Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Normal For Doctors To Discourage Celiac Testing?


MIgrainePosterChild

Recommended Posts

frieze Community Regular

can you just oats?? McCains oats are from Ireland and are considered not CCd.

Cookinpapa, the only reason oatmeal is important to me is because it seems to dramatically reduce my itching from my psoriasis (dh?). It's a horrible deep seated impossible to satisfy itch that I get all the time. The Aveeno killed the itch!! So yeah, I hope to be able to find something that has oatmeal in it that is gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



learning2cope Apprentice

can you just oats?? McCains oats are from Ireland and are considered not CCd.

What does "can you just oats??" mean? Lol I'm talking about hand lotion or cream to help with my severely intensely itchy psoriasis or whatever it is. :) The colloidal oatmeal really helps with the severe itching.

pricklypear1971 Community Regular

What does "can you just oats??" mean? Lol I'm talking about hand lotion or cream to help with my severely intensely itchy psoriasis or whatever it is. :) The colloidal oatmeal really helps with the severe itching.

Oatmeal never helped mine, but that doesn't mean it doesn't help you. I used generic Aveeno packets as a body scrub - I'd pour it on my hand and scrub all over. For years. Go figure. I've never heard of a certified gluten-free oat cosmetic product.

Anyway, to stop the itching the best thing for me was ice packs. I use Vanicream and it works miracles as far as staying on the skin and moisturizing, which leads to decreased itching. I'd also add a layer of Vaseline at the worst times to stop the sores from cracking. Coconut oil is probably a good alternative. I used jojoba oil for a long time; however, it seemed to burn the sores a bit at times. I had to repeat applications of whatever i used several times a day, especially when the blisters swelled and popped. Others have luck with topical numbing creams (never tried it but would if I had another flare). Lots of hints on the DH board.

learning2cope Apprentice

Hmm those sound like good ideas! Thanks!! Right now I'm having severe itching in certain spots on my right hand. I've already torn the skin open (GRR) so now it's going to burn with whatever I put on it. Then it'll scab over, blah blah you know how that goes. So I think I might look into numbing creams. Do you have any specific recommendations for those? I'm not even sure I know where to look for such products. I know there is anbesol and orajel for the mouth but I'm not sure I've heard of actual creams for skin.

pricklypear1971 Community Regular

Look on the DH board. I think it's generic walgreen's brand - whatever it is.

I would use ice packs when it was at the worst. Helped reduce swelling and pain and itch. Vaseline would stick to the skin when it was cracking and weeping. I hated that stage. Hurt to move.

learning2cope Apprentice

Ok, thanks! I'll look it up.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.