Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Woe Is Me...just A Rant...

NorthernElf

By NorthernElf
in Coping with Celiac Disease

Recommended Posts

NorthernElf Enthusiast
NorthernElf
Posted

;) Just gotta get it out...I'm a pretty roll with the punches person but sometimes this just gets to me ! My folks are up for Thanksgiving...I'm 41 and I still have parent issues, LOL. I have my kitchen segregated for my gluten free life. I have an island on wheels where all the gluten stuff goes, food labelled in the fridge, pantry, and freezer that is mine/gluten free. This is my lifestyle & they have seen what happens to me when I get sick.

Last night my generous parents offered to buy supper (take out) and the options where Chinese food or pizza. The kids (I have 3) chose chinese food. I made steamed rice. I can handle this...I made my own food. It's the attitudes that get me. We're eating and my mom is going on about how good the chinese food is...and oh, how is your food ? The stuff is spread out all over the table and everyone goes into the living room to watch a show - I get to clean it up. Dear DH came in to help and I asked him to get it out of here (the garbage) so I didn't have to smell it anymore. He took out all the chinese food containers and the whole garbage (which I Lysoled). Ugh.

DH & I have talked about this earlier - he brought it up - about how he thought it was weird that my folks weren't very supportive of my gluten-free diet. When we go down to see them they have had supper ready for us - spaghetti or something else I can't eat. Now I guess I expect this at work and so forth & bring my own food but I guess one's family should be a bit more supportive !??!?!?!? I believe I would be more supportive of my own kids...heck, I know I would.

Oh well, what's a gal to do? Visits are short term...suck it up...roll with it...thanks for letting me vent !!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

My mom is currently mad at me that I won't go out to eat. " you can have salad, steak & baked potato". Yes I can but maybe not at that restaurant. I have tried to explain cc many times and have given up. I could go on and on but why waste this beautiful day? :)

stephsteph Newbie
stephsteph
Posted

It's too bad that they aren't more supportive of you, especially if they know gluten makes you sick. Maybe it's because they come from a time where people didn't talk about medical stuff, and you ate what was in front of you. Just keep doing what you're doing, and ignore them the best you can!

curiousgirl Contributor
curiousgirl
Posted

It's too bad that they aren't more supportive of you, especially if they know gluten makes you sick. Maybe it's because they come from a time where people didn't talk about medical stuff, and you ate what was in front of you. Just keep doing what you're doing, and ignore them the best you can!

I think family can be the worst because we expect, or hope for their support...others, not so much. Sounds like you have a very supportive husband...lucky girl!

MelindaLee Contributor
MelindaLee
Posted

Sorry they can't be more supportive. I agree, I would be too! Make sure hubby knows how much you appreciate his support.

K8ling Enthusiast
K8ling
Posted

Man, that bites. ((hug))

txplowgirl Enthusiast
txplowgirl
Posted

In a way i'm glad my dad's not here anymore because I can just see him shaking his head and going, "bulls**t, it's all in your head. Be glad you have something to eat". Oh boy. He was 1 of 11 who grew up during the great depression, they all picked cotton and ate whatever could be grown and shot. That included possum, squirrel, armadillo, snake, etc. He never let us forget it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted
:rolleyes: Your dad loved you and would have faced anyone trying to gluten you with a big fist, once he understood the harm it causes. The two of you could have made some tasty dishes, I imagine, from whatever protein he presented. A little olive oil, garlic, onion, celery, carrots, rosemary, possum. :rolleyes:
K8ling Enthusiast
K8ling
Posted

HA! Possum!

gf-soph Apprentice
gf-soph
Posted

It does suck that they aren't more supportive. I don't think you have to 'suck it up' in the sense that it doesn't matter, but you have to choose the best way to deal with the situation. If they haven't had much exposure to the diet and other issues, get them one of the books about it - sometimes it has more credibility coming from an independent source. However, if you've been gluten free for a while I think that it might be fruitless to expect more of them. When deciding how much it matters I would look at how they act in general. If they are otherwise loving and understanding, then maybe they are the sort of people who find it hard to understand certain illnesses. If there are other issues about them being inconsiderate or hurtful then it might be part of a bigger picture.

Also on a basic level even if they did get more understanding I wouldn't trust them to prepare any food for me, ever. I can't imagine them ever grasping the finer points of cross contaimination for example.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.