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Finally Some Excellent News...

LauraB0927

By LauraB0927
in Coping with Celiac Disease

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LauraB0927 Apprentice
LauraB0927
Posted

Finally some good news - after an unexpected, shocker diagnosis on May 3, 2012, many dietitian appointments, 2 endoscopies, 1 colonoscopy, 1 capsule test, and a partridge in a pear tree later, I finally got the news from my GI doc that my TTG levels are within normal range and an intestinal biopsy confirmed that my villi have returned back to normal!!!  The good news seems surreal after so many bumps in the road...

 

I didnt write this to brag - rather to lend some support to those of you who may be struggling or thinking that things cant get better.  It hasn't been easy - and this is coming from a girl who lived off of chicken fingers, pizza, and macaroni and cheese for most of her life.  Yes, I had to change most of my lifestyle habits, and yes, there have been many accidental slip-ups, tears, and feelings of anger/frustration along the way.  But it DOES get better....thanks to everyone on this forum who have listened to me vent, provided support when I needed it, and helped me get on the road to being healthy.  I'll be sure to continue to return the favor where ever possible!! 

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Lisa Mentor
Lisa
Posted

So very happy for you LauraB!  Your inspirational post can only serve as motivation, when there are down times, for the many who visit here and are struggling daily.  Thank you! 

 

Life is good! :D

nvsmom Community Regular
nvsmom
Posted

Congrats!!  That's awesome!  :D

1desperateladysaved Proficient
1desperateladysaved
Posted

Super!

Adalaide Mentor
Adalaide
Posted

Woohoo!!! Gotta watch out for those partridges huh?

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Brilliant news, well done :)

Thanks for inspiring those of us new to the journey

GF Lover Rising Star
GF Lover
Posted

Many kudos to you Laura.  That is a great accomplishment in only a year.  Very happy for you.

 

By the way,  I can't stop thinking about the partridge and the tree Open Original Shared Link

 

Colleen 

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IrishHeart Veteran
IrishHeart
Posted

blow.gif

 

Good for you, hon! I noticed from the beginning that you have a mega-positive attitude and you did your homework and you tamed the beast.

A celiac DX is not the end of the world (though many view it that way at first) and you're proof that healing happens.

 

Rock on, little sister! Thanks for sharing your success story. It helps in so many ways.

hugs, IH

julissa Explorer
julissa
Posted

so happy for you! thanks for sharing.

GFinDC Veteran
GFinDC
Posted

That's great! :)

 

I can't believe I get to be the first person to say "It only gets easier from here!". :D

 

Christine0125 Contributor
Christine0125
Posted

Yay!

Out of curiosity... Was your follow up endoscopy routine follow-up. I am approaching a year since diagnosis and wondering if another endoscopy will be recommended. Personally my symptoms have improved but not 100% and it makes me wonder how healed I am.

LauraB0927 Apprentice
LauraB0927
Posted
  • Author

Thank you everyone!!!

 

Christine - Yes, my endoscopy was a 1 year follow-up...the capsule/video test I took in October showed continued damage in my duodenum (even though my TTG levels dropped significantly) so the doctor just wanted to do another biopsy just to make sure that I continued to heal.  I was curious also (and needed a little conformation that I was making some progress) so we agreed to go ahead and do the one year follow-up endoscopy and biopsy.  My symptoms when I get glutened are mostly some bloating, but mainly fatigue and joint pain.  Since I work full time and attend nursing school in the evenings, I'm never really sure whether the fatigue is gluten related or because I'm so busy and tired.  So the endoscopy was a way for me to really tell how I've been doing.  I hope your one year follow up goes well!!!!

Coryad Rookie
Coryad
Posted

Woo hoo!!!  Good to know there is light at the end of this tunnel!!  :D

kristenloeh Community Regular
kristenloeh
Posted

Awesome! All of my blood work came back in normal ranges a couple of months ago as well, but I need to find a new GI doc to do my follow up endo to make sure I'm totally healing the way I need to be. Congrats! You were diagnosed only a month after me!

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      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
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