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Can “Glutenase” Pills Help People With Celiac Digest Gluten?

pills digest gluten glutenase

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#1 kareng

 
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Posted 03 April 2014 - 02:18 PM

Thought this was interesting:

http://sciencelife.u...-digest-gluten/


"Dr. Guandalini: Surely it would be nice to be able to swallow a pill and go about eating without worrying about any gluten on your plate. This is more or less what these products are claiming. But my opinion is no, they cannot be trusted to help digest gluten......"


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#2 LauraTX

 
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Posted 03 April 2014 - 03:40 PM

Thank you for spreading truthful information. :)


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#3 U Gluten Free

 
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Posted 03 April 2014 - 03:52 PM

kareng — I agree that it's important not to over-sell the potential here. However, since a large number of celiacs heal slowly (or not at all)—possibly because of the effects of trace gluten contamination—I think it would be great to have a pill that could take care of this problem.


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#4 kareng

 
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Posted 03 April 2014 - 04:25 PM

kareng — I agree that it's important not to over-sell the potential here. However, since a large number of celiacs heal slowly (or not at all)—possibly because of the effects of trace gluten contamination—I think it would be great to have a pill that could take care of this problem.


I don't believe I said that a pill wouldn't be nice to have - just that the current ones don't work.


If you read the whole post, it isn't long, I believe he says that the current ones do not work. They studied them. That was the point of this thread. We get this question a lot on here, so I thought I would put the info on here for people to be able to search.

They are working on a legitimate pill but it isn't through testing and on the market yet.
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#5 kareng

 
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Posted 03 April 2014 - 05:56 PM

OK. I don't think the U of C will mind so I'll put the whole thing here as I have seen that people don't click the link and read the whole thing.



"This is the first installment of our new series, The Big Question, in which we ask University of Chicago Medicine doctors and researchers one big question about their work, whether it’s their expert opinion on a new breakthrough or a common question they hear from patients. First up is Stefano Guandalini, founder and medical director of the University of Chicago Celiac Disease Center.

Do supplements like Glutenase, Gluten Cutter or Digest Gluten Plus that are currently on the market help people with celiac disease digest gluten, or protect against cross-contamination?

Dr. Guandalini: Surely it would be nice to be able to swallow a pill and go about eating without worrying about any gluten on your plate. This is more or less what these products are claiming. But my opinion is no, they cannot be trusted to help digest gluten.

While research is very active in this field, and some very promising products are being rigorously tested and hopefully will come to fruition soon, it must be clearly stated that none–I repeat, none–of the currently commercially available products that claim to help detoxifying gluten by digesting it in the stomach before it reaches the small intestine can actually accomplish this. This is based on specific tests carried out in a reputable research laboratory that has checked these products and confirmed what we knew from the beginning: They are totally ineffective in reducing the fractions of gluten that are toxic for celiac patients.

For more from Dr. Guandalini, read our two-part interview with him on the sudden rise of celiac disease and the future of treatment."
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#6 user001

 
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Posted 01 July 2014 - 05:07 AM

I thought it was a well established fact that these types of pills do not work for people with diagnosed celiac disease? no?


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Beef and pork free due to intolerance since 2005, Gluten free since March 2014, Coffee free due to a developed intolerance June 2014, Egg free due to a developed intolerance August 2014
Misdiagnosed since 2000 with chronic fatigue syndrome, major depression and anxiety disorder.
Requested doc test for Celiac disease in April 2014.
Blood test positive for  Celiac disease May 2014.

Celiac Dx confirmed via small intestine biopsy 6/26/14
Fatigue,.depression, anxiety, daily headaches, and a laundry list of other symptoms have diminished slowly since I stopped eating gluten.

Who knows how much longer I would have suffered if I continued to rely on doctors to think of testing me for celiac disease.

BE AN ADVOCATE FOR YOUR OWN HEALTH!


#7 kareng

 
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Posted 01 July 2014 - 06:15 AM

I thought it was a well established fact that these types of pills do not work for people with diagnosed celiac disease? no?

 

 

Did you read the link?  or when I copied the whole thing onto here?  

 

Or was this  a "funny" because I already said that people don't read the links?   :unsure:


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#8 user001

 
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Posted 01 July 2014 - 06:26 AM

No dear, I read it. I'm just saying I thought it was a well established fact because I am always seeing it brought up and I was wondering why we were beating this poor dead horse :)


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Beef and pork free due to intolerance since 2005, Gluten free since March 2014, Coffee free due to a developed intolerance June 2014, Egg free due to a developed intolerance August 2014
Misdiagnosed since 2000 with chronic fatigue syndrome, major depression and anxiety disorder.
Requested doc test for Celiac disease in April 2014.
Blood test positive for  Celiac disease May 2014.

Celiac Dx confirmed via small intestine biopsy 6/26/14
Fatigue,.depression, anxiety, daily headaches, and a laundry list of other symptoms have diminished slowly since I stopped eating gluten.

Who knows how much longer I would have suffered if I continued to rely on doctors to think of testing me for celiac disease.

BE AN ADVOCATE FOR YOUR OWN HEALTH!


