Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Fair!


luvs2eat

Recommended Posts

luvs2eat Collaborator

No more wheat, rye, barley, and sometimes oats was rough, but I've done it for 10 years. It's a no brainer. If I can't cook it myself, I don't eat it. It really wasn't that hard.

Years later, it became pretty obvious that dairy doesn't like me much anymore. That's been MUCH harder. You can't recreate cheese and butter. I avoid it as much as possible, but do eat it sometimes.

Now, I can no longer deny that alcohol doesn't like me anymore either. Now I'm starting to feel sorry myself. This is not fair!!

Yea, I know... but I can't even have cheese with my whine!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sahm-i-am Apprentice

Oh My Word! I am so sorry!! I've been gluten-free for 1 1/2 years now and finally adjusted.

Yeah - it isn't fair. I mean, why after 10 years is this just now showing up???? God, that is scary and frustrating. For 10 years you have been

faithful and diligent and NOW you get other issues? What the heck??? I am soooooo sorry! I can't offer advice but I can give a cyber hug.

On a brighter note - Enjoy Life makes dairy free chocolate! :)

Feel for you,

Wendi

bigbird16 Apprentice

Ugh. I know the feeling of finding one more thing. Last week I realized sorghum is off my safe list. That means no more Bard's Tale beer (or any other gluten-free beer). May I suggest as a decadent treat, a wheel of Dr. Cow aged cashew nut cheese? On your favorite rice crackers (or as plain wedges) it tastes like the honest to goodness memory of cheese. It has tang and bite like cheddar. It spreads. It contains only nuts, salt, and acidopholus. It's expensive, but sometimes one just plain deserves it. Go get you some cheese for your whine! :)

Poppi Enthusiast

That sucks. I would have myself a serious cry if my body started rejecting dairy.

I can't drink coffee. I feel glutened for 3-4 hours if I do. I have honestly found going without coffee almost as hard as being gluten free. Obviously it's easy to avoid but I don't drink alcohol so coffee was my social drink (not to mention my delicious way to wake up in the morning).

AVR1962 Collaborator

Have you tried aged cheese? Or lactose enzymes? Dairy was my hard one too, subs just do not work as they have too much other stuff in them that I react to. I hear you with the alcohol. I have had to stay away from it myself and I used to dearly love cooking dinner, munching on some wonderful cheese while sipping on wine. I have had to limit myself one glass twice a week! You'd think I'd lose weight with all I have cut out of my diet, hum??

Leper Messiah Apprentice

I agree this completely limits your options - I have to avoid dairy, soy, gluten obviously and bloody corn too which is even worse than dairy at limiting your food options as almost all gluten free foods contain at least some 'maize' or other corn derivative and that includes multivitamins. So in essence, I empathise entirely!!

Just out of interest how did you determine dairy was problematic? What are your symptoms?

Alcohol will generally be bad to all persons due to the fact it is a mild diuretic, gets into every cell of your body and let's not beat about the bush here...a poison, however mild or tolerated. I would expect you to cope with this relatively mild stress unless you are in the middle of a gluten reaction, where your body - specifically your adrenal glands - are having to deal with all the inflammation caused by your reaction. On top of other things, such as stress generally in your life, your adrenals may be struggling to keep up.

I can't drink any alcohol in the 2 weeks of my reaction, after-which my resistance goes back to a level I would consider normal. I know you say you've been gluten-free for 10 years, and have a lot more experience than me, but I thought it might be helpful to add.

Another thought could be leaky gut, but after 10 years of being gluten-free I think this is doubtful. I would hypothesise that most leaky gut is caused by the reaction to gluten and for any other chronic inflammatory stomach/gut/bowel diseases.

mommida Enthusiast

It is hard with more restrictions, but you can do this.

First try probiotics to make sure you gut is as healthy as possible. (I think alcohol and cheese are harder on your gut when there is a yeast overgrowth.)

