Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sensitive, Sore Skin- Feels Like Sunburn


Lisa16

Recommended Posts

Lisa16 Collaborator

From time to time I get this and I wonder if it is related to celiac disease. Does anybudy know?

There is no mark or rash on the skin at all and it lasts for a few days (2-4 days). It feels like a sunburn, and it is super sensitive (to, say, clothes rubbing against it.) The slightest touch feels like sandpaper. It happens maybe 2-3 times per year.

I googled it and found it appears to be quite common, but nobody seems to know what it is or what will help it. I saw lots of possibles: fibromyalgia, lyme, neuropathy, vitamin defiiciency (B 12) and even MS were mentioned. People report it on their arms, legs, back and torso.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Raven's Mum Newbie

OMG! I'm having this happen as we speak! It's been driving me crazy. It's along one side of my tummy and all the way around to my back on the same side. :o No clue what the heck it is but its the first time I've ever experienced it. Weird....

Lisa16 Collaborator

Another of the possibilities I saw was "post-herpatic" nerve pain from shingles. Gosh, I just don't know-- part of me kind of doubts that. Somebody else thought it could be a trapped nerve. And I do think it must have to do with nerves somehow. Yet mine doesn't feel that serious- just annoying really.

It is definitely an internal pain (under the skin)-- not from dry skin, say. Creams don't help. I tried vitamin b-12.

Mine is gone now (I think it just ran its course), so hopefully yours won't last very long. Mine was a "wrap around" pain too-- it got my right leg, then moved to the hip and into the small of the back.

I am very curious about this phenomenon. On the website where I found the long list of person after person who reported this pain, many of them mentioned going to the doctor for it and being met with blank stares or being treated like head cases. I have never told a doctor about it, even though it visits me on a fairly regular basis.

Sound familiar? It reminded me so much of the kind of reaction people here report getting when asking about celiac or related autoimmune disorders. And there are so many undagnosed celiacs out there-- I just wondered if there wasn't a link of some kind.

Thanks for replying to this. I saw lots of people had read it but nobody else seemed to know what I was talking about.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,860
    • Most Online (within 30 mins)
      7,748

    MEK5
    Newest Member
    MEK5
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.