Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Glutened Myself :(

DutchGirl

By DutchGirl
in Coping with Celiac Disease

Recommended Posts

DutchGirl Apprentice
DutchGirl
Posted

I was grocery shopping today and got so hungry that I had the shakes. I'm newly diagnosed so it never even crossed my mind to check the label. I grabbed a protein bar at the store and ate it when I got to the car. I'm so sick and my DH on my scalp is itching like crazy. Does it become second nature to check every label? I can't believe I did that, it didn't even cross my mind at that moment.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

So sorry that you got hit!  It happens to us all.   It will become second nature to you and you will know what you can and can't grab in situations like you had today.  I usually grab Sunmaid raisins and a banana or an orange juice until I can get home for a more substantial meal.

 

Hope you feel better soon!  

flowerqueen Community Regular
flowerqueen
Posted

I would think it will be now, after being ill through eating gluten! Read everything twice, to make sure you are not eating something you shouldn't. Also, it would be a good idea to have an emergency gluten free snack bar of some description with you, so if you find yourself in the same situation, you don't just buy the first thing you see. Hope you feel better soon.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Thank you both, I think I probably learned my lesson. I have been so extra careful since my diagnoses and it's as if I lost my brain this morning. I feel like I'm starting from scratch again, I had been gluten free and now I'm not. Grrr!

Monklady123 Collaborator
Monklady123
Posted

Thank you both, I think I probably learned my lesson. I have been so extra careful since my diagnoses and it's as if I lost my brain this morning. I feel like I'm starting from scratch again, I had been gluten free and now I'm not. Grrr!

 

Lol about "lost my brain". Yes, sadly I bet we've all done that.  I remember the day I ate four or five

Newman's "oreo" cookies. "Wheat free" it said on the package. um yeah,

wheat free but not gluten free (barley malt was in them). sigh. Then

there was the rice from the Mediterranean place nearby where we often

get take-out. Yep, cooked in broth that had wheat in it.  And I'm sure

there are a few more that I'm not remembering. I've probably blocked

them out so as not to embarrass myself. :ph34r:

 

Yes, it does become habit to read every label. But there's a learning curve, and I still fall off of it sometimes. :P

 

Hope you feel better.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Lol about "lost my brain". Yes, sadly I bet we've all done that.  I remember the day I ate four or five

Newman's "oreo" cookies. "Wheat free" it said on the package. um yeah,

wheat free but not gluten free (barley malt was in them). sigh. Then

there was the rice from the Mediterranean place nearby where we often

get take-out. Yep, cooked in broth that had wheat in it.  And I'm sure

there are a few more that I'm not remembering. I've probably blocked

them out so as not to embarrass myself. :ph34r:

 

Yes, it does become habit to read every label. But there's a learning curve, and I still fall off of it sometimes. :P

 

Hope you feel better.

Yes, the "wheat free" thing gets me. Do companies do that on purpose to confuse people with gluten issues? Sheesh!!

I still don't have down all of the "other" names for gluten so I've just been not eating something if I don't recognize the ingredients. I just can't believe I did that. I'm SO itchy know, it's driving me nuts. Not to mention all of the other undesirable symptoms I've got going on. YUCK!

shadowicewolf Proficient
shadowicewolf
Posted

Nope, you still have to read the package.


Other names? If its got wheat, its gotta be disclosed. Rye is kinda obvious as its normally used in breads and bagels. Barley? This too will be labeled, generally as a malt. This is all in the US, by the way. I've yet to see gluten "hidden" in things.

 

I always eat before i go shopping. When i don't eat and its been a while I get hit with a bad case of low blood sugar (shakes, jitters, etc).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Yes, the "wheat free" thing gets me. Do companies do that on purpose to confuse people with gluten issues? Sheesh!!

I still don't have down all of the "other" names for gluten so I've just been not eating something if I don't recognize the ingredients. !

In the US and Canada - wheat has to day " wheat". Or what type of wheat it is like spelt. But those " fancy" wheat isn't used in most regular stuff. Barley will say " malt" or use the word barley. Rye isn't really in anything but Rye bread type things.

I always carry a packet of nuts or a nut bar like Open Original Shared Link

DutchGirl Apprentice
DutchGirl
Posted
  • Author

By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko:  And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

 

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

pricklypear1971 Community Regular
pricklypear1971
Posted

By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko: And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

You'll get the hang of it.

