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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discuss recovery after a celiac disease diagnosis, including healing, follow-up testing, ongoing symptoms, nutritional deficiencies, treatment concerns, and adjusting to a strict gluten-free diet.
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Recent Activity
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- BelleDeJour replied to BelleDeJour's topic in Dermatitis Herpetiformis21Dermatitis Herpetiformis - follow up dermatology appointment coming up
I hope you all had a nice weekend. Cloudy here in Hampshire. Just a little update that might help someone else one day. Over the weekend, I realised that the brand of almond milk I had been buying contains added iodine. So, I visited the supermarket and chose a different brand (Plenish) that does not contain added iodine and have been drinking that... -
- Aretaeus Cappadocia replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6New diagnosis
Thanks for posting this. I hadn't come across the Alchemist before. Great site! -
- ElleH commented on Scott Adams's article in Summer 2026 Issue5Why Life with Celiac Disease Hasn't Improved in 10 Years, According to New Study
The breaking of bread with family, friends or coworkers is often a uniting experience. When a close family member tells me that it’s the family of a celiac that suffers the most regarding restaurant choices and food separation at home, it brings guilt. When our work department is rewarded with bagels/cookies/cake/pizza, I am often excluded as I cannot share w...- autoimmune disease
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- Flash1970 commented on Scott Adams's article in Summer 2026 Issue12Court Ruling Raises Big Questions About "Gluten-Free" Food Safety in Retirement Communities (+Video)
So sorry for your loss. That is a horrible story. How awful to have to add that stress in addition to your mother being ill. They should be sued.- celiac disease
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- ElleH commented on Scott Adams's article in Summer 2026 Issue12
Court Ruling Raises Big Questions About "Gluten-Free" Food Safety in Retirement Communities (+Video)
Obtaining gluten free food in a nursing home can be a nightmare. My mother required skilled nursing care after an injury. Due to comorbidities and declining health, she was admitted and discharged from 11 health care institutions over a 7 month period in 2019. She and I are both celiac. I tried to vet each skilled nursing facility prior to her admit regarding...- celiac disease
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By BelleDeJour · Posted
I hope you all had a nice weekend. Cloudy here in Hampshire. Just a little update that might help someone else one day. Over the weekend, I realised that the brand of almond milk I had been buying contains added iodine. So, I visited the supermarket and chose a different brand (Plenish) that does not contain added iodine and have been drinking that since Saturday. No itching at all yesterday! Another breakthrough (thank you @knitty kitty). I think the added iodine milk may have been what was causing that last 10% itch. I also met a friend for coffee in town yesterday. The cafe only had soya milk (which I have not been sure I am OK with) but I had 2 delicious latte's made with soya milk. I also had a gluten-free millionaire's shortbread. I am beginning to enjoy the taste of almond and soya milk a lot more than cows milk now. I seem to be fine with a little sprinkle of cheddar cheese on my jacket potato. I bake them in my air fryer and have them with a big mixed salad and baked beans. I also made a gluten-free tuna pasta bake on Saturday; it's my son's favourite dish. I was fine with that, too but have noticed that a whole can of tuna sets me off itching. It is a learning curve. My dermatology appointment is tomorow and I will come back to update. Have a good week everyone. -
By Aretaeus Cappadocia · Posted
Thanks for posting this. I hadn't come across the Alchemist before. Great site! -
By transplantwest · Posted
Psyllium can't sit for more than a minute in the water or it is like drinking sludge. Swallowed fairly soon means it's more like an flavorless undermixed protein smoothie. Chlorophyll ( or two tbsp) really helps the taste, makes it minty. Taking Psyllium and Chlorophyll separately rather than together at first helps determine if there's intolerance to either. Also starting the Psyllium in small doses, starting with 1/2 to 1 teaspoon to tolerate the fiber change. -
BuddhaBar, I came across this thread while searching online for celiac insomnia (having also scared myself stupid by finding out about fatal insomnia) and it did bring me some piece of mind as it so closely matches my own experience. I know this thread is old now, I hope you're doing well, and thanks for posting your experience.
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That's great news, @HelloFlowersGoodbyeFlour. And you might find that if you do have asthma, keeping your reflux under control may help, if my experience is anything to go by.
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