Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On Celiac Diet For A Year, Now I Have Joint Pain

imracin68j

By imracin68j
in Doctors

Recommended Posts

imracin68j Rookie
imracin68j
Posted

My 7 year old daughter was diagnosed with Celiac disease and my 50 year old mom died of intestinal cancer a year ago. I don't know if she had Celiac disease but alot of her symptoms lead me to getting my daughter tested. I have dealt with stomach issues for a while so I went gluten free along with my daughter. Many if not all of my symptoms have left but I have obtained joint pain. I feel like I'm getting joint deteriation. My wife has noticed joint issues as well, maybe not quite as bad as mine. She is gluten free now as well. Is there something in bread or flour that our joints/cartilage depends on? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

My 7 year old daughter was diagnosed with Celiac disease and my 50 year old mom died of intestinal cancer a year ago. I don't know if she had Celiac disease but alot of her symptoms lead me to getting my daughter tested. I have dealt with stomach issues for a while so I went gluten free along with my daughter. Many if not all of my symptoms have left but I have obtained joint pain. I feel like I'm getting joint deteriation. My wife has noticed joint issues as well, maybe not quite as bad as mine. She is gluten free now as well. Is there something in bread or flour that our joints/cartilage depends on? Thanks.

I would encourage you and your wife to have a full metabolic panel, if you have not done that. Your primary doctor can do that.

I assume that you know that being gluten free, will not render accuracy in testing. And gene testing can only indicate a pre-disposition. But, that can be a piece of the puzzle.

I have have joint and fluid issues in my joints, but dont' attribute those to Celiac. Not all road lead there.

But you have a history. I would contact a medical professional who is informed.

GFinDC Veteran
GFinDC
Posted

.... Is there something in bread or flour that our joints/cartilage depends on? Thanks.

I don't think there is anything in gluten that our joints depend on. If there were, every gluten-free person on this board would be having joint pain. I have had joint pain but it stopped when I got off nightshades. Other people have reported joint pain from nightshades also.

cassP Contributor
cassP
Posted

no, in fact- i believe that WGA (wheat germ agglutin- another troublesome protein in wheat, not gliadin)- actually plaques up the joints- and Glucosamine helps to bind up WGA- this may be why people find relief when taking glucosamine.

your new joint pain could be from other food intolerances- such as dairy, potatoes, corn, nightshades, or soy...

ORRRRR you could have a vitamin D deficiency- which is common these days- and even more common in those with gluten intolerance.

i just found out i am vit. d deficient... i get muscle spasms- and some joint stiffness- hoping my new supplements will make a difference.- go get tested

mushroom Proficient
mushroom
Posted

no, in fact- i believe that WGA (wheat germ agglutin- another troublesome protein in wheat, not gliadin)- actually plaques up the joints- and Glucosamine helps to bind up WGA- this may be why people find relief when taking glucosamine.

your new joint pain could be from other food intolerances- such as dairy, potatoes, corn, nightshades, or soy...

ORRRRR you could have a vitamin D deficiency- which is common these days- and even more common in those with gluten intolerance.

i just found out i am vit. d deficient... i get muscle spasms- and some joint stiffness- hoping my new supplements will make a difference.- go get tested

OORRR it is entirely possible that not eating gluten or nightshades or corn or soy, will not make the slightest bit of difference to your joint pain. I am gluten intolerant, and avoid all of the foregoing because I am also intolerant of them, but if I quit my Humira injections my rhematoid/psoriatic arthritis (with the psoriasis) comes roaring back, unfortunately. Maybe I got to it too late, maybe it is separate, maybe who knows???..... Maybe I am just unlucky? :(

GFinDC Veteran
GFinDC
Posted

Low thyroid, (hypothryroiditis) can also cause joint pain. I forgot the soy, that does a number on my joints too.

T.H. Community Regular
T.H.
Posted

There's nothing in bread or flour that joints depend on, to my knowledge. However, most gluten products are vitamin fortified and most gluten free bready products are not, so there could be some vitmin or nutrient that you WERE getting that you are now not.

However, I'm another who had joint pain AFTER going gluten free. For myself, it happens if I am getting low levels of gluten that aren't causing other issues - and that level has become lower the longer I'm gluten free - or I am eating some of the foods I'm allergic to.

