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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Looking For Ultra Safe Brand Of Brown Sugar?
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8 posts in this topic

Hi!  Does any other super sensitive have a safe brand of brown sugar?  I am afraid to try some organic brands, because it doesn't say anything about whether it's processed in a facility with wheat, etc.  I have Simple Truth and Earthfare brand in my pantry that my family uses.  I am trying to make some applesauce that I can eat too:)

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I use Domino sugar. I don't think they process anything but sugars.

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Thank you:)  I do most of my shopping at Whole Foods though...does anyone have a safe organic brand that they use?

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I use Domino sugar. I don't think they process anything but sugars.

I use C&H brown sugar. :) No issues here.

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I am extremely sensitive and I haven't found a brand of processed sugar that I can tolerate.  I tried about a half dozen before I gave up.  I grow sugar beets and can eat them just fine.  I also had a brand of honey that I was able to tolerate.  I make my applesauce without added sweetener and it's very good.  I use golden delicious apples because they are one of the sweetest.  I don't think that my problems come from sugar being processed in a facility that processes wheat.  I don't think that sugar would be processed with wheat.  I think that it has something to do with the purification process, but that's just speculation.  I found that after not adding sugar to things, I got used to that taste and didn't really need the added sugar anymore.

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i use whatever's on sale :) - you know, read the labels...  the only reason i switched (pre gluten-free pantry to gluten-free pantry) was because people (myself included) cc'd it by using the same spoon when baking with wheat flour.  i don't worry much about sugar being processed with wheat. 

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Hi.

I've used "sugar in the raw" for many years with no problems.

lisa

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    • In Dire Need Of Help
      Alex the good news is you have found a great site with useful information and warm support! You need to work with your doctor to get a diagnosis but there are plenty here who have had similar experiences: http://www.celiac.com/gluten-free/search/?&q=panic%20attack so it sounds like your on the right lines   Take heart that you have probably found the cause now rather than later.  Follow CyclingLady's excellent advice above and go for celiac screening asap. For tests to work you need to be eating gluten for some time. That is a scary prospect when you've finally experienced some relief but it's for a limited time period, you can get support here along the way and if you choose to you can go gluten-free at the end and get relief whatever the results.  Once you're done testing and off the gluten you will be in a much better position to nail the lifestyle. That may mean some pre-planning, maybe taking a backpack with some gluten-free snacks with you, at least until you find the places you can reliably eat at. There are apps and sites that can help and probably local support groups in NYC as well: https://www.google.co.uk/?ion=1&espv=2#q=new%20york%20gluten%20free%20restaurants With research you'll also get to know what fast food options are viable, what readily available candy bars are ok etc. I can eat Mcdonalds fries for instance, which can come in handy if I'm away from my kitchen or supplies. Most starbucks or equivalents will have at least a gluten-free snack bar. So although a pain in the arse, it's doable and the health payoffs MORE than make up for the hassle.  Good luck! 
    • to biopsy or not?
      I ordered the cookbook the same day you recommended it.  I am SO excited!  I actually cried looking through the book!  I honestly don't believe I am good at all in the kitchen.  I am lucky enough to have a husband who cooks everything when he's home.  The only thing I felt skilled at in the kitchen was baking.  I made all of my kids' birthday cakes for the last 8 years.  I was sad thinking that we wouldn't have anything good for a birthday cake.  I mean, I've tried gluten free cake from a box, but it was just ok.  It wasn't amazing the way a homemade cake can be.  So now I have hope.  Hope that maybe my non-celiac kids will enjoy a birthday cake still.  My daughter (the most-likely-to-be-celiac one) never really ate birthday cake to begin with.   So this summer is her birthday and we will find out if it's good!  Thank you for the recommendation!!!   Janis
    • antibiotic for my 6 year old- could it have gluten?
      It is probably fine.  Very few meds actually have gluten.   shows as gluten-free on this list  http://www.glutenfreedrugs.com/list.htm
    • antibiotic for my 6 year old- could it have gluten?
      My 6 year old just got prescribed an antibiotic (keflex) and is the liquid pink stuff they give kids.  I just realized I didn't ask if it was gluten free when I picked it up from the pharmacy!  Anyone know if I should be concerned?  Does that pink stuff have gluten?
    • Oat Flour making me sick?
      We suspect my 6 year old cannot tolerate gluten-free oats either... do we need to treat them just like wheat as far as CC issues?  Should I not cook oatmeal in pots that we prepare her food in?
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