Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sensitive, Sore Skin- Feels Like Sunburn


Lisa16

Recommended Posts

Lisa16 Collaborator

From time to time I get this and I wonder if it is related to celiac disease. Does anybudy know?

There is no mark or rash on the skin at all and it lasts for a few days (2-4 days). It feels like a sunburn, and it is super sensitive (to, say, clothes rubbing against it.) The slightest touch feels like sandpaper. It happens maybe 2-3 times per year.

I googled it and found it appears to be quite common, but nobody seems to know what it is or what will help it. I saw lots of possibles: fibromyalgia, lyme, neuropathy, vitamin defiiciency (B 12) and even MS were mentioned. People report it on their arms, legs, back and torso.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Raven's Mum Newbie

OMG! I'm having this happen as we speak! It's been driving me crazy. It's along one side of my tummy and all the way around to my back on the same side. :o No clue what the heck it is but its the first time I've ever experienced it. Weird....

Lisa16 Collaborator

Another of the possibilities I saw was "post-herpatic" nerve pain from shingles. Gosh, I just don't know-- part of me kind of doubts that. Somebody else thought it could be a trapped nerve. And I do think it must have to do with nerves somehow. Yet mine doesn't feel that serious- just annoying really.

It is definitely an internal pain (under the skin)-- not from dry skin, say. Creams don't help. I tried vitamin b-12.

Mine is gone now (I think it just ran its course), so hopefully yours won't last very long. Mine was a "wrap around" pain too-- it got my right leg, then moved to the hip and into the small of the back.

I am very curious about this phenomenon. On the website where I found the long list of person after person who reported this pain, many of them mentioned going to the doctor for it and being met with blank stares or being treated like head cases. I have never told a doctor about it, even though it visits me on a fairly regular basis.

Sound familiar? It reminded me so much of the kind of reaction people here report getting when asking about celiac or related autoimmune disorders. And there are so many undagnosed celiacs out there-- I just wondered if there wasn't a link of some kind.

Thanks for replying to this. I saw lots of people had read it but nobody else seemed to know what I was talking about.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.