Ugh...just Need To Vent
Posted 16 November 2012 - 12:36 PM
A few minutes ago I came across a story one of my friends posted on Facebook about Hostess Brands shutting down and liquidating its assets today. We all commented on how sad that one of our childhood icons, the Twinkie, will be no more. Now, I haven't had a Twinkie or a Ring Ding (my favorite) in years, but now that I can't have one because of celiac I suddenly wanted one. It's one thing to choose to pass up something; it's entirely different when that choice is taken away from you.
Realizing that whatever Hostess items currently on store shelves are the last opportunity for my husband to have his beloved Ring Dings, he just took off for Sam's Club to stock up on as many boxes as he can get a hold of, leaving me simultaneously fuming and sad. I can't begrudge the guy his Ring Dings, and I've certainly put him through the ringer ever since my DX. He and our daughter have been insanely supportive. But man, it seemed so insensitive of him. So here I am venting because I don't want to make this an issue with him. All I said to him was, "Just please be kind and hide them and don't eat them in front of me."
After my tantrum here I'll put on my big girl panties and deal. I just needed a place to vent.
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Posted 16 November 2012 - 01:33 PM
Before long you'll have plenty of go too treats when this happens - but I will not lie - I've been know to stomp my feet and throw a few mental daggers at my family when they are crunching potato chips
Lucky for you there are gluten-free replacements for almost anything - including ring-dings - they just take a touch more work to find or make.
Hang in there -- it does get better -- but until then this is the perfect place to vent -- we don't have to duck when you throw things
Edited to add: Many potato chips are gluten-free - I can't eat them for other reasons.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
Posted 16 November 2012 - 01:44 PM
Venting good. gluten-free brownies good. Forum good.
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
Posted 16 November 2012 - 01:51 PM
I also posted on my facebook about the Hostess thing. Something about how if I can't have chocodiles neither can anyone else. It may be a poor attitude to have, but it feels like sweet justice. And... I will also be watching my husband eat some tonight. He reaches for the rest of my peppermint chocolate krispy treats and I'll stab him in the hand.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
Posted 16 November 2012 - 03:14 PM
Posted 16 November 2012 - 03:37 PM
Though back in my early dx days i'd see the bakery area of a store and all its pretty icing'd cupcakes and that'd set me off.
Allergic to red food coloring.
Posted 16 November 2012 - 03:38 PM
Gluten and dairy free: 5/2/2012
Grain free: 11/12/2012
I am able to eat somre processed foods again (chocolate, lollipops, soysauce).
Posted 16 November 2012 - 05:11 PM
at Dana Farber in Boston, and I had to find a place to eat, and food at the
grocery store, and dealing with it on top of his illness was just so over
whelming I went back to my hotel room hungry one day and just bawled.
I feel your pain. It's incredibly difficult to change your thought patterns to
deal with a new reality, and food is an important part of our emotional lives.
It gets better, I promise.
Posted 17 November 2012 - 05:27 AM
Bob's Red Mill has a great mix. My Glutenator, Hubs, makes them all the time for HIS sweet tooth. not gonna say how many I have out of the batch. It makes a full sized pan too.
*Mental Health Issues, lifetime.
*Gluten free in Feb. 2012. Digestion issues resolved.
*Metastatic Malignant Melanoma July 2012
"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.
Posted 17 November 2012 - 05:30 AM
Posted 17 November 2012 - 09:12 AM
Last night I found a dedicated gluten free bakery in NYC online and am adding it to our list of stops the next time we take the train into the city. I'll probably spend way too much but it will be SO worth it!
Oooh, if you're talking about Babycakes NYC, they are to die for! I went to their LA bakery and was in heaven. Yes, they are pricy but it's sooooo nice to walk into a place that understands you!!! And I don't even have a sweet tooth.... (or at least I didn't before this. I seem to be growing one lately).
It's funny I was watching the news reports at work about Hostess and everyone was talking about it. I was thinking, well, I can't have one of those things ever, now you have a small taste of how we feel all the time.
Vent away, I say!
Diagnosed with wheat hates me 4/13
Posted 17 November 2012 - 03:18 PM
At least here... we can say, "Man, sometimes this sucks," and the peeps here know... they KNOW.
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!
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