Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Label With Less Than 20 Parts Per Million


Vanilla Gorilla

Recommended Posts

Vanilla Gorilla Newbie

RE items that have gluten but are less than 20 parts per million still safe?  My doctor says no.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gilligan Enthusiast

I don't have a problem with them, and my antibody level couldn't get any better.

psawyer Proficient

There are two parts to this.

1. The threshold defined by FDA rules allows 20 ppm; any level below that, including zero, is fine too. We all want zero ppm, but I realize that that is a goal, not a reality.

2. When an amount appears on a label, it indicates that the product has been actually tested for gluten content, and tested negative at the noted level. If it just says "gluten-free" it may not have been tested at all. Any test will have a threshold, and 20 ppm is a common middle ground between extreme sensitivity and high cost. More sensitive tests exist, but how much did you want to pay for your food? It is scientifically impossible to prove zero content.

So, I welcome such statements, which mean that the manufacturer not only does not include gluten on purpose, but also checks at some level for accidental contamination.

YMMV.

valentina Newbie

Thank you!  For especially agreeing ....it's either "there is gluten OR no gluten"  I wish they would make up their mind!

This morning I called Cheerios, because of the labelling on the front "Gluten Free".....On the Regular Cheerios and also the Honey Nut Cheerios

there are 2 ingredients:  Whole grain oats, oat bran---It is not specified that these ingredients are gluten free unless it says in the actual ingredients gluten-free whole grain oats or gluten-free oat bran.  I will not inform my customers (at the supermarket) to purchase these items unless the Company investigates and corrects this outlandish false advertisement of being "gluten free".  This poses a huge dis-service to the large population of people with Celiac disease.  If there is a single speck of gluten, I would not advise anybody to eat this cereal.  Do you want your original symptoms back?  I do not!  Have we all gone through enough suffering and torment.....Take the gluten out!  Whole wheat, bulghur wheat, oat, rye, barley and all of their derivatives should not be eaten by a person with Celiac disease, period!  

 

Do all of us have to band together and get a petition to stop Cheerios?  Then let's do it!

 

RE items that have gluten but are less than 20 parts per million still safe?  My doctor says no.

bartfull Rising Star

Unless the ingredients in an oat-based product say "Certified gluten-free oats", I wouldn't eat it. Most oats are contaminated from being grown in the same field, harvested on the same equipment, and stored it the same bins as wheat. Even then, some (but by no means all) celiacs react to certified gluten-free oats.

 

Most gluten-free items that are tested are only tested for less than 20 PPM because the tests for 10 or 5 PPM are a lot more expensive. But if the label says "less than 20 PPM", that doesn't mean it has 19 PPM. Could be anywhere between zero and 19. I've never had a reaction to anything that has the "less than 20 PPM" label. But that's just me.

squirmingitch Veteran

You might be interested in reading this about Cheerios:

Open Original Shared Link

Vanilla Gorilla Newbie

Thank you for the comments.  What Im curious about is if the FDA says its gluten free because its less than 20 ppm is it then safe to eat if your celiac?  Will these items affect my intestinal tract?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Based on studies by celiac experts, the "less than 20 PPM" is deemed safe and should not cause intestinal damage.

You might find this interesting reading from the FDA:

Open Original Shared Link

anthony colatrella Newbie

to be safest, only if that product has been certified gluten free by one of the official certification organizations--CSA, GIG, or NFCA---their certifying label should be on the product--the FDA uses 20ppm as their threshold level and that should be fine for most celiacs--at that level you could eat a pound of such food and still be at only a total of 10mgs of gluten a day which is generally regarded as a safe level---meaning no damage should occur---the certifying orgs actually use stricter levels---5ppm for CSA, and 10ppm for GIG and NFCA---so checking for their labels is best--otherwise you are relying on the food manufacturer itself; the FDA is not actually doing the testing---they just established the level and expect the manufacturer to comply---supposedly there will be periodic checks or they will investigate complaints. As far as CHEERIOS gluten-free, I believe Trish Thompson of The gluten-free Watchdog has been working with them, but I don't think she was ready to fully approve---I believe that was the most recent update---you can check  

