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Went To My First Family Get Together Since Dx


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23 replies to this topic

#1 Bubba's Mom

 
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Posted 13 May 2012 - 07:05 AM

Yesterday I went to my first family get together since DX last July. It was for my Niece's daughter's first Birthday.

I thought "no big deal" I can handle being around cake and ice cream. I'll just take a Krispy Treat to eat. I am gluten, soy, and dairy free.
We got there and found out it was a much bigger party than we thought. There were 80 people invited and there was a buffet for lunch. Croisants with chicken salad, macaroni salad, taco salad, Cheeseball and crackers, mac and cheese, heavenly hash, cupcakes, cake balls, big chocolate chip cookie with icing, and beer keg.
There was a plate with a few pickles, and a few grapes and strawberries used mainly as a garnish.

I ate 3 strawberries, 4 grapes ( I don't like grapes..it's a texture thing) and a pickle. ..and my Krispy Treat. A guest that arrived after the food had been set out brought a jug of sangria. She insisted I try it. I don't usually drink alcohol, or eat citrus, but I poured about an inch or so of it it my Solo cup and sipped on it.

By that time I was ready to gnaw my own arm off I was so hungry and there was food everywhere around me. Little kids carrying around half eaten cupcakes with frosting and crumbs being spread everywhere. People all around me were pigging out on foods I couldn't touch with a ten foot pole. It was really hard to handle, and once I got home I started feeling ill. Of couse my mind went to how I might have gotten gluten.

The fruit may have been handled after the croisant sandwiches were made? The citrus in the sangria was probably sliced on a cutting board that had cc? Rookie move! I got D, which is the opposite of what I usually have. I'm wondering if it was the alcohol or citris that might have "got' me rather than gluten because I don't feel too bad today?

I guess next time I should just pack food and have it in the car if needed?

I taked with my niece who was half heartedly watching her 2.5 year old daughter who was just diagnosed with PICA and anemia. She had been eating toilet paper and stones, which is why she was taken to the Dr. The little one was put on a strong iron supplement, and her Mom was told not to give her milk.

Right after our conversation the little one came up to the patio table with several stones in her hand. My neice took them away and gave her a piece of cheese. I asked about it, since she was told not to give her daughter milk. She said they just told her to not give her milk. It seemed to me like all dairy should be taken away if they're suspecting villi damage? :blink:

I asked if they tested for Celiac and my neice said she didn't know what tests they ran. She hadn't gotten the results back yet. She acted like it was no big deal at all. I hope once the tests come back they educate her better or that poor child is going to be in trouble?
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#2 sandsurfgirl

 
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Posted 13 May 2012 - 07:36 AM

I have a cooler bag that looks like a cute purse. It's Rachel Ray brand. They sell them at Target and I've seen them at Costco occasionally.

I also have stainless steel food containers that can hold hot food and be wrapped in a little towel.

Bring your own food in a cute bag and nobody will know the difference. People aren't usually watching what's on your plate, especially at a big party.

If you just sneak off to a corner with a plate and fork, you can transfer the food to your own plate discreetly and then join the party to eat it.

I always keep Betty Crocker and Gluten Free Pantry cake mixes in my cupboard so I can whip up cupcakes if I need to. There is a little cupcake holder at Bed Bath and Beyond that is shaped like a cupcake and holds one of them neatly in your purse. I have to plan ahead for parties because my 7 year old has celiac too and I don't want him left out.

I've brought hot pizza to a pizza party wrapped in foil in my cute cooler bag plenty of times. People don't care and most of them don't notice.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#3 sandsurfgirl

 
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Posted 13 May 2012 - 07:38 AM

Another thing I do is ask what they're serving so I can match it. If they're doing croissant sandwiches I make my own gluten free version and bring it so my food looks like what they're having and I can enjoy an eating experience.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#4 IrishHeart

 
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Posted 13 May 2012 - 08:40 AM

By that time I was ready to gnaw my own arm off I was so hungry and there was food everywhere around me.

I guess next time I should just pack food and have it in the car if needed?



