Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crap! I Was Gluttened....


pain*in*my*gut

Recommended Posts

pain*in*my*gut Apprentice

So I have been gluten free for 2 weeks, and in those 2 weeks I have been very careful with what I eat. I have not eaten out once, for fear of cc. I have had an AWESOME response to the diet!! No gas, cramps, bloating...it's like I had a stomach transplant!!! :D

So, today I got brave and went to Whole Foods and decided to try something different from their prepared foods deli area. I got a quinoa sweet potato patty with wild rice. I asked the lady behind the counter if it was gluten free, and she said yes, but they cannot guarantee anything because they have no designated gluten-free prep area. Annoying, because I thought they were all about alternative eating (vegan, dairy-free, etc.) and since they carry a lot of gluten-free stuff they should be aware of Celiac, right? Not so much...

It's been about 4 hours since I ate the patty (it was gross, BTW), and I have horrible smelly painful gas and nausea. My vision is extremely blurry tonight as well, which was a symptom that had gone away with the gluten-free diet. So, I guess it either had gluten in it and it wasn't listed, or it's cc. Either way, I am screwed. :(

I guess you really don't know how sensitive you are to cc until you experiment, right? For the record, my biposy was normal (my blood work was NOT normal), so I guess I don't "officially" have Celiac disease in my ignorant GI's opinion, but gluten makes me pretty darn sick!!

Ugghh...this stinks.....literally..... :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Oh....I've been there and done that. I'm so sorry you found out firsthand how dangerous prepared foods can be. I got cc'd on Sunday when I wanted to treat myself to something special--I bought some ginger snap cookies from Trader Joe's. They're supposed to be gluten free (at least, that's what the package says), but I was sicker than a dog on Monday....though I still had to go to work. I really do try to stay away from any processed foods because it's just not worth the risk of getting cc'd.

Hopefully, you'll feel better soon....

AVR1962 Collaborator

It takes awhile to figure out. I went to eating no boxed foods, no frozen entres, no fast food and no canned foods. Went I ate out it was salads, and still mostly is. Read every label. Amazingly I found wheat flour listed in my cookiung spray, in one of my favorite churizo sausage, in marinades, some ice cream and candy. Once your diet it tight and still get to feel bad and know it could not have been gluten then you have to figure what else could be giving you issues. I cannot eat high fructose, effects me like glutens.....it's in BBQ sauce, ketchup, candy, some drinks. One of my daughters cannot tolerate soy which in alot including mayo.

I have tried some of the gluten free products you can buy off the shelf like bread and cookies, and there is just something about them that does not set well with my stomach. It is not a gluten reaction, just like a yuck in my stomach so I don't eat them. I have done well with the mixes that are gluten-free and the pastas....I think it is alot of trial and error til you get it figured out.

dilettantesteph Collaborator

I guess you really don't know how sensitive you are to cc until you experiment, right?

So true. I still keep finding out.

I hope you feel better soon. As time goes on you do heal more quickly.

MaryJones2 Enthusiast

I don't trust anything prepared from Whole Foods. I'm always surprised how unaware they are of gluten-free in that dept as they label everything vegan, etc.

Bubba's Mom Enthusiast

I'm so sorry they got ya! :(

I don't feel safe eating anything I haven't made myself.

It seems when you first go gluten-free you aren't as reactive to cc because your system is tired from fighting the gluten you were getting on a regular basis. As time goes on those immune "soldiers" are rested up and even a small trace will have them up and fighting it in full force.

All you can really do is use this as a learning experience and go from there. It really stinks that you're trying to be so careful and you can't trust those in the food business to be aware and careful of cc! :o

Skylark Collaborator

I don't know about your Whole Foods, but at mine employees are very specific that their prepared gluten-free foods are not safe for people with celiac disease. I don't see the point of gluten-free pizza, sandwiches, and salads if they're not celiac-safe but I guess there are enough people who are "gluten lite" that it helps their business.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I don't trust anything prepared from Whole Foods. I'm always surprised how unaware they are of gluten-free in that dept as they label everything vegan, etc.

I think it really depends on the store and the education level of the employee's. The 2 Whole Foods I frequent are phenomenal about cc in their prepared foods section even though they have the same CYA statement on their prepared foods. They would have to as it's not a dedicated facility. The stores I go to have employees that work those sections that have more food issues than I do so I trust their judgment when I ask the appropriate questions and I have never been glutened by anything I have eaten there.....in 6 years. I am extremely sensitive also and don't usually buy from shared facilities. I also use common sense when making purchases and wouldn't eat something that has been placed too close to the wheat stuff. I live in an area of the country which has really high awareness so that helps make a difference.

gigifree Rookie

Whole foods is horrible! When I first went gluten-free-free (though not carefully) to see if I have a gluten intolerance, I would get prepared chicken and salads there. I never got better.

To make things worse, I went in looking for a multi-vitamine with iron that was gluten-free and the girl gave me a supplement that had gluten in it. Of course, I got nauseous, threw up and got sicker. Stay away from whole foods. Trader Joe's and henry's, I have has better luck with.

  • 1 month later...
norcal-gf Newbie

I got "Gluttened" at Costco recently. They were giving out samples of Apple/Raspberry Juice that was suppose to only contain those ingredients. But hours later after drinking the juice I had a horrible stomach pain and the usual bathroom problems that followed. When I looked at the ingredients on the label they added "natural flavoring" which now I know to stay away from! No more samples of anything at grocery or supermarkets or Costco for me.

mushroom Proficient

Hopefully, you can still sample the wine :D

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.