Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,263 topics in this forum

  1. queensketch
    Ennis-TX
    • 7 replies
    • 2.9k views
  2. ScotinOz
    kareng
    • 4 replies
    • 1.2k views
  3. Jefferson Adams
    • 0 replies
    • 310 views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. georgiehopper
    Chelsey
    • 9 replies
    • 3k views
  6. Swinky
    cyclinglady
    • 7 replies
    • 1.5k views
  7. jed84
    tessa25
    • 1 reply
    • 865 views
  8. 1desperateladysaved
    • 4 replies
    • 2.2k views
  9. Ridley
    GFinDC
    • 4 replies
    • 1.7k views
  10. Allybobo
    cyclinglady
    • 1 reply
    • 568 views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. Jen1104
    Carolina
    • 8 replies
    • 3k views
  13. Keeley
    • 7 replies
    • 3.2k views
  14. Clemo66
    cyclinglady
    • 5 replies
    • 3.8k views
  15. Noturaverageblonde1
    • 6 replies
    • 1.1k views
  16. Mater Maker
    JennieB63
    • 2 replies
    • 1.9k views
  17. Gurjot
    • 0 replies
    • 449 views
  18. Cristoforo
    • 2 replies
    • 893 views
  19. EricaP
    cyclinglady
    • 4 replies
    • 1.5k views
  20. Dixie30
    cyclinglady
    • 1 reply
    • 1.6k views
  21. cdiaz0517
    pikakegirl
    • 7 replies
    • 2.5k views
  22. Vonney
    GFinDC
    • 26 replies
    • 6.5k views
  23. WooHoo
    cyclinglady
    • 1 reply
    • 2.6k views
  24. kdods
    notme
    • 5 replies
    • 1.5k views
  25. Emilie
    • 6 replies
    • 2.4k views
  26. Donna1970
    moleface
    • 4 replies
    • 1.7k views
  27. happygirl38
    dks-girl
    • 18 replies
    • 96.1k views

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,652
    • Most Online (within 30 mins)
      7,748

    beecharmer4
    Newest Member
    beecharmer4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.