Hon, I would never, ever go to something like that and not bring my own food. Or eat before I went. Or both. :)

Huge CC factor--and all you had left to eat was some fruit and alcohol?

Time to assemble a "to go" kit!!
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#5 rosetapper23

 
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Posted 13 May 2012 - 11:00 AM

I just wanted to add that you also need to be careful about kissing Aunt Marge, Grandma, and any and all nieces and nephews because they're sure to have gluten on their lips, cheeks (where they've been kissed by others), and hands. People will understand if you air-kiss or hug tightly rather than give a big smooch. Be sure to carry wipes with you to clean off those well-intentioned, loving kisses on your cheeks, too, because if you touch your cheek and then your lips, you'll be sorry. Big parties can present huge challenges to very sensitive celiacs.

Regarding your niece, good luck there! I've been trying to get my brother to see that both of his kids show symptoms of celiac, but he and his wife have no interest in discovering that they have children who might have to eat restricted diets. My sister's oldest daughter had to wait until she was 18 and out on her own before she could start eating a gluten-free diet because her mom just couldn't accept that her daughter was anything but perfect (and, of course, she's perfect anyway!). Perhaps parents nowadays are so extremely busy, they cringe at the thought of experiencing yet another challenge in their lives. Keep advocating for your niece, though, because who knows? She might get lucky and end up on a gluten-free diet, thanks to you!
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#6 sandsurfgirl

 
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Posted 13 May 2012 - 11:29 AM

I just wanted to add that you also need to be careful about kissing Aunt Marge, Grandma, and any and all nieces and nephews because they're sure to have gluten on their lips, cheeks (where they've been kissed by others), and hands. People will understand if you air-kiss or hug tightly rather than give a big smooch. Be sure to carry wipes with you to clean off those well-intentioned, loving kisses on your cheeks, too, because if you touch your cheek and then your lips, you'll be sorry. Big parties can present huge challenges to very sensitive celiacs.


You must have a very kissy family! LOL My family would look at me like I was nuts if I kissed them. We hug but that's as far as it goes.

Now my children, I kiss them all the time and my 4 year old knows not to gluten me. She washes her face after eating gluten. We are a totally gluten free house, so it's only when we are out that she eats it.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#7 rosetapper23

 
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Posted 13 May 2012 - 11:37 AM

Ha ha! Yeah, you're right--I do have a rather kissy family! Point well taken...
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#8 Bubba's Mom

 
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Posted 13 May 2012 - 12:15 PM

Hon, I would never, ever go to something like that and not bring my own food. Or eat before I went. Or both. :)

Huge CC factor--and all you had left to eat was some fruit and alcohol?

Time to assemble a "to go" kit!!

I had NO idea it was going to be such a big party. Usually in our family we just get together to celebrate the kids' birthdays by having ice cream and cake, a few gifts, a little chatting and we're off on our way.

A get-together like this has perils I hadn't thought of...like "safe" fruit that may have been handled by gluteny hands, and cc cutting boards didn't even come to mind until after I got home. :blink:

This was a learning experience for me, that's for sure. I couldn't believe how scary it was to be surrounded by people eating so many gluten foods.

My Brother-in-law is from a kissy family. When we went to leave there he stood with his beer in hand..and said "give us a kiss". I turned my head just in time or he would have gotten me! LOL

While we were sitting around the patio table, one of my nieces who's a nurse said "so..you can only eat white bread now"? It's scary that people in the medical field don't know about gluten.
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#9 sandsurfgirl

 
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Posted 13 May 2012 - 09:56 PM

Ha ha! Yeah, you're right--I do have a rather kissy family! Point well taken...


LOL!! I'm a bit of a germaphobe and I shudder at the thought of all those people kissing me. Yikes!

When the pastor stands at the door after church I wash my hands if I shake his hand. He shook hands with all those people and who knows who is sick, who didn't wash after the bathroom, etc. It grosses me out so bad! I make my DH and kids wash their hands after too. Honestly I don't like shaking people's hands.

It's from years of being so sick all the time. I had many sinus infections and bronchitis from celiac and it made me freaky about germs. I never got over it.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#10 sandsurfgirl

 
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Posted 13 May 2012 - 10:04 PM

I was going to put links to the items I have that are great for taking your food and keeping it hot but I forgot we can't link to that site where you buy things online because it was banned.

I use a few different things.

I have a small thermos for soup or pasta, etc.
Small stainless steel containers. If you search for them on a certain site there are a whole bunch of different ones.
Tiffins are great little stainless steel bento box type containers in one or two layers. I just ordered some of those.
Mr. Bento or Ms. Bento keeps food hot or cold for hours and hours.

All those containers aren't cheap but they will last forever. You don't want to carry hot food in plastic. Dangerous with the leaching chemicals. We don't use plastic at all in our house for food storage.

There is a microwave gel pack you can put in the cooler to keep hot food hot. Coolers are not only for cold food.

The BEST thing I've used for hot food is to heat bricks wrapped in foil in the oven, put them on a towel in the cooler and then the food on top in stainless steel or foil if its' solid like pizza. Then put towels over all of it and seal up the cooler. Keeps it smoking hot for hours. I put pizza in that contraption out of the oven and took it to a party. 2 hours later it was steaming when I unwrapped it and tasted so great nice and hot. I'm going to try breaking up a brick into smaller pieces for small meals and see if it works. Must heat in the oven, not in microwave!!!!
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#11 Bubba's Mom

 
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Posted 14 May 2012 - 04:07 AM

You know, I guess I never thought of the cooler being used to keep things hot? It's insulated so should work great? A heated brick is really clever!

I'm going to look into the stainless steel containers. You make a good point about not putting hot foods in plastic. I don't use plastic to heat things in the microwave bcause of the chemicals, yet never thought about the effect of putting hot fods in plastic thermoses. :blink: I guess that's why the good ones have a liner?
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#12 IrishHeart

 
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Posted 14 May 2012 - 04:47 AM

Celiacs actually have immune systems that work on "high". We ward off more germs than the average joe.

A peck on the cheek should not be an issue, hugging should not cause you harm, but if brother-in-law or Uncle Bob comes at you with a slobbering tongue after a beer, well, that's a whole 'nuther issue :lol: and not just because of the gluten.

As for the medical community not knowing about celiac and gluten, well, that doesn't surprise me much. :rolleyes: Hope you took the opportunity to educate her.

You definitely want to make up a "to-go" cooler next time.
I have snacks with me all the time now. You only need to be caught hungry once or twice to drive that home.

Next family gathering--you'll be fine! :)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 sandsurfgirl

 
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Posted 14 May 2012 - 09:09 PM

You know, I guess I never thought of the cooler being used to keep things hot? It's insulated so should work great? A heated brick is really clever!

I'm going to look into the stainless steel containers. You make a good point about not putting hot foods in plastic. I don't use plastic to heat things in the microwave bcause of the chemicals, yet never thought about the effect of putting hot fods in plastic thermoses. :blink: I guess that's why the good ones have a liner?


It works very well for keeping things hot. I have different sizes of coolers depending on where we are going and how much food we are bringing.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#14 beachbirdie

 
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Posted 14 May 2012 - 09:32 PM

When the pastor stands at the door after church I wash my hands if I shake his hand. He shook hands with all those people and who knows who is sick, who didn't wash after the bathroom, etc. It grosses me out so bad! I make my DH and kids wash their hands after too. Honestly I don't like shaking people's hands.

It's from years of being so sick all the time. I had many sinus infections and bronchitis from celiac and it made me freaky about germs. I never got over it.


I hear you! I got a norovirus a few short years ago because of shaking hands in church with a lady who told me how sick she'd been during the week and that Sunday in church was her first day out of bed. My intestines haven't been the same since.
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1999 - Hypothyroid
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2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#15 Juliebove

 
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Posted 14 May 2012 - 09:57 PM

Yikes! I would say most likely she should not have given the girl any cheese but... I don't really know why she was not to have milk.
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