Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Fair!


luvs2eat

Recommended Posts

luvs2eat Collaborator

No more wheat, rye, barley, and sometimes oats was rough, but I've done it for 10 years. It's a no brainer. If I can't cook it myself, I don't eat it. It really wasn't that hard.

Years later, it became pretty obvious that dairy doesn't like me much anymore. That's been MUCH harder. You can't recreate cheese and butter. I avoid it as much as possible, but do eat it sometimes.

Now, I can no longer deny that alcohol doesn't like me anymore either. Now I'm starting to feel sorry myself. This is not fair!!

Yea, I know... but I can't even have cheese with my whine!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sahm-i-am Apprentice

Oh My Word! I am so sorry!! I've been gluten-free for 1 1/2 years now and finally adjusted.

Yeah - it isn't fair. I mean, why after 10 years is this just now showing up???? God, that is scary and frustrating. For 10 years you have been

faithful and diligent and NOW you get other issues? What the heck??? I am soooooo sorry! I can't offer advice but I can give a cyber hug.

On a brighter note - Enjoy Life makes dairy free chocolate! :)

Feel for you,

Wendi

bigbird16 Apprentice

Ugh. I know the feeling of finding one more thing. Last week I realized sorghum is off my safe list. That means no more Bard's Tale beer (or any other gluten-free beer). May I suggest as a decadent treat, a wheel of Dr. Cow aged cashew nut cheese? On your favorite rice crackers (or as plain wedges) it tastes like the honest to goodness memory of cheese. It has tang and bite like cheddar. It spreads. It contains only nuts, salt, and acidopholus. It's expensive, but sometimes one just plain deserves it. Go get you some cheese for your whine! :)

Poppi Enthusiast

That sucks. I would have myself a serious cry if my body started rejecting dairy.

I can't drink coffee. I feel glutened for 3-4 hours if I do. I have honestly found going without coffee almost as hard as being gluten free. Obviously it's easy to avoid but I don't drink alcohol so coffee was my social drink (not to mention my delicious way to wake up in the morning).

AVR1962 Collaborator

Have you tried aged cheese? Or lactose enzymes? Dairy was my hard one too, subs just do not work as they have too much other stuff in them that I react to. I hear you with the alcohol. I have had to stay away from it myself and I used to dearly love cooking dinner, munching on some wonderful cheese while sipping on wine. I have had to limit myself one glass twice a week! You'd think I'd lose weight with all I have cut out of my diet, hum??

Leper Messiah Apprentice

I agree this completely limits your options - I have to avoid dairy, soy, gluten obviously and bloody corn too which is even worse than dairy at limiting your food options as almost all gluten free foods contain at least some 'maize' or other corn derivative and that includes multivitamins. So in essence, I empathise entirely!!

Just out of interest how did you determine dairy was problematic? What are your symptoms?

Alcohol will generally be bad to all persons due to the fact it is a mild diuretic, gets into every cell of your body and let's not beat about the bush here...a poison, however mild or tolerated. I would expect you to cope with this relatively mild stress unless you are in the middle of a gluten reaction, where your body - specifically your adrenal glands - are having to deal with all the inflammation caused by your reaction. On top of other things, such as stress generally in your life, your adrenals may be struggling to keep up.

I can't drink any alcohol in the 2 weeks of my reaction, after-which my resistance goes back to a level I would consider normal. I know you say you've been gluten-free for 10 years, and have a lot more experience than me, but I thought it might be helpful to add.

Another thought could be leaky gut, but after 10 years of being gluten-free I think this is doubtful. I would hypothesise that most leaky gut is caused by the reaction to gluten and for any other chronic inflammatory stomach/gut/bowel diseases.

mommida Enthusiast

It is hard with more restrictions, but you can do this.

First try probiotics to make sure you gut is as healthy as possible. (I think alcohol and cheese are harder on your gut when there is a yeast overgrowth.)

If these foods are really out it is time to concentrate on what you can have. Hummus can have "creamy" cheese texture, and a good source of protein. I really love The Allergen-Free Baker's Handbook, by Cybele Pascal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

There was a poster here a while back who figured out a gluten-free diet can be low in molybdenum (grains are a major source), which is needed to metabolize alcohol properly. He started on a trace mineral supplement and recovered better alcohol tolerance. Maybe it will help you. B)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

    2. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      39

      Blood results

    3. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

    4. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,567
    • Most Online (within 30 mins)
      7,748

    Ryan20
    Newest Member
    Ryan20
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly.  A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly.  It's very rare to have only one or two low vitamins in Celiac Disease.  B vitamins are water soluble, so any excess is easily excreted in urine.  Tingling in feet and hands is symptomatic of deficiencies in B vitamins like thiamine, Pyridoxine, and niacin. September 19 2025, "Your daughter needs to be checked for Vitamin B12 deficiency as soon as possible!   The nitrogen compounds in anesthesia can precipitate a B12 deficiency resulting in severe depression.  Please have her checked immediately! The nitrogen compounds in anesthesia (both gas and injected anesthesia) bind irrevocably with the Cobalt in Cobalamine Vitamin B12.  This precipitates a B12 deficiency in people with a low B12 level.  This can happen immediately, within days or weeks or months depending on B12 stores.    I've had medical procedures that required anesthesia and been struck down by deep dark depression and uncontrollable crying immediately, and also within weeks of the exposure.  My doctor put me on antidepressants which only made things worse.  Antidepressants don't correct a vitamin deficiency.   Please have her checked for B12 deficiency as soon as possible!"  
    • knitty kitty
      I'm so glad your daughter got her B12 level checked at last!  
    • Heatherisle
      Hi  Daughter finally had her B12 checked and her level was 30, normal range 180-200 so GP has prescribed medication for 4 weeks then further blood test so that probably accounts for how awful she’s been feeling recently. Folate was 2.2 just below the range of 3.0 - 20 so will need folic acid. Think iron levels were borderline but don’t know the numbers. Not sure if it was Ferritin levels they did. History of haemochromatosis in family , my husband has it and other daughter is a carrier. She still has a few more blood tests to be taken including Vit D levels. Has had deficiency in that last year and had 6 month course as had back pain and tingling in feet and hands. Anyway thank you everyone for all your previous replies and help!!!!
    • knitty kitty
      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.