celiac3270

I just tried them yesterday! They were great...just like Pringles!

I found this on another group....an interview with Dr. Green....scroll to near the bottom of the page and click "listen." It's about 16 minutes long.

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Hi everyone,

You've probably seen the thread on the Celiac Conference at Columbia that Molly started (also in this section--Coping with). It will take place this Saturday and there will be many physicians speaking. Today I went to my GI doctor (Joseph Levy) who is with Columbia Presbyterian and, I learned, is going to be speaking there from I think 10:30-12:30 on "Getting real with the gluten-free diet." A sidenote of good news: my weight went from way off the charts (low) to being in the 10th percentile in one month (12 pounds)!

I said in the other post that I would try to take good notes and then share on here so that even if you can't go to the conference, you can at least feel like you did . Also, if anyone has questions that they'd like me to ask for them I could do that and post back the replies--on the oats controversy, etc.

I'll write down any questions you mention here and I'll check until Saturday morning, about 6:00 AM (Eastern time)...

-celiac3270

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These articles aren't anything...new...but I just post them in case there's anything interesting in them for someone. Also, if someone won't believe you about...the celiac disease and osteoporosis link, you can show them 15 articles on it and ask if all the newspapers are lying just kidding.

Dessa, did the alert work?

The list doesn't contain Pepcid and the representative on the phone told you they were testing it. I'd avoid.

I get Living Without, as well. Since it's for many allergies and intolerances, it's not all celiac and the amount of gluten-free stuff ranges from issue to issue. You can always order a single issue, too, to see if you like it.

You're better off with a gluten-free sunscreen, though it's not 100% necessary. The gluten molecule is too large to be absorbed through the skin. If, however, you have sunscreen on your hands and then eat something w/o first washing them, you could get contaminated. So with children, it's probably advisable.

I've read two books since diagnosis--already mentioned in the other post. Danna Korn is writing another one right now...I don't know what it targets.

Yep...the others already mentioned Jello so nothing to add there. I know that Kozy Shack also makes a rice pudding and chocolate pudding that are gluten-free. I used to eat their chocolate pudding before diagnosis, and I know that it and the rice pudding are gluten-free.

I am rather sick of hearing all these disparaging opinions expressed by non-Catholics about Catholic belief. This is a Catholic matter. We're not in here belittling the belief of other denominations, so leave us be. And when I say Catholic, I mean practicing Catholic, not 'former Catholoc' or 'used to be Catholic' or 'my grandma was a Catholic' or 'I'll pick and choose my beliefs and call myself Catholic'.

It's not up to any priest to decide he will or will not "honor" a host made from invalid matter. The priest was wrong to do this. If the child's mother knew this was wrong, and was trying to join him in an end run around our belief, then she was wrong also. The reason the church invalidated her communion is because it was wrong - the host was not transformed. She did not receive the Body of Christ in her communion.

This is unwelcome news and difficult for all Catholic celiacs, but it is what it is.

I don't know why God made me this way, but He chose to do so, so I choose to obey and work to accept in my heart my situation. He has a reason - His reason and someday I will understand.

It is hurtful to hear one's beliefs insulted and reviled. Please stop!

I am Catholic myself...and I go to church, not every week, but often enough to be able to say that I do practice Catholism. I don't take Communion.

I'm not bashing the faith at all...and I guess we can't really blame the priest who made the remark I quoted. He is simply reinforcing what those in authority are saying--and he has no power to change it anyway.

Do you take Communion? Or the low-gluten host? I realize that there is an "alternative" that has been deemed safe--the low-gluten host. But being so strict with this diet, it would be EXTREMELY difficult for me to intentionally ingest gluten--even if the amount is safe. And if we can go 3/4 of the way to a gluten-free host...I don't see why those....20 ppm (or however much is in it) have to be in it at all. And I bet we all get a slight amount of gluten ingestion every day...even if it's under 20 ppm...I'm just scared that if I intentionally ingested more gluten, it might push it over the edge to the point where it damages my intestines.

I realize that it's not the priest's fault for this...it's just that those in authority don't want to break from tradition. And that's nothing against the faith--steadfastness to tradition and ceremony might be what attracts people to Catholism in the first place. I was just saying that not accepting a gluten-free host is about holding to tradition--the way the Communion has been taken for hundreds of years.

I apologize for offending you, though.

I can't believe that anyone could actually think that Jesus cared which grain was used. But some priests do. My grandmother on my dad's side is a devout Catholic and she cut out this article for me from some religious newspaper since it had Celiac mentioned in it. It was about the girl whose First Communion was invalidated because she used the rice, rather than wheat wafer. I'll quote from the end of the article (oh, by the way, the headline is: Church seeks options for those with celiac disease):

"But giving a gluten-free host, he says, is just playing charades. 'I don't see it as a sign of compassion or care. It's feeding into falsehood. When we offer words like compassion and pastroal concern, we mean them, but it doesn't mean you cn change things. You seek solutions. You provide options., You stand fast with the person who is suffering and encourage them along the way.

