Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Rash On Neck

MicheleR

Recommended Posts

MicheleR Newbie
MicheleR
Posted

I have been gluten free for about 6 weeks and recently, in the last week, I have developed this strange rash on my neck.   It's itchy as heck.  Nothing has worked to stop the itch.  It's red and blotchy and the skin almost looks like a burn scar, with bumps all over it.  It doesn't seem to be going away.  I have checked my two daily medicines, and both are reported to be gluten free.  I just called and made an appt with the local walk in for later today but was wondering if anyone has had this happen before?   The rash is all over the front of my neck, in the same location as my thyroid, which doesn't work as well as it should and I take levothyroxine.   I haven't been able to figure out anything that could be causing it.  I have been really careful to avoid CC.  Any thoughts??   Thank you in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Read the dermatitis herpetiformis section of the forum. