Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Flying And Travelling With Celiac And Hotels, Etc


KnightRobby

Recommended Posts

KnightRobby Enthusiast

Hey everyone.  Hope you all are doing well.  I run 2 networks that are becoming quite successful and have been doing them from home.  I have been told it is highly likely I will be flown out to San Francisco and Sweden in 2015.  To be honest, I hardly have traveled, which is something I regret but it has been primarily because of my crappy health.

 

I would of course have to stay in a hotel.  Anyone familiar with traveling inside and outside of the US or even Sweden when dealing with Celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMRI Collaborator

I travel quite a bit for work but mostly driving.  I leave this week for 2 months on the road.  I have a cooler that plugs into my car to keep some food cool between hotel stops and have found quite a bit of individual serving sizes of food and snacks to take.  You probably can't fly with most of that food but you should be able to find similar at grocery stores.  Traveling abroad, check the travel forum here to see if anyone has gone to Sweden??

 

In the US, I try to find extended stay type hotels as much as I can so I can cook for myself.  For this trip I'm bringing my toaster oven and hoping that I can use it in hotels that are not extended stay.  At minimum a room has to have a microwave and mini-fridge.  I've also done some research for known gluten-free restaurants where I will be staying.  Sometimes there are great options, Red Robin, Jason's, etc., sometimes there is nothing.  It's going to be an interesting 2 months that is for sure.

Cara in Boston Enthusiast

We found the pre-packaged "lunches" from GoPicnic to be great for travel.  They are shelf stable, small, and light.  We had no problem getting them through airport security.  Check them out, they have several gluten free options.  My son even keeps a few at school and one in his backpack for "emergencies."

 

You can also get cards to print in different languages to explain your situation when eating out in a foreign country.  You can give it to the chef and they can help steer you to safe choices.  Due to cross-contamination, I would stick to naturally gluten free choices (steamed vegetables, salads, grilled meats without marinades, etc.) just to be safe.  You don't want to be sick while traveling.

 

We always bring some of our favorite cookies or some good chocolate when traveling.  I found that dessert was the hardest to find . . .

sweetsailing Apprentice

I travel frequently for work and just got back from San Fransisco.  Northern california is a gluten free haven.  Many resturants are gluten free or have gluten free menus.  Great food in the area. 

 

As far as airports and hotels, I have had luck finding stapes such as hard boiled eggs, fresh fruit (bananas, apples, etc), almonds, kind bars, and I have even noticed that some airport hudson news magazine stores are carrying the GoPicnic pre-packaged lunches.  However make sure that you read the box carefully, not all GoPicnic lunches are gluten free. 

 

If I am renting a car, I will look for a whole foods in the area, if I am going to be there more than just an overnight and stop in there for some staples for the hotel or get dinner from the deli there if I am not eating out with clients. 

 

The hardest thing for me has been making sure I tell people (clients) ahead of time about diet/food concerns for lunch if it is provided in the office.  I always feel like it's a bit of an imposition and will end up eating a salad or being hungry and eating more later. 

cyclinglady Grand Master

Sweden has a celiac group --there is a high incidence of celiac disease there. I would contact them and ask for help. Those cards written in most languages are very useful.

SMRI Collaborator

Does anyone have a link to those cards?  I know my GI's office showed them to me but I can't remember the name of them!!

kareng Grand Master

google dining cards - Triumph is one brand


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KnightRobby Enthusiast

Okay great.  Thank you all for the info.  I'll have to look up those GoPicnic lunches.  I've never heard of them until now.  Too bad options are limited when taking stuff on the plane.  That's the real pain in the butt to be honest, but it is what it is.

 

And yeah, I have a friend in Sweden and did some homework on Celiac in that area.  I guess they had a major epidemic in the 70's.  They managed to reduce the amount of children getting Celiac by changing the formula they were fed when babies and reducing Gluten foods.  Anyway, definitely worth reading up on imo.  Seems like scientists can learn a lot from Sweden and their outbreak.

Pauliewog Contributor

I have an app on my iphone for cards. It has a pull down menu and you can choose a various languages. It's called gluten-free Restaurant Cards. Swedish is on there.

Alwayssomething Contributor

I travel quit a bit, out of the country only to Aruba and Mexico which is a pretty short flight.  But whenever I fly in the country I always take nuts, go picnic meals, or Snyders pretzel sticks and the individual "bowls" of Peanut butter.    Those types of things always make it through security in my carry on.   For my checked luggage (probably the only reason I have to check luggage)  I pack cheese that doesn't need to be refriderated, skinny cow or something like that, crunchmaster crackers, pepperoni and things I can open and refriderate when I arrive, individual bags of instant gluten free oatmeal work great for hotels.      In the grocery store of other countries I only found fresh meat, fruit and veggies to be reliable, everything else was usually written in something I couldn't read, so I didn't take a chance on anything.     Personaly I don't travel with a crockpot, or hot plate or anything like that I do a lot of research and send emails to restaurants asking all the questions I can and I take that email printed and aske to speak to the person who answered me if I need to.    If I don't have time to research that is trickier.   

LadyT84 Newbie

I am new on the site, and just want to say thanks for the great ideas.  I am getting ready to travel to West Africa for 2 weeks, and was freaking out about keeping all my food gluten free on top of all the other precautions.  I checked out the gopicnic site, amazing!!! I am getting ready to order a bunch!! Such a wonderful idea.  I plan to take quite a few for the flight and to eat while I am there so I don't have to worry about eating gluten or food contamination.

 

Has anyone had an issue with TSA making you throw your prepackaged food away? My friend flew from Baltimore to Cali and they made her throw away her granola bar.  I am worried I won't have anything to eat for a 12 hour flight if they make me throw these away at security.

Alwayssomething Contributor

Open Original Shared Link

 

I have never been asked to throw away any food I have tried to take aboard.   I looked on the TSA website and it looks like most things they will not let you bring aboard or things that are gel or liquid type, I do see that they list spreads like cheese and peanut butter, but your go picnic meal will be sealed so I can't imagine them giving you trouble with the cheese spread and I have taken both cheese spread and idvidual cups and envelops of peanut butter and have never been asked to throw them away, maybe becuase it is a sealed package and not something I packages myself?   Looks like on that link there is also an app you can download so if you have questions about an item.    Hope that helps some.   I LOVE to travel, we head out this afternoon for a 10 day trip but we are driving for this one. 

gilligan Enthusiast

Get a letter from your doctor stating you have severe dietary restrictions and need to travel with your own food.  I just got back from San Francisco, also.  I didn't find it as easy as others have mentioned to find gluten-free restaurants, and the ones I did find are very expensive.  Mariposa Bakery, Pier 23, and the San Franciscan (all on Embarkadero) have gluten-free options.  I used a travel blog to find gluten-free foods in airports, and it was a dismal failure, except for listing CIBO (an organic grab n go).  I got a pretty good turkey sandwich.  

Nikki2777 Rising Star

Make sure that the GO Picnics you get are the Gluten Free ones - I was excited to see some at an airport until I realized they weren't gluten-free versions.

 

As others have said, San Francisco should be easy.  I imagine Sweden also won't be too bad, but I'd bring some things just in case.  Most Swedes speak decent English.  

 

When I've traveled overseas recently, I've e-mailed the Celiac Society of each country (googled for the name) and asked them for advice, for the local words, and brands/stores where I can stock up on things to eat in my hotel room.

 

Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.