Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Meet Me In Chat 1 Pm Pacific Wednesday, April 10

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

I keep going in chat and not finding anyone but me to talk to. So, tomorrow at 3 pm central, be there if you can.

 

Subject:  Coping with Celiac Disease.   Whatever about it.

 

Edited, because I need to take the children to gym at 1, although, if I can I will check at 1 since I made the error.  I also can't change the subject. 

 

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Is that central time US? Are you serving tea and snacks? :)

mushroom Proficient
mushroom
Posted

I won't be there but will send a cream and raspberry cupcake from where I am having "tea".

GottaSki Mentor
GottaSki
Posted

I don't do well with the chat feature....but someone save me a cupcake -- which I will carefully freeze for when I get such treats back...hmmm.. i wonder how those freshly baked bagels from mariposa bakery in sf are doing in deep freeze? 

 

Sorry Diana - Shroomie and Karen mentioned sweet treats and my mind went wandering.....

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I better just have water  and there isn't too much chance of cross contamination?  Go ahead and make your favorite cupcakes, though and (Barring discussion about it) I will never have to know!  I just got a recipe for cupcakes, I printed it off, and expect that I will be able to use it one day.

 

Lisa, and whoever else is having thoughts about sweet treats.  It is okay mentioning it just now.  Sweet treats aren't even sounding good.

 

If anyone cares to talk by Skype some day.  I have it, but need my children to help me with it!  I hope it wouldn't be urgent.

 

I have some strawberries Perhaps we could share those?

kareng Grand Master
kareng
Posted

I . So, tomorrow at 3 pm central, be there if you can.

 

 

 

Edited, because I need to take the children to gym at 1, although, if I can I will check at 1 since I made the error.  I also can't change the subject. 

 

Diana

 

 

That's 1 pm on the west coast!  Your title is still right.   :D

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I got out of the gym.  I will plan to be there at both 1 and 3 pm central time.  If nobody is there, I will leave after 15 minutes.

 

And yes 1pm Pacific.

 

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

I'm in class all day ... take care!

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

It is less then 10 minutes.  I am getting ready.

dilettantesteph Collaborator
dilettantesteph
Posted

Whoops, I meant to be there and forgot.  Did anyone show up?

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

Yes, four of us did.  I recommend the idea of posting a "meeting" like this in the future.  Having a certain topic could be a good thing.  Having a super-sensitive group, or decades undiagnosed group, or possibly a group of people home during the day could be fun.  A  question time for Newbies, perhaps?  I am not volunteering for that one.  I think I would scare everyone away with my current can't eat list.    My personal favorite might be a group that comes from an alternative medicine group!

 

I am still looking for Dr. Phil, in order for him to tell me that my symptoms are all in my head and I can return to normal diet.  After all, I have only had 3 doctors confirm my celiac!  Somehow, I doubt that will happen for me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748
    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.