#9 kareng

 
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Posted 01 July 2014 - 06:36 AM

No dear, I read it. I'm just saying I thought it was a well established fact because I am always seeing it brought up and I was wondering why we were beating this poor dead horse :)

 

 

Back in April, when I posted this, we were having a lot of people taking these bogus pills.  I thought that having an expert opinion posted on the forum  might be helpful.  People google these pills and I hoped that they might find this link.  I thought that some of us could use this thread to point people in the correct direction when they come on saying that their cousin's aunt's step-brother's MIL said there is a pill that lets you eat gluten.

 

You obviously googled it or had a reason to look it up... So I guess it worked?   ;)

 

 

And thanks for bringing it back to the front of the forum, maybe it will help keep a newbie from wasting thier money.


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#10 IrishHeart

 
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Posted 01 July 2014 - 06:53 AM

No dear, I read it. I'm just saying I thought it was a well established fact because I am always seeing it brought up and I was wondering why we were beating this poor dead horse :)

 

But, that's just it...it's not a dead horse topic. It comes up quite often because newly Dxed people wonder if it works, so by making the topic its own thread, when people use the search engine, they will come directly to the link to this article that explains the reason why it doesn't.

 

It was a good idea. 


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#11 user001

 
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Posted 01 July 2014 - 07:19 AM

Back in April, when I posted this, we were having a lot of people taking these bogus pills.  I thought that having an expert opinion posted on the forum  might be helpful.  People google these pills and I hoped that they might find this link.  I thought that some of us could use this thread to point people in the correct direction when they come on saying that their cousin's aunt's step-brother's MIL said there is a pill that lets you eat gluten.

 

You obviously googled it or had a reason to look it up... So I guess it worked?   ;)

 

 

And thanks for bringing it back to the front of the forum, maybe it will help keep a newbie from wasting thier money.

I was actually just looking into the forum and found it, but I understand how you might make the assumption that I stumbled upon your post because it was helpful. :)

 

I think the issue is that people who think these products will help them with their gluten problem, celiac or not, are NOT doing the research. If I google your question, the top results are medical journals discussing how these pills helping with gluten digestion is NOT something that is effective or safe for people with celiac disease. It can, however be helpful to people with other issues with gluten containing foods.

 

I think when people keep beating this dead horse, it just for a second, gives readers false hope that there might be a way for us to be safe in the world or even enjoy a dish we might miss.

 

It is a well established fact that these pills DO NOT help people with celiac disease. People using any drugs, prescribed by doctors or purchased over the counter should do their research before ingesting any medications. There is often ingredients that may harm you are unknown side effects to prescribed drugs and supplements are rarely what they say.

 

We all know how hard this disease can be, so I don't blame people for having hope that there is pills that can help. Anyone who has been diagnosed by a Dr knows the only way to get better is to eat a gluten free diet for the rest of your life :( I think we all learn at a young age that if it sounds too good to be true, it most likely is.


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Beef and pork free due to intolerance since 2005, Gluten free since March 2014, Coffee free due to a developed intolerance June 2014, Egg free due to a developed intolerance August 2014
Misdiagnosed since 2000 with chronic fatigue syndrome, major depression and anxiety disorder.
Requested doc test for Celiac disease in April 2014.
Blood test positive for  Celiac disease May 2014.

Celiac Dx confirmed via small intestine biopsy 6/26/14
Fatigue,.depression, anxiety, daily headaches, and a laundry list of other symptoms have diminished slowly since I stopped eating gluten.

Who knows how much longer I would have suffered if I continued to rely on doctors to think of testing me for celiac disease.

BE AN ADVOCATE FOR YOUR OWN HEALTH!


#12 user001

 
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Posted 01 July 2014 - 07:27 AM

Several products also have disclaimers.

 

"Recommendations: Two UltraCaps with each meal or as directed by your healthcare practitioner. Caution: While Gluten Defense* will reduce the level of reactive gliadin and gluten proteins in a meal, it is advised that celiac disease sufferers continue with their normal gluten exclusion diet as even small amounts of gliadin can cause adverse reactions in the most sensitized individuals. If pregnant, nursing, or taking prescription drugs, consult your healthcare practitioner prior to use. This product contains natural ingredients; color variations are normal. Gluten & Casein Digestive Enzymes* Helps digest hidden wheat and dairy* Vegetarian *This statement has not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure, or prevent any disease."


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Beef and pork free due to intolerance since 2005, Gluten free since March 2014, Coffee free due to a developed intolerance June 2014, Egg free due to a developed intolerance August 2014
Misdiagnosed since 2000 with chronic fatigue syndrome, major depression and anxiety disorder.
Requested doc test for Celiac disease in April 2014.
Blood test positive for  Celiac disease May 2014.

Celiac Dx confirmed via small intestine biopsy 6/26/14
Fatigue,.depression, anxiety, daily headaches, and a laundry list of other symptoms have diminished slowly since I stopped eating gluten.

Who knows how much longer I would have suffered if I continued to rely on doctors to think of testing me for celiac disease.

BE AN ADVOCATE FOR YOUR OWN HEALTH!


