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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- NoriTori replied to NoriTori's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11undiagnosed Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems
@Scott Adams Sure, Any and all information is welcome. Also the only was to convince my family to get tested is to get tested myself and conclusive answers. Very stubborn lot.- 1
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- trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms23Blood results
Understood. It's very anxiety-provoking when you don't know what you are dealing with and don't know if you are attacking it correctly. -
- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms23Blood results
I have heard of NCGS, but everything is just so confusing!!! Just unsure of things as her EMA test was negative but TTG was positive @19u/ml(lab range 0.0-7.0).Apparently she also has occasional bubble like blisters in between her fingers, don’t know if that’s significant. She is triallling gluten free as suggested by the gastroenterologist after her end... -
- sillyac58 posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Rice Flakes
I ame looking for rice flakes that aren't cross contaminated to use in making oat free granola. Does anyone know of a brand? Also I see that some people just used puffed rice cereal, but it seems like that wouldn't be sturdy enough to withstand the mixing without crumbling. Any ideas out there? Thanks! -
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@Scott Adams Sure, Any and all information is welcome. Also the only was to convince my family to get tested is to get tested myself and conclusive answers. Very stubborn lot.
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Understood. It's very anxiety-provoking when you don't know what you are dealing with and don't know if you are attacking it correctly.
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By Heatherisle · Posted
I have heard of NCGS, but everything is just so confusing!!! Just unsure of things as her EMA test was negative but TTG was positive @19u/ml(lab range 0.0-7.0).Apparently she also has occasional bubble like blisters in between her fingers, don’t know if that’s significant. She is triallling gluten free as suggested by the gastroenterologist after her endoscopy. Keep getting different answers when typing in her symptoms etc. Some sites say it can be possible to have coeliac, even with a negative EMA . It’s so frustrating and her anxiety levels are through the roof. I know she’s hoping it’s coeliac which is weird I know!!! But if it’s not it just means more tests. Sorry to ramble on!!! -
I ame looking for rice flakes that aren't cross contaminated to use in making oat free granola. Does anyone know of a brand? Also I see that some people just used puffed rice cereal, but it seems like that wouldn't be sturdy enough to withstand the mixing without crumbling. Any ideas out there? Thanks!
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By Scott Adams · Posted
There isn't because there is currently no gluten-free labeling requirement for prescription medications. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/
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