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heathen

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Latest Celiac Disease News & Research:

Everything posted by heathen

  1. heathen
    Celiac disease is a disease primarily of the small intestine, although you can see some changes in the colon that are non-specific. In other words, if you're going for biopsy, you have to get an EGD, although based on your history, your GI may opt to do a colonoscopy as well just to check things out.
  2. heathen
    There is a brand new review of Celiac Disease in the Annals of Internal Medicine that recommends testing in 1st degree relatives of people with a new diagnosis of Celiac Disease. Your doctor should have access to this medical journal, or at least know someone who does. You might want to pass this info along. Biopsy is still the gold standard for diagnosis...
  3. heathen
    I don't think I've ever heard of a stool test for H.pylori... especially since it lives in the stomach. Hmm. Well, with the help of google, there is a stool antigen test--basically seeing if your body is fighting the infection. The blood test works on the same principal, whether or not you have Ab to the bacteria. I would think that the blood test is easier...
  4. heathen
    First, "allergy" is a bit of a misnomer, but alot of people use it because the preferred term, "intolerance," doesn't always communicate the seriousness of the condition. If you have a positive antibody blood test, you have Celiac Disease--there is no "mild" about it. If this is the case, all gluten needs to be eliminated from your diet. It's very overwhelming...
  5. heathen
    The important thing to remember is that fibromyalgia should be diagnosed using very strict criteria AND after everything else has been ruled out, including Celiac if GI symptoms are present. Unfortunately, it can be a default diagnosis when MD's are frustrated and would like to treat something. For those with fibromyalgia AND Celiac disease, it's important...
  6. heathen
    I was having the same issues with the cookies being too crumbly. Now I blend the mix VERY WELL with a hand-held pastry blender (like you would use for from-scratch pie crusts). Once the dough is very formed, which takes about 5 minutes of blending, I form the small dough balls by hand. Have had GREAT success. Most of my non-gluten-free friends assume that...
  7. heathen
    This drug is used to treat narcotics overdose. I'm not sure why it would be used for Celiac symptoms.
  8. heathen
    This test is incredibly non-specific and does not diagnose anything. It's helpfulness is giving your physician an idea the level of inflammation, especially if you do have conditions like lupus. The destructive nature of Celiac Disease no doubt causes inflammation which may result in an elevated Sed rate, but so can a really bad stubbed toe.
  9. heathen
    Just one study... hard to change a gold standard test (the biopsy) based on just one study, although it would be nice to have a less invasive test to diagnose Celiac disease.
  10. heathen
    First, everyone MUST understand that it is only in the last 15 years that the medical community figured out that celiac disease is not just a rare disease of childhood. This is what most MDs were trained to believe, and it takes a while to re-learn, but the awareness is growing. Second, most docs are not aware of the growth of the gluten free movement over...
  11. heathen
    Regardless of anything nicotine might do to help our tummies, cigarettes are ALWAYS a bad idea. Multiple forms of cancer, heart disease, vascular disease, strokes, COPD... NOT WORTH IT!!! The only PROVEN treatment for Celiac disease is adherence to a gluten free diet.
  12. heathen
    I use Roben Ryberg's traditional crust recipe from "the Gluten Free Kitchen." I just add cinnamon to the mix to help give it some taste. I've had great success with it. I use a Kitchenaide mixer and roll it out in between wax paper.
  13. heathen
    also, don't forget Boston's near the airport.
  14. heathen
    pain meds, especially ones with morphine or codeine in them, are notorious for constipation. make sure they aren't making the problem worse. Keep on with the prune juice and gluten free fiber sources like rice or flax--they're often better than medical laxatives.
  15. heathen
    Stick to the salad bar This is what i have to do at the hospital. i also use the prepackaged dressings.
  16. heathen
    my hubby also had to deal with my gluten-free changeover while we were dating--and he and his family have been overwhelmingly supportive. you have no idea how much stress it relieves to know that he'll eat where and what i can eat.
  17. heathen
    Absolutely start with your family doc first. He/she should be able to work up your issues and start you on conservative treatment. If things don't improve he/she can send you to a GI doc for further workup/scoping.
  18. heathen
    Celiac is so hard to diagnose because everyone's Celiac looks a little bit different. Some us have the GI symptoms, some of us have abnormal lab values, some of us have psych symptoms--and all of it looks like so many other diagnoses! Hope you get the help you need.
  19. heathen
    it's really important to remember that the genetics we know about are just PREDISPOSITIONS! there are Celiacs who don't have any of the known genes and plenty of people who have them without Celiac Disease. Like most things, Celiac is a combo of genes and some environmental factor (illness, exposure, etc) we haven't figured out yet. While you are technically...
  20. heathen
    ANA can be positive for ALOT of different things, not just lupus. definitely needs to be worked up, though. best wishes.
  21. heathen
    I think i've been glutened once when i was there at the lunch rush. otherwise, no problem. not as good as pf changs, but still all right in a pinch.
  22. heathen
    i realize everyone can't do this, but i quit gluten cold turkey. Ripped off the bandaid and haven't looked back. of course, i felt like i was dying from the inside out, so i would have given up just about anything at that point. i know this isn't especially inspiring, but i think it's good for people to know that it's possible.
  23. heathen
    i've never heard of the connection, but blood in the urine, especially in a child, deserves the big workup. It's not normal in an adult either, so you might need to talk to your doctor, as well.
  24. heathen
    one of my celiac consequences is GERD--and spicy food will have me swallowing acid for hours. i avoid at all costs.
  25. heathen
    about the lactose intolerance... it goes with the celiac disease since the part of your intestines that digests milk is destroyed by the celiac antibodies. it should get better as you heal. as for brothers, i have one, and they can be buttheads. but they get over it most of the time. put him on ignore and wait for him to grow up. he might also be a little...
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