#13 kareng

 
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Posted 01 July 2014 - 07:45 AM

I was actually just looking into the forum and found it, but I understand how you might make the assumption that I stumbled upon your post because it was helpful. :)

 

I think the issue is that people who think these products will help them with their gluten problem, celiac or not, are NOT doing the research. If I google your question, the top results are medical journals discussing how these pills helping with gluten digestion is NOT something that is effective or safe for people with celiac disease. It can, however be helpful to people with other issues with gluten containing foods.

 

I think when people keep beating this dead horse, it just for a second, gives readers false hope that there might be a way for us to be safe in the world or even enjoy a dish we might miss.

 

It is a well established fact that these pills DO NOT help people with celiac disease. People using any drugs, prescribed by doctors or purchased over the counter should do their research before ingesting any medications. There is often ingredients that may harm you are unknown side effects to prescribed drugs and supplements are rarely what they say.

 

We all know how hard this disease can be, so I don't blame people for having hope that there is pills that can help. Anyone who has been diagnosed by a Dr knows the only way to get better is to eat a gluten free diet for the rest of your life :( I think we all learn at a young age that if it sounds too good to be true, it most likely is.

 

 

Several products also have disclaimers.

 

"Recommendations: Two UltraCaps with each meal or as directed by your healthcare practitioner. Caution: While Gluten Defense* will reduce the level of reactive gliadin and gluten proteins in a meal, it is advised that celiac disease sufferers continue with their normal gluten exclusion diet as even small amounts of gliadin can cause adverse reactions in the most sensitized individuals. If pregnant, nursing, or taking prescription drugs, consult your healthcare practitioner prior to use. This product contains natural ingredients; color variations are normal. Gluten & Casein Digestive Enzymes* Helps digest hidden wheat and dairy* Vegetarian *This statement has not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure, or prevent any disease."

 

 

Huh?  This thread was dead and buried until you brought it back to life to argue that I shouldn't have posted it because it causes attention to the product.  I was just posting a link to a little interview with Dr. G that might be helpful to someone.  If the topic isn't helpful for you because you already know the information - fine.  Don't read it.  I don't understand what you want to fight about?   :unsure:

 

Honestly, it is only a "well established fact" for those who have looked into it.  And they had to look somewhere so why not here?   

 

 

edited to add:  I am done with this nonsense.  I don't see any reason to fight.  If you have a problem with Dr. G answering this question - it is very easy to send him an email.  If you think something is posted on here that is dangerous to people, then report it and It will be reviewed.  I don't see how this  post hurt anyone and we have many others of a similar nature.  This same interview may have been posted by our news service, too.  I don't have time right now to check that.


Edited by kareng, 01 July 2014 - 08:46 AM.

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#14 user001

 
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Posted 01 July 2014 - 08:03 AM

Im just saying you are the one always complaining about how people are putting fear into others when they question being glutened by a product that they are unsure about. I think it is also wrong to give hope to someone with even talking about this subject. The facts are already out there if someone is wondering. They are on google if it is searched and they are on product packaging if they are buying online or buying in the store. I just think you should know that.

 

I dont understand why you want to fight about everything, karen. I am not fighting. I am simply telling you that you are incorrect to post things like this because it might be giving someone false hope. You are putting out something that is not helpful. If someone asks the question, answer it, no need to post this IMHO.


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Beef and pork free due to intolerance since 2005, Gluten free since March 2014, Coffee free due to a developed intolerance June 2014, Egg free due to a developed intolerance August 2014
Misdiagnosed since 2000 with chronic fatigue syndrome, major depression and anxiety disorder.
Requested doc test for Celiac disease in April 2014.
Blood test positive for  Celiac disease May 2014.

Celiac Dx confirmed via small intestine biopsy 6/26/14
Fatigue,.depression, anxiety, daily headaches, and a laundry list of other symptoms have diminished slowly since I stopped eating gluten.

Who knows how much longer I would have suffered if I continued to rely on doctors to think of testing me for celiac disease.

BE AN ADVOCATE FOR YOUR OWN HEALTH!


#15 IrishHeart

 
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Posted 01 July 2014 - 08:35 AM

Im just saying you are the one always complaining about how people are putting fear into others when they question being glutened by a product that they are unsure about. I think it is also wrong to give hope to someone with even talking about this subject. The facts are already out there if someone is wondering. They are on google if it is searched and they are on product packaging if they are buying online or buying in the store. I just think you should know that.

 

I dont understand why you want to fight about everything, karen. I am not fighting. I am simply telling you that you are incorrect to post things like this because it might be giving someone false hope. You are putting out something that is not helpful. If someone asks the question, answer it, no need to post this IMHO.

 

I am being impartial here and I honestly do not understand why you are taking exception to a very helpful post that has good and relevant 

information in it.

 

She is not "incorrect" nor does the product or the information suggest "false hope" at all.

I just am not seeing how you are interpreting that from the post, sorry.

 

On the contrary, if someone had a question about

it, they can read that the product is NOT really recommended at all --and that is coming from a leading celiac researcher.

 

Maybe you should let it go. :)


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif





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