Hi just joined the forum but have been lurking since May.
I'm a 48 year old female from the UK who got diagnosed with celiac disease in May, but I suspect that I may have had this disease for about 30 years.
As I am not one of the skinny type of celiacs, my symptoms have been put down to eating too much, eating the wrog diet for many years, and , to be honest, I rarely went to the doctor, after a while, as it was dispiritif to be dismissed like this.
Finally, when I finally was so bad I had to do something about it. I went to the doctor and mentioned that I felt much better on the Atkins diet, and asked if it could be celiac disease. the doctor did the tests, and yes, I do have celiac disease. It was such a relief, It meant that I could at last do somethig to get better.
The first three months have been a bit of a rollercoaster for me. The first 2 weeks I felt so high, unable to sleep, and then I had my first chrash. I ate gluten free oats.(I now know this is not recommended) The next 8 weeks saw me accidently gluteing myself regularly.due to not reading lables. I discovered that Milk is evil, and codex wheat is the work of the devil. The past 3 weeks or so, I have been on a more even keel. I have had no more accidental glutenings. I am still tired as I have anaeia,amd other vit/mineral deficiencies. My GI tract is still doing the fandango more often than I would like, but the terrible brainfog is starting to lift, and my indigestion and aches and pains are better..
At the moment, I am keeping glute free taking multivits.minerals, extra calcium/vitd3 and iron/vitc. I also take slippery elm and aloe vera. I am thinking of adding probiotics. I am also thinking of going on a juice fast like in tne movie Fat,Sick and nearly Dead. Any comments or suggestions as to i.mproving my lifestyle would be appreciated. Thanks.
I think you maybe now you understand how important for your health it is to be VERY strict with what you put in your mouth....no one can continue to be passive about gluten and expect to get or even feel better....Being celiac does take lots of time & work, researching info to help you learn & understand in the beginning but once you master the basics & stop falling into old habits things will begin to be brighter & healthier for you... This is a major life change in the beginning... but again once you master what needs to be done it all becomes second nature.......
Have you had bloodwork done for B-12, Vit D, CBC, Lipid panel, iron, ferritin, thyroid ( not just the TSH).
many stay away from dairy .... dairy is also broken down at the tips of the villi....in time some can add a little dairy back in to their diet, others must remain dairy free...
Almond milk is a wonderful sub for milk....some can use goat milk or camel's milk without a problem....
gluten-free Oats , lots of fiber so that may be just to much for your system at present until your body heals.. Most say not to try oats (gluten-free) for at least a year after being totally gluten-free ... I love gluten-free oats but after ten years of being gluten-free I can only have one serving maybe once a week...
As you become more aware of what your own body is telling you , you may find foods that are naturally gluten-free but still cause upset.....ie: tomatoes, eggplant, corn, & so on...
I am so happy you got your diagnosis and are working on being gluten free! Perhaps, with your way of telling the story, you could do a blog. I hope you are able to laugh at yourself some.
Instead of dairy I use nut milk, coconut milk, or almond milk. I would stick to eating a nutrient dense diet. Get rid of junk foods and put in meat, vegetables, nuts, and fruits. Don't forget the good oils. I use coconut oil or olive oil. You need some fat for energy, but It sounds like your body currently is not making good use of the fat. It can change. Do you cook from scratch? It seems easier than reading labels to me.
I suggest getting outside for a walk in the fresh air and sunshine.
I hope you are soon enjoying a clear mind and energy.
I was diagnosed at your age and am 18 months gluten free. I still have damage, but I am much better. All the same for you!
I am also thinking of going on a juice fast like in tne movie Fat,Sick and nearly Dead. Any comments or suggestions as to i.mproving my lifestyle would be appreciated. Thanks.
lolz! i must have missed that movie!
protein, baby! i don't think i would juice fast until i was healed a little better - once your body adjusts to it's new 'normal' you may find yourself losing weight (i hear alot of people lose water weight, too, once their body is running right) i think of it this way: (because i am a trucker's daughter) you can't put gasoline in a diesel engine and expect it to run. i am still skinny as a rail, but managed to put on (HEALTHY! yayy!) weight once i started running on that 'diesel fuel' - give yourself a little more time, you may be surprised (oh, Lord, just thinking about a juice fast makes my guts hurt lolz) sounds like you are on the right track! that is great news!
misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010
i'm down here in the well, looking back up at the hill
well, thank heavens i fell, i must look more like myself.
everyone is so kind, everyone looks like
a long lost friend of mine....- 'up from under' - the wallflowers
If you have pancreatic insufficiency, digestive enzymes are also a huge help.
I love coconut milk. Less dairy at the beginning helps heal the gut.
I tried juicing fruits and veggies just before my diagnosis and with a damaged GI tract...?? all that acid and fructose made me hurl ....from all openings. It wasn't pretty.
best wishes and welcome to the fold!
