you, and that includes listening to what you say. If you ever get a possibly fatal infection that is time critical, you need a doctor to diagnose you as quickly as possible. (It happened to me. The doctor's office was laughing so many people had shown up thinking they had meningitis because...
  22. mommida
    I've heard of cases where Lyme triggered gluten sensitivity. Lyme could have "triggered" Celiac. A lot of your symptoms are connected to vitamin B 12 deficiency. Vitamin B12 is water soluble and is not linked to a toxic level danger. If you take too much you would most likely get "D". Are you going to get further testing at your doctor's office...
  23. mommida
    I think the Nairn's brand has the closest taste and texture. I'm going to suggest you find gluten free sugar cones. Put your chocolate in the cone, roast your marshmallow to perfection, stuff into the cone, give it a second or two to melt the chocolate, and then enjoy. It is a little bit less mess, but it tastes AWESOME. Or use 2 gluten free chocolate...
  24. mommida
    I have seen some claims that a Celiac's blood in a petri dish will react for up to a week once gluten was added.
  25. mommida
    Can you call the company and tell them of your experience so the product can be looked into properly? (the batch number code from the box will be needed to track down any issue) I remember when I was new to the diet a bottle of vanilla was making me sick. I cross contaminated it before I went gluten free -the product was gluten free. I was able to...
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