anthony colatrella Newbie

if label indicates less than 20ppm as regulated by FDA that indicates that company has made that measurement and is complying with FDA regulations and hopefuly that company can be trusted--this is still a "new" venture and I guess we will find out who can or cannot be trusted--that is why I advised checking for one of the certifying organizations' labels as they are all national celiac organizations and have been doing this already for many years well before the FDA made their own regulation plus they do use stricter levels---if you do trust a product labeled gluten-free at less than 20ppm, you should be able to eat a pound of such food safely-20ppm=20mgs gluten per kg of food----and 10mgs of gluten daily is considered a safe level so as long as you are not eating more than a pound of such food you should not exceed that 10mg level--of course that is for the majority---there is always individual variability and some will tolerate more, others less

cap6 Enthusiast

A little over a year ago I attended a one day workshop led by Shelley Case, author of "The Gluten~Free Diet, A Comprehensive Resource Guide". She has worked extensively with both the U.S. FDA and Canadian version (CDR - I believe I have that correct) in regards to gluten free labeling. She is extremely well educated and knowledgeable when it comes to the Celiac disease. According to her, when a product is labeled gluten free, less than 20ppm, then the company has indeed tested for that. She further stated that the majority of company's do, in fact, test for less and most labeled products have far less than the 20ppm even tho not so stated on the label. A food product company does not want gluten free/celiacs to consume their product and then get sick. It makes sense. Eat a mislabeled product consumer get sick, they stop buying said product. The food companies want you to buy their product. A consumer also needs to keep in mind that when consuming a gluten free food product you are also consuming a list of other ingredients (maltodextrin, maltose, soy, xantham gum etc) any number of which can cause "glutend" type symptoms.

Also, if you safely consume a food product that has 5ppm but eat four or five more food products all containing the same 5ppm then you can exceed what is considered "safe" over the course of a day.

For what it's worth. For myself, everything Shelly Case had to say made perfect sense.

kareng Grand Master

A little over a year ago I attended a one day workshop led by Shelley Case, author of "The Gluten~Free Diet, A Comprehensive Resource Guide". She has worked extensively with both the U.S. FDA and Canadian version (CDR - I believe I have that correct) in regards to gluten free labeling. She is extremely well educated and knowledgeable when it comes to the Celiac disease. According to her, when a product is labeled gluten free, less than 20ppm, then the company has indeed tested for that. She further stated that the majority of company's do, in fact, test for less and most labeled products have far less than the 20ppm even tho not so stated on the label. A food product company does not want gluten free/celiacs to consume their product and then get sick. It makes sense. Eat a mislabeled product consumer get sick, they stop buying said product. The food companies want you to buy their product. A consumer also needs to keep in mind that when consuming a gluten free food product you are also consuming a list of other ingredients (maltodextrin, maltose, soy, xantham gum etc) any number of which can cause "glutend" type symptoms.Also, if you safely consume a food product that has 5ppm but eat four or five more food products all containing the same 5ppm then you can exceed what is considered "safe" over the course of a day.For what it's worth. For myself, everything Shelly Case had to say made perfect sense.

I don't think that last part is quite right. You don't add 5ppm + 5 ppm and it equal 10 ppm. It's 5 ppm in a million then another 5 ppm and its 999,995 non gluten ppm. So now you have 5 ppm in 2 million - each million contains 5. Maybe you could say you now have 10 parts per 2 million? But that is still, when reduced down, 5 part per 1 million.

I think Dr collatrella has done a good job of explaining it. This parts per million is hard to understand.

Edit - this doesn't even address if there are actually 5 ppm of gluten at all. The test can only say less than 10 ppm or 5 or 20. It doesn't say exactly " 2 ppm". So, returning to some basic math - <5. Could be 0 or 1 or 2 or 3 or 4 .

psawyer Proficient

A lot of unnecessarily complicated arithmetic can be trotted out when it comes to parts per million (ppm). Even if the content of everything you ate was 19 ppm, you would not ingest a level believed harmful on a normal diet. Two items at 5 ppm are the sum of the two items, still at 5 pm overall.

FranDaMan Apprentice

Sooo, per the GFWD posting it seems that there could be many boxes of contaminated cereal out there (how many boxes do they produce in 24 hrs?) but when averaged out the batch tests to under 20 ppm and is labeled as safe. I'm not liking my odds on this and I sure do miss Cheerios! I think I will continue to wait.

anthony colatrella Newbie

FranDaMan---think waiting is best---follow up with GFWD

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.