And next time (I'm not kidding) grab gluten-free lunch meat. Generally (but always read the label) it's a safer bet and will probably hold you better than the bar. Add an apple or other fruit if you need sugar/carbs. All available in your friendly grocery store!

DutchGirl Apprentice
DutchGirl
Posted
  • Author

You'll get the hang of it.

And next time (I'm not kidding) grab gluten-free lunch meat. Generally (but always read the label) it's a safer bet and will probably hold you better than the bar. Add an apple or other fruit if you need sugar/carbs. All available in your friendly grocery store!

Good suggestions!! And I already know which lunch meats I can have. I have certainly learned my lesson, I can't wait for the kids to go to bed so I can curl up in a ball in bed.

pricklypear1971 Community Regular
pricklypear1971
Posted

Good suggestions!! And I already know which lunch meats I can have. I have certainly learned my lesson, I can't wait for the kids to go to bed so I can curl up in a ball in bed.

I'm sorry. I know it's terrible.

I had a freak out moment today, after eating sushi last night...thought I was having a reaction but turned out no.

Makes you change your plans in two seconds. Ugh.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

I'm sorry. I know it's terrible.

I had a freak out moment today, after eating sushi last night...thought I was having a reaction but turned out no.

Makes you change your plans in two seconds. Ugh.

Yes it does! I'm volunteering in my Daughter's class tomorrow and dreading how I'll feel playing with 28 first graders!

kareng Grand Master
kareng
Posted

By "other names" I meant that long list of forbidden foods, they don't all say, wheat, rye, and barley. Or some spices have an anti-caking agent that contains gluten. I guess I'm just very overwhelmed by all of the unknowns. :wacko:  And while I had the shakes this morning I was feeling frantic and needed to eat. I'm considered pre-diabetic so I get hit with low blood sugar sometimes and it seems to always hit in the grocery store check out line for some reason.

 

I picked up some Larabars today and stuck some in my purse and some in my van. Hopefully that will help next time I'm in that situation! :D

What I'm trying to say is, if you are in the US, its illegal to " hide " wheat. If they use an anti- caking ingredient it would say anti- caking ( wheat). However, because wheat gets sticky when wet, it makes a horrible anti- caking ingredient.

pricklypear1971 Community Regular
pricklypear1971
Posted

Yes it does! I'm volunteering in my Daughter's class tomorrow and dreading how I'll feel playing with 28 first graders!

Water, probiotics, gas meds, imodium, etc. whatever it takes...

DutchGirl Apprentice
DutchGirl
Posted
  • Author

What I'm trying to say is, if you are in the US, its illegal to " hide " wheat. If they use an anti- caking ingredient it would say anti- caking ( wheat). However, because wheat gets sticky when wet, it makes a horrible anti- caking ingredient.

Oh okay, gotcha!! I think I just look at all of the ingredients and get overwhelmed! I know I'll get it, it will just take time!

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Water, probiotics, gas meds, imodium, etc. whatever it takes...

I wonder if Benedryl would help the itching?! I will definitely be popping some Imodium in the morning though!

pricklypear1971 Community Regular
pricklypear1971
Posted

I wonder if Benedryl would help the itching?! I will definitely be popping some Imodium in the morning though!

It might. Won't hurt...

pricklypear1971 Community Regular
pricklypear1971
Posted

And if you can stand it, put ice packs on the itchy spots. That does help.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

And if you can stand it, put ice packs on the itchy spots. That does help.

I think anything would be better than the itching!

gatita Enthusiast
gatita
Posted

Oh poor thing! Been there, done that. I got glutened last week from a restaurant salad that must have CC'd me. The lesson is I still can't eat in restaurants without taking a big risk.

 

You will get to the point where you read EVERY label and don't even think twice about it. My friends all know now to hand me the can or package before they feed me lol....

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Oh poor thing! Been there, done that. I got glutened last week from a restaurant salad that must have CC'd me. The lesson is I still can't eat in restaurants without taking a big risk.

 

You will get to the point where you read EVERY label and don't even think twice about it. My friends all know now to hand me the can or package before they feed me lol....

I hope my family and friends get to that point as well. I have a very supportive husband but I get the feeling he thinks I'm being dramatic. I wish I could find a good documentary for him to watch so he can understand it a little better!

 

I'm terrified to eat in restaurants, there is one here in town that has a dedicated cookware and fryers. The owners have a child with Celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,074
    • Most Online (within 30 mins)
      7,748
    Amy1620
    Newest Member
    Amy1620
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.