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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,280 topics in this forum

  1. guest134

    Negative Biopsy

    By guest134, Last action:
    • 0 replies
    • 1.2k views
    • guest134
    • guest134
  2. Kyla72
    kbenj1

    Newly Gluten Free...

    By Kyla72, Last action:
    • 2 replies
    • 1.3k views
    • kbenj1
    • kbenj1
  3. snadaska
    mushroom

    Please Help-Not Sure What To Make Of These Symptoms

    By snadaska, Last action:
    • 1 reply
    • 1.2k views
    • mushroom
    • mushroom
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  4. Jonoh
    VeggieGal

    Chills

    By Jonoh, Last action:
    • 3 replies
    • 7k views
    • VeggieGal
    • VeggieGal
  5. SafetyDancePants

    Off Gluten For 1.5 Years, But Having An Endoscopy For Nausea Next Month. Dr Wants Me To Eat Gluten To Get An Actual Diagnosis, Should I?

    By SafetyDancePants, Last action:
    • 22 replies
    • 6.9k views
    • SafetyDancePants
    • SafetyDancePants
  6. Jonoh

    Celiac Disease, Dh And Blood Results

    By Jonoh, Last action:
    • 6 replies
    • 2.1k views
    • Jonoh
    • Jonoh
  7. langone7
    IrishHeart

    I Was Never Tested

    By langone7, Last action:
    • 5 replies
    • 1.8k views
    • IrishHeart
    • IrishHeart
  8. ampmomof3

    Cross Contamination....suggestions Please!

    By ampmomof3, Last action:
    • 2 replies
    • 1.9k views
    • ampmomof3
    • ampmomof3
  9. TammyTE

    Does This Mean For Sure He Is Not Gluten Int/celiac?

    By TammyTE, Last action:
    • 6 replies
    • 1.6k views
    • TammyTE
    • TammyTE
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  11. TammyTE

    Saw Gi Doctor And Confused

    By TammyTE, Last action:
    • 18 replies
    • 2.5k views
    • TammyTE
    • TammyTE
  12. mamamonkey

    Genetic Testing A Must?

    By mamamonkey, Last action:
    • 2 replies
    • 1.4k views
    • mamamonkey
    • mamamonkey
  13. luckyald
    mushroom

    Confusing Diagnosis

    By luckyald, Last action:
    • 8 replies
    • 2.6k views
    • mushroom
    • mushroom
  14. freeme808
    tom

    How Much Gluten?

    By freeme808, Last action:
    • 1 reply
    • 2k views
    • tom
    • tom
  15. Jonnybaldridge
    mushroom

    Positive Blood Test

    By Jonnybaldridge, Last action:
    • 1 reply
    • 1k views
    • mushroom
    • mushroom
  16. freeme808

    What Tests Should I Do From Enterolab?

    By freeme808, Last action:
    • 14 replies
    • 2.7k views
    • freeme808
    • freeme808
  17. Guest bwackmusic
    mushroom

    Is This Celiac?

    By Guest bwackmusic, Last action:
    • 1 reply
    • 1.2k views
    • mushroom
    • mushroom
  18. rustkll
    Juliebove

    I Have Itchy Ears

    By rustkll, Last action:
    • 1 reply
    • 4.9k views
    • Juliebove
    • Juliebove
  19. DonnaMM
    mushroom

    Egd With Video Capsule On Wednesday!

    By DonnaMM, Last action:
    • 1 reply
    • 1.2k views
    • mushroom
    • mushroom
  20. DavinaRN
    GottaSki

    And My Journey Continues...

    By DavinaRN, Last action:
    • 6 replies
    • 2.7k views
    • GottaSki
    • GottaSki
  21. ruuning like a zombie
    mushroom

    Finally Some Improvement, Updates At 5

    By ruuning like a zombie, Last action:
    • 4 replies
    • 1.2k views
    • mushroom
    • mushroom
  22. Fussybutt
    Seeking2012

    Am I Celiac Now?

    By Fussybutt, Last action:
    • 3 replies
    • 3.4k views
    • Seeking2012
    • Seeking2012
  23. Macmuireadhaigh
    Seifer

    Weight Loss

    By Macmuireadhaigh, Last action:
    • 7 replies
    • 3k views
    • Seifer
    • Seifer
  24. jhol

    Got Results - Negative!

    By jhol, Last action:
    • 9 replies
    • 2.2k views
    • jhol
    • jhol
  25. julissa
    shadowicewolf

    Reaction To Allergy Testing

    By julissa, Last action:
    • 1 reply
    • 1.1k views
    • shadowicewolf
    • shadowicewolf
  26. designerstubble
    Seifer

    Vitamin D

    By designerstubble, Last action:
    • 9 replies
    • 2.1k views
    • Seifer
    • Seifer
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  • Posts

    • amantelchi
      Stomach hurts with movement

      By amantelchi · Posted

      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
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