Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Foods! Was Doing So Well!


Missmtl

Recommended Posts

Missmtl Newbie

So at my Dr's suggestion of going gluten free to see if it would help with my health issues of truncal weight gain, bloating, nsusea, burping, rashes, joint pain and fatigue, i started a gluten-free diet last Friday. It went amazingly well! My bloating went down to barely noticeable, i lost 3 pounds, no stomach pain, gas or bloating etc i was thrilled!

I made pizza last night using bob mills gluten-free crust mix and it is the first time for me to eat pizza snd not feeling sick or instantly ballooned tummy!

After dinner, my bf offered me a strawberry twizzler, I had 2 without thought that it might gave gluten in it and within the hour, i got little white bumps on my arms, stomach and puffy look in my legs, thrn burning and tingling hands, sore tummy and nausea, swollen red lymph node on jaw line near my ear!

I woke up this morning still feeling sick and bloated, bumpy and itchy.

I feel depressed, how will I get through this without making mistakes?

Is there a site that has a comprehensive list to type in and see if its gluten free that is accurate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I am not aware of a source such as you are looking for, and would not recommend it even if I did.

 

The problem with a list--any list--is that products change all the time. A list is based on a moment in time. The example of the product you have in hand may be newer, or older, than the information in the list.

 

It does seem overwhelming at first, but over time you get to know what isn't safe and what to question. If in doubt, read the ingredients. Wheat must be clearly disclosed in both the US and Canada. Rye and oats don't appear in unexpected places, but barley can be listed as malt without disclosing the source in the US.

 

Canada adopted new rules effective August 4, 2012, that require all gluten sources to be explicitly disclosed by naming the grain in question. Products packaged prior to that date may still be in stores.

 

Read the ingredients.

kareng Grand Master

The easiest rule to live by right now is:

 

Read the ingredients on everything with an ingredient list and don't eat anything you haven't prepared yourself or seen prepared. 

 

 

There are apps but they are limited.  There is no way they have info for every brand of everything.  Some compensate for that by saying the unlisted items have gluten, even when they don't.

Gemini Experienced

Twizzlers have wheat in them and it's clearly marked on the package.  Like others have said, you have to read all labels from now on.  This will become second nature very quickly so relax!

You will get there, even if you feel overwhelmed right now.

notme Experienced

yes, you will get very good at 'package flipping' - remove package from shelf, flip package over, read package (til you see gluten), flip package back over, put package back on shelf.

 

it's a little easier now with the allergy warning following ingredients if it's not clearly listed in the ingredients.

Adalaide Mentor

I live by the motto of every label, every time. I'm buying something I bought last week? I read the label. I'm buying more than one of something? I read all the labels. At home when I pick something up in the pantry, if I can't remember the actual store trip when I purchased something, I read the label. Eventually it will become second nature.

 

And just so you don't get disappointed later, if you walk into the grocery store and start picking up licorice, nearly all of it has wheat. Enough that it took me no time at all to realize I would never find good licorice in a store again.

Pegleg84 Collaborator

Yup, no more casually accepting offered food. Ask: What is it? what's in it? where's the package? I need to read the label. If you can't find out what's in it, don't eat it!

It's a learning curve, definitely. we've all messed up, and feel horrible, then get better, then mess up again, but you get better at it, and eventually it'll become second nature.

 

In the meantime, it sounds like the gluten-free diet it working for you! Which is great! This is just a bump in the road. Too bad it has to be so unpleasant.

 

I don't like licorice anyway, but I do believe you can find it gluten-free in health food stores on occasion, but just the black stuff.

 

Happy Healing


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alesusy Explorer

"package flipping"! I love that definition....

May I add my Italian experience? We have a very active AIC association here (Associazione Italiana Celiachia). They actually print (and also have on their website, constantly updated) a list of all gluten-free products on sale in Italy, including those you find in normal supermarkets(which mayonnaise to buy? etc). Also a list of all hotels and restaurants in Italy guaranteeing gluten-free food. Plus, they give out certification to gluten-free products.

 

However, while I do trust them, it is not enough. Plus, I'm lactose-intolerant and a good part of those gluten-free foods is still going to make ME sick. Plus, they deal with food and proclaim for instance that lipsticks and hairspray and cosmetic creams are not ever a problem.  My own experience has been different. So - it's back to the learning curve and reading all labels, always.... and to package flipping!

GottaSki Mentor

Welcome!

Yep...package flippers are us!

Take a look at the "Newbie 101" thread -- it gives wonderful advise that will speed your transition to your gluten-free life. The transition is tough...I was brought to tears regularly during grocery store missions out of package flipping -- especially when I had to start carrying "cheaters" to read some of the teeny tiny print. It does become second nature....the best thing to do is think outside perimeter shopping - you see al the whole foods without many ingredients - meat, dairy, fruits and vegies are all found here....limit the processed foods...even processed foods labeleled gluten-free can be tough on your healing digestive system.

Hang in there and focus on that first piazza that didn't make you ill.

Read the newbie thread and ask lots of questions...it really does speed the transition :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

    3. - Jmartes71 replied to annamarie6655's topic in Super Sensitive People
      4

      Airborne Gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,132
    • Most Online (within 30 mins)
      7,748

    Laura Lewis
    Newest Member
    Laura Lewis
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
    • Jmartes71
    • Wheatwacked
      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.