If these foods are really out it is time to concentrate on what you can have. Hummus can have "creamy" cheese texture, and a good source of protein. I really love The Allergen-Free Baker's Handbook, by Cybele Pascal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

There was a poster here a while back who figured out a gluten-free diet can be low in molybdenum (grains are a major source), which is needed to metabolize alcohol properly. He started on a trace mineral supplement and recovered better alcohol tolerance. Maybe it will help you. B)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - YoshiLuckyJackpotWinner888 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Reverse Osmosis (RO) Water

    2. - YoshiLuckyJackpotWinner888 replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    3. - YoshiLuckyJackpotWinner888 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Water filters are a potential problem for Celiac Disease

    4. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

    5. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      39

      Blood results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,570
    • Most Online (within 30 mins)
      7,748

    Chanty
    Newest Member
    Chanty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      I found out the hard way that water filters can have starch binders that bind the charcoal used in the filter.  Grain starch or gluten can be present in the filter. I’ve been exposed and had reactions.  Steam distilled water is safe.  Not all places have the distilled gallon containers commonly sold, but smart water is steam distilled and has been safe so far.
    • YoshiLuckyJackpotWinner888
      I was diagnosed celiac 5 years ago. I know for certain that casein, grains, beans, seeds, and some other famous lectin issue foods are problems for me. When I was newborn, I had a huge issue with intolerance to milk. Five years ago before my celiac diagnosis, I had Irish cheddar cheese sold by Kerrie and it felt like an explosion in my intestines. I’m not sure if the casein was worse or the naturally occurring cheese mold in aged cheddar did it. I am IgG sensitive to yeast. Casein, yeast, or mold in the cheese might have been part or equally bad.
    • YoshiLuckyJackpotWinner888
      We really need to become more aware of this. When I first had my celiac diagnosis 5 years ago, I searched out all possible sources of gluten.  I only recently became aware of filtered water being a potential source of gluten and other grain starch contamination. Gluten exposure in the past, for me, has brought upon distinct repeatable points of bodily pain which I am now aware of. If I purposely expose myself to gluten, I seem to have antibodies attack certain areas of my body which cause this reaction within 30 minutes of exposure. I can tell rather quickly if I was exposed and it never happens, unless gluten is present. In the past 5 years since my diagnosis , I may have noticed occasional pains or odd sensations after drinking bottled water that was filtered.  It never made sense to me why this was happening.  A few months ago I was at a gas station and purchased a Gatorade filtered water bottle product. Within 30 minutes, I had pains associated with gluten exposure that I had not felt for years. I knew it had to be the water bottle contents because nothing else was consumed all day. This was a wake up call for me. I searched and found out a thread about water filters containing starch binders to bind charcoal, which is used commonly, and I found out that grains are potentially used for the starch source.  Gluten is in certain grains, and according to a study in the past two years, many grain proteins and casein from dairy can cross react with celiac. This Gatorade water bottle had water that was likely filtered with a filter that may have had actual gluten. I am also sensitive to the other cross reactive proteins from grains and casein, but the pains that day were distinct. I can absolutely tell the difference if I come into contact with corn or other grains. The reaction is different. My point is bottled water that has been filtered can potentially be exposing us, if they use starch binders from grain products. We have no real practical way of knowing what water filters may have inside of them, unless a law requires disclosure on the label. This is not only going to affect bottled water, but also all products that were made with filtered water. Since cross reactions to other grain proteins is now a real issue, simply stating  gluten free is not enough. How can you know if your store bought lemonade does not have filtered water with gluten or other grain protein contamination?  Did that kombacha you just drank happen to have filter contamination of corn and you suddenly feel a headache and odd chest pains? Distilled water may be the only safe bottled water. We can’t trust water filters until the law changes and requires processing plants to disclose these contaminants.  I don’t ever have a problem with distilled water as long as it was steam distilled.  Regular bottled water has set off noticeable sensations and pains over 5 years of observing these. The Gatorade water was the worst and most alarming.  Stay safe. 
    • knitty kitty
      @Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly.  A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly.  It's very rare to have only one or two low vitamins in Celiac Disease.  B vitamins are water soluble, so any excess is easily excreted in urine.  Tingling in feet and hands is symptomatic of deficiencies in B vitamins like thiamine, Pyridoxine, and niacin. September 19 2025, "Your daughter needs to be checked for Vitamin B12 deficiency as soon as possible!   The nitrogen compounds in anesthesia can precipitate a B12 deficiency resulting in severe depression.  Please have her checked immediately! The nitrogen compounds in anesthesia (both gas and injected anesthesia) bind irrevocably with the Cobalt in Cobalamine Vitamin B12.  This precipitates a B12 deficiency in people with a low B12 level.  This can happen immediately, within days or weeks or months depending on B12 stores.    I've had medical procedures that required anesthesia and been struck down by deep dark depression and uncontrollable crying immediately, and also within weeks of the exposure.  My doctor put me on antidepressants which only made things worse.  Antidepressants don't correct a vitamin deficiency.   Please have her checked for B12 deficiency as soon as possible!"  
    • knitty kitty
      I'm so glad your daughter got her B12 level checked at last!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.