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love." Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
Hi all, thanks for the replies. Sorry I have not replied sooner, but I was digesting your suggestions and doing a little research and thinking. I have had a vit/min blood test and thyroid pannel done when I had my celiac bloods done, and I am due to have them repeated in about 3 weeks as I have my repeat dietitians appointment in October.. I will ask for a blood lipds to be done. I have been having some problems with eating meat fish and eggs since I started going gluten free. It is really odd. I just can't eat eggs at all. I feel sick when I put them in my mouth. I am starting to feel the same way about meat and fish. I dont know if this is my body's way of telling me to eat more fruit and veg. That is why I was thinking of doing a juice fast. I enjoy cooking. but really only if there are others there. If it isjust me. I don't tend to bother to much, so tend to eat a lot more unhealthy food,
Not me, this is the film I was talking about. The transformation of the men are remarkable. Especially Phil the american.
So. I will keep on taking the multivits and mins, add in probiotics and digestive enzimes. I know that I have to start exercising, so will start walking. I live in the country, so it won't be difficult. As for diet, I think I will start on a juice fast for 10 days. If it doesn't suit me. I will just go back to a normal gluten free diet, I didn't know that I could do a blog on this site. I wll look into that,
When it comes to juicing, getting a juicer and making some delicious drinks that can replace a meal is just fine. I personally think that fresh apple/carrot/ginger juice is ambrosia. But only drinking juices as they did in the documentary and not eating other solid food is not something a person with past malabsorption issues wants to do. Fruits and vegetables simply don't contain all of the nutrients that we need. And some, like carrots, are actually are more nutritious when cooked.
Plus, the juicing process actually removes a lot of the fiber that the fruits and veggies contain, and not having enough fiber is not something you want to do to an already-damaged digestive system. Many of the gluten-free alternatives for flours are also lower in fiber than their gluten counterparts so eating the apple is definitely more helpful than drinking the juice. Plus, our bodies are not built to handle an all-liquid diet where the absorption of nutrients has to be accomplished in even less time.
I'm a huge fan of juicing and smoothies, but any diet that is too much of one thing and excludes others is not the healthiest choice. Variety is the best way to get a wide range of nutrients and benefit from all of the vitamins, minerals, and antioxidants that are available in every food. Even potatoes have the benefit of lowering blood pressure. Avoiding processed foods, any sort of chemical additives, and using fresh, whole foods to cook from scratch is probably the best thing you can do for your body. (Okay, avoiding sugars or sweeteners of any sort is never a bad thing.)
I wouldn't worry about the weight issues at all until you are further along in the healing process and have more of your vitamin deficiencies worked out. Sure, don't overeat or eat foolishly, and try to get some exercise, but your body has already been through so much, taxing it in some other way seems a little cruel.
Also, being gluten free comes with a ton of emotional issues. Fear of being glutened, stress over every new ache or pain and what it might mean, frustration with doctors who seem to know a lot less about celiac than most of the more experienced members of this forum (big thank yous to them for helping all of us), bouts of low sugar because we were caught out without a snack and couldn't get anything that was safe until we get home. You're already traipsing through a mine field every single day - and that's before you get an accidental glutening. Trying to follow a diet that excludes even more foods than you already have to is just adding more pressures.
Oh, and juicing is way expensive!
Sorry, I was ranting a bit there. (You should see me go off on another site where people try to convince others that being vegan is in any way healthy.)
But I do think it may be time to cut yourself some slack, say "screw it" to what other people think about your weight, and just enjoy some great food while avoiding those that were harming you in the past. Maybe set yourself some goals that are easy to achieve and will make you feel better, like walking X miles per week. Some day in the future, say maybe after a full year of being gluten free, when you've got being gluten free down to a science and have your vitamin deficiencies more on track, reevaluate and revisit some of the additional things you can do to lose weight.
I only lose weight, and feel really good, when I am eating plenty of fats and meats. If my carbs get high, or I eat something like a 1/4c of rice, small potatoe, pasta, or something baked more than a couple of times a week, my weight won't budge downwards or it even goes up. That being said, I LOVE to have a smoothie for lunch. I like to drink my calories, and just gave up soda, so smoothies suit me well.
As someone else said, juicing something takes out almost all of the helpful fibre so you are left with sugar/fructose and vitamins. Because of that, I make smoothies where I only puree smooth a few things (like avocado, hemp, carrots and cucs) and I leave my greens shredded into small half centimetre pieces to help with fibre. For my boys, I also add a proetin powder so they get more out of it, but I have to add more fruit to sweeten it up.
I really enjoyed that movie too! The transformations were impressive. It helped prod me toward making green smoothies on most days. Another good show to motivate you towards healthy eating is Supersize Me. I haven't had a MacDonald's burger in about 5 years now. Bleh! LOL