I had no idea I was allergic to any foods before going gluten-free, and I was gluten-free a while before I started having symptoms. Most of them are NOT hives, but they do give me symptoms, and I tested positive on the allergy test to them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mcc0523 Newbie
mcc0523
Posted

With Ehlers-danlos syndrome, which causes joint pain, it's not uncommon to also develop Celiac/gluten-intolerance (I'm a member of several chronic illness message boards, and it's surprising the people who have both EDS and Celiac). If you have a history of being hypermobile/flexible in your joints (even if they aren't now... ironically hypermobility can turn into extremely stiff joints later in life due to joint damage and wear), and also have skin issues, like it is stretchy, very soft, and you get atrophic or cigarette paper scars, you should look further into this. There are further complications that can sometimes occur with EDS.

dilettantesteph Collaborator
dilettantesteph
Posted

Sometimes we get more sensitive to gluten when we stop eating it. Sometimes we notice symptoms which we didn't notice before. I had joint pain before diagnosis which went away gluten free. It comes back fairly easily when I get trace gluten consumption. It is possible that there is still enough gluten in your diet to be causing joint pain.

GFinDC Veteran
GFinDC
Posted

hey, thanks for the advice .. You really help me here to find out he problem.

Welcome to the site Anneparker! :)

  • 2 weeks later...
Marilyn R Community Regular
Marilyn R
Posted

My 7 year old daughter was diagnosed with Celiac disease and my 50 year old mom died of intestinal cancer a year ago. I don't know if she had Celiac disease but alot of her symptoms lead me to getting my daughter tested. I have dealt with stomach issues for a while so I went gluten free along with my daughter. Many if not all of my symptoms have left but I have obtained joint pain. I feel like I'm getting joint deteriation. My wife has noticed joint issues as well, maybe not quite as bad as mine. She is gluten free now as well. Is there something in bread or flour that our joints/cartilage depends on? Thanks.

I had a follow up visit with my PCP today for results on blood tests that my new endocrinologist ordered. One test was an ENA Screen which was ordered in conjunction with an ANA Screen. (It was to rule out Lupus and RA, according to the endo.) My PCP told me I have above normal RNP Antibodies, which means that I have Mixed Connective Tissue Disease. (MCTD.) They want me to consult with a Rheumatologist.

Anyway, I looked up MCTD when I got home and usually Joint Pain is a chief complaint. I haven't had joint pain, but thought you might want to request that bloodwork from your physician. ANA (Antinuclear antibodies) Screen, DNA, ENA Screen. I was more impressed with this Endocrinoligist than my first one, who is affiliated with one of those prestigious medical clinics.

The first Endo didn't order these tests, so I don't know if going gluten-free had any impact. I did a perfunctionary search to see if the two were related in medical studies but didn't come up with anything showing a correlation.

Hope this helps. I'm so sorry you lost your mom at such an early age, and wish the best for you and your family.

Marilyn R Community Regular
Marilyn R
Posted

Oops. I didn't search the forum before I posted my response. I highly recommend doing so...I'm not sure if I'll schedule the Rheumy appt. now. I refused to have my PCP office schedule it, because I wanted to check it out some more. Anyway, search "Mixed Connective Tissue Disorder" on the forum. Everything I've read supports the gluten-free diet. :)

applegirl03 Rookie
applegirl03
Posted

I was having a lot of the symptoms your describing...mine ended up being a massive yeast infection in my digestive tract (Candida) after a month of diflucan I felt much better and my joint pain was gone. I know you are seeing a Rhuemotologist, but doing an all natural yeast cleansing couldn't hurt at this point. You can pick them up at your local natural food store, really helped my symptoms, hope it helps you!

  • 1 month later...
BoppinRobin Newbie
BoppinRobin
Posted

Remember that just eating gluten free is not enough. I couldn't figure out why I would still have bouts of gut pain, joint pain, lethargy and D... Even after 10 yrs of eating gluten free (nothing processed- all whole, home made by me) a friend pointed out my cleaning products and personal care items were not gluten-free. This is my 6 th week of TOTAL gluten-free and I'm feeling much better!

Toss any product that does not say gluten-free on the label. Shampoo, soap, laundry items, cleaners. Make-up too.

psawyer Proficient
psawyer
Posted

Toss any product that does not say gluten-free on the label. Shampoo, soap, laundry items, cleaners. Make-up too.

I would respectfully suggest that this is an extreme position. Most non-food products that are, in fact, gluten-free are not labeled as such. That doesn't mean they are not suitable for use by us.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.