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Plasma Donation - Celiac's Sought

Mari
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Mari Contributor
Mari
Posted

Welcome To PPA

Physician's Plasma Alliance is made up of healthcare professionals collecting and distributing specialized blood/plasma and other biological products throughout the world

www.physiciansplasma.com

Follow the link to find out all the diseases they are interested in and more information. I have not written them to ask what the plasma will be used for but since plasma is not used in the treatment of celiac disease it will probably be sold and used in research. I am over 65 so can't be a donor.

I'm not spamming this company, just thought some people might be interested.

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Skylark Collaborator
Skylark
Posted

It definitely says it's for research. "Even one donation could aid in the researcher's effort of developing more effective testing or finding a cure."

I imagine they need plasma from celiacs who are newly diagnosed and still eating gluten though. There wouldn't be antibodies from folks on a gluten-free diet.

"Once the products are successfully collected, in most cases you will be compensated several hundred dollars for your donation." Wow! Pity they're not looking for Hashmimoto's. I could sell them plenty of auto-antibodies.

kareng Grand Master
kareng
Posted

I didn't see Celiac on the list. I would think they would only want it if you have active antibodies? Unless they are looking ofr genetic markers?

GFinDC Veteran
GFinDC
Posted

They do have celiac listed, but don't seem to say anything about active antibodies. Seems like they could have paired celiac up with Crohn's instead of hemophilia.

I suppose if someone contacted them they would say if they need people with active antibodies. I guess we all know how to get active antibodies pretty quickly. Doesn't really seem worth it though.

http://www.physiciansplasma.com/donor.php

Other Disease Types Needed

Rheumatoid Arthritis(Severe) -H - Pylori

Lupus -ANA Positive,

Anti -SSA, -Anti-SSB

Nephritis -Cancer All types

Hemophilliac -Celiac Diseases

Diabetes -Crohn's

Cardiac Diseases -Alpha-1 Antitrypsin Deficiency

Glomerular Basement Membrane

sherrylynn Contributor
sherrylynn
Posted

They do want you to have antibodies so if you are gluten free they will not want your plasma. Also for other diseases if you start treatment, they want your plasma within a few weeks of diagnosis so you will still have antibodies.

  • 7 years later...
Cheryl H. Newbie
Cheryl H.
Posted

You could still donate if you're gluten free if you have refractory celiac. 

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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