'But to those who ask, did Jesus really put emphasis on the material used,' Father Sirianni said, 'the answer is yes.''

I think the last statement (in bold) is the worst...I can't believe he can feel that way. Well, he said "put emphasis." I'd love to ask him, "Would Jesus rather have me poison my body and die?" or "So Jesus wouldn't be satisfied if a Celiac used a rice wafer instead, with the same belief as another?" I apologize if I offend other Catholics, but it just bothers me that they're so steadfast. I, PERSONALLY, am okay not taking Communion...but I am upset for those who aren't okay without it.

Oh, wow...that's ridiculous!

Another article...lol: Open Original Shared Link

Dessa, I get the news alerts from google. You can set them up so that if the word..."celiac" is used anywhere in the article, they will send it to you...I know there are others, but Google works well, so I'm satisfied with it.

Great! This is my favorite recipe for cheesecake and everyone I know likes it a lot...but it's interesting to hear what everyone else thinks. Thanks for posting your results, Kelly.

Here's an article...that issue was raised in......June? But it's recently come to the forefront again: Open Original Shared Link

Plantime...it's Catholic doctrine and the Church is unwilling to break from tradition, if it means being more accomodating to celiac Catholics.

More news

...about the girl whose First Communion was...denied because she wanted to sub. rice wafer for wheat:

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Welcome ...

Toothpaste....Crest, Colgate...most of them, really. Just avoid Sensodyne. Unless your mom gets bad rashes when gluten-containing products touch her skin (dh) she doesn't need to worry about deodorant.

Kraft clearly lists gluten so you don't need to call about natural or artificial flavors, modified food starch, starch, etc. Here are other companies that have the same labeling policy. With them you can just read the label for gluten...rather than calling:

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

Post any other questions you have...we're here to answer them

Ooh...I just found another article ...it didn't come through on my news alert, but it was on Delphi. The woman in the photo, Bobby Coughlin, is the...head?...of the Delphi board. The article is about the low-gluten communion.

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Here is a combination of articles/recipes. I've already posted some of the articles, but I just realized that they came with group of gluten-free recipes

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Sorry, nothing else new today

If you are on a strict gluten-free diet, you will likely not develop these conditions. If you went 20 years without a diagnosis, however, you could already start to develop some of these problems before you have a chance to turn it around. If that is the case, though, the gluten-free diet might act as....damage control...and prevention of other long-term problems. While on that, the long-term risks include:

Here is the list @ celiac.com about conditions that are definitely, probably, and maybe associated with celiac disease: at this link

But that list also includes the short-term symptoms (diarrhea, abdominal distention, etc.). Some long-term problems include:

Allergies

Asthma

Anemia

Arthritis

ADD

Autism

Cancer (Gastrointestinal carcinoma or lymphoma)

Diabetes (Type 1)

Epilepsy

Fibromyalgia

Kidney disease

Migraine Headaches

Nerve disease

Osteoporosis

Thyroid disorders

"Left untreated the mortality rate for someone with celiac dsiease is double that of the normal population. Further, the odds of acquiring gastrointestinal carcinoma or lyphoma (cancer) increase by a factor of 40 to 100 times that of the normal population...." - From the celiac.com site

A list from a Yahoo Support Group, Silly Yaks:

Gluten Free Candy & Easter Candy

Sure . There are tons of cross-contamination issues. To list a few:

• Somebody in your family spreads peanut butter onto bread that contains gluten. Then they put the knife back into the container. CRUMBS. Then you go and make yourself a PB & J sandwich with gluten-free bread...and you get contaminated from the crumbs in the jar. The amount of gluten you need to contaminate yourself is the size of 1/48th of a slice of bread. That's scary...think of how small that is
  
• Toaster---have a gluten-free one and a non-gluten-free one, easily distinguishable--that's the #1 problem.
  
• Replace any teflon or cast iron pots or pans that easily retain gluten. You can also keep the old ones and just get new ones for only gluten-free food.
  
• Lipstick
  
• Toothpaste
  
• The part of an envelope that you lick to seal it
  
• The silver drawer
  
• Old cutting boards,
  
• Wash your hands before eating finger food--if you put on a lotion or touched something that contained gluten (i.e. playdoh--that's not really applicable to you, though ) then there could be contamination.
  
• Oh, if you have pets: most dog food contains gluten.......licking.....
  
• Collanders and wooden spoons easily retain gluten
  
• Kissing someone who ate gluten...
  
• Putting gluten-free food on the counter...which a gluten bagel was just on...
  

You get the point

You're right--anything made by Pepsi, Co. is gluten-free.

Yes, I like to use gluten-free shampoo just because you never know when it might get into your eyes or mouth by accident...and that's an easily preventable way to get glutened.

Welcome, Rinku Okamato, I'm also 14...on the gluten-free diet for one year and I've gained over 20 pounds (I was also underweight before). Post any other questions you hvae

Duncan Hines...I like the "cream cheese" frosting the most