lovegrov
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Latest Celiac Disease News & Research:
Everything posted by lovegrov
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ARCHIVED How Early Did You Test?
lovegrov replied to hij-me's topic in Parents, Friends and Loved Ones of Celiacs
Generally speaking, testing is not advised for those younger than 2 because it's not as accurate. Most if not all celiac experts say you should go ahead and feed your child gluten at the same age others would start eating it. In fact, there's some evidence that delaying gluten might make your child more likely to develop celiac disease. richard -
Obviously I can't say if you have celiac disease, but today's advice from experts is that ALL first-degree relatives of people with celiac disease should be tested. Reactions can be all over the map -- from nothing at all to severe ones lasting for days or weeks. Yes, it could be "just" gluten intolerance, but given your family's history it will almost...
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ARCHIVED Still Not Healing
lovegrov replied to emily ann's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some people take up to two years to heal but you should at least be feeling better. One common cause of this is bacterial overgrowth. Have you tried taking a probiotic? richard -
Fryers are dedicated at almost all Wendy's but I stay awy from the fries anyway. Never gotten sick from them; I just don't take the chance. richard
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ARCHIVED Small Bowel Bacterial Overgrowth
lovegrov replied to nelsonmyers's topic in Parents, Friends and Loved Ones of Celiacs
It's not unusual for bacterial overgrowth to accompany celiac disease. I remember one doctor whoo specializes in celiac disease saying that she always recommends a probiotic for new celiac patients just in case they have overgrowth. Also, when she gets patients who are not getting better it's almost never refractory sprue, which is very, very rare; it's always... -
Thanks, Lisa, but I've made my mistakes (and no doubt will do so some more) and there's always stuff about which there's legitmate disagreement. There are also topics about which I know very little, so I try to stay out of those. richard
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ARCHIVED Green Mountain Gringo Salsa
lovegrov replied to terri's topic in Gluten-Free Foods, Products, Shopping & Medications
If it were "flavored" I suspect they would tell us. And they might even be required to, although I can't say for certain. There are actually some pretty detailed rules about what constitutes different kinds of vinegar. richard -
I'm sorry if you thought my message was rude (that's not how I meant it) but you had just posted essentially telling people you thought it was OK to eat something that in fact has wheat in it. For all you know, a couple of people have already read that message and eaten one of the salads it's all right. Everybody makes mistakes -- I still make them after...
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ARCHIVED Green Mountain Gringo Salsa
lovegrov replied to terri's topic in Gluten-Free Foods, Products, Shopping & Medications
Apple cider vinegar is always gluten-free. richard -
You cannot just eat something and assume it's OK because you didn't get sick. You must, must, must check it out. The Wendy's ingredient list very plainly tells you that the chicken in the BLT salad has wheat in it. It is NOT gluten-free. richard
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ARCHIVED Red Hotdogs
lovegrov replied to 2old4's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't think the color makes any difference. Nathan's is the only one I know with gluten, BUT I've also never heard of these two, so I've never checked them. richard -
Nobody I know has ever found a turkey with gluten "injected." A few have gravy packets but they're always double packaged. richard
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ARCHIVED Zofran
lovegrov replied to Jen H's topic in Gluten-Free Foods, Products, Shopping & Medications
All of Glaxo's prescription drugs are made to be gluten-free. None contain gluten. The thing about outside suppliers is nothing more than a CYA legal statement. Any time I hear that from a drug manufacturer, I don't worry about it. Others may have a different opnion. richard -
ARCHIVED Food Ingredient Label Question To Mfg.
lovegrov replied to Bigdawg's topic in Gluten-Free Foods, Products, Shopping & Medications
When I posted I was simply addressing the issue of listing what supposed to be in the ingredients. I was not talking about cross contamination, which people can always call the company about. Has Lawrys been asked about this? More and more foods are in fact listing at least whether the top 8 allergens are produced in the same facility (although that's... -
ARCHIVED Food Ingredient Label Question To Mfg.
lovegrov replied to Bigdawg's topic in Gluten-Free Foods, Products, Shopping & Medications
Lawry's is saying they will list ALL sources of gluten, not just wheat. This is what we want. The new law isn't perfect but it will cover 90 to 95 percent of hidden gluten. And when barley is hidden you often can tell (I always assume malt means barley) or guess that you need to check. Rye is never hidden and I don't think oats are, either. Bobcatgirl... -
ARCHIVED Gluten Free Etiquette?
lovegrov replied to Smunkeemom's topic in Parents, Friends and Loved Ones of Celiacs
I really have no suggestions because it sounds like you were being perfectly reasonable and they were being extremely rude. richard -
Plain raw meat -- poultry, seafood, beef, pork, lamb -- MUST by law list wheat or barley is it's added in. That means if the package says it has flavoring solution or broth but it doesn't say wheat or barley, it's gluten-free. Apparently there is some type of raw beef at Walmart that does have wheat (it's clearly listed) but I've never found a raw plain meat...
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ARCHIVED Food Ingredient Label Question To Mfg.
lovegrov replied to Bigdawg's topic in Gluten-Free Foods, Products, Shopping & Medications
Umm, their response follows the new labeling law -- the top eight allergens must be plainly listed -- and they'll also plainly list any other source of gluten. This is absolutely the best we can ask of any company. No need to call them ever or worry about whether a list is out-of-date. Just read the ingredients. If every company did this, our lives would... -
ARCHIVED Holding Down A Job W/ Celiac
lovegrov replied to bellybattle's topic in Coping with Celiac Disease
I missed too much work before my diagnosis, and by the time I WAS diagnosed I was so sick I was out for 10 weeks. I was established in my job and it was waiting for me when I got back. I definitely would not try to start a new career or job right now. You need to get well first. Have you had blood tests? What were the results? Are you still eating gluten... -
You can have Smirnoff vodka and flavored vodka, but not their malted drinks. richard
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ARCHIVED The Gluten Free Diet And Insects
lovegrov replied to Matilda's topic in Related Issues & Disorders
I wish. I attracted horses of mosquitoes before I went gluten-free and after. richard -
ARCHIVED Gluten Free And Filler Free Meds
lovegrov replied to jenyanderson's topic in Gluten-Free Foods, Products, Shopping & Medications
Virtually all meds are in fact gluten free, but I know of few if any that are "filler" free. Most meds have inactive ingredients that I guess would be considered "filler." richard -
You will find there are many things you can buy that you don't think you can now. It does NOT have to says glutn free on it. AS for meats, the law requires that if a raw meat like pork, beef, poultry or fish has something like wheat or barley in it, it must be very clearly listed. Virtually every rawunmarinated meat out there is gluten-free. richard
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ARCHIVED Modified Food Starch
lovegrov replied to Tychsar's topic in Gluten-Free Foods, Products, Shopping & Medications
The vast majority of the time MFS is gluten-free. But it can have gluten so you have to check or know that it's a company that will list gluten. As of January, you shouldn't even have to worry about MFS, as wheat will be one of the 8 allergens that they'll have to clearly list. richard -
ARCHIVED Non-glutenfree Medicine
lovegrov replied to domineske's topic in Gluten-Free Foods, Products, Shopping & Medications
I'd agree with you on the pharmacies -- in four years I've never been to a pharmacy that knew about whether a product was gluten-free. Most have been very helpful with showing me ingredients, calling the manufacturer or giving me the manufacturer's number, but I've never seen it as their job to know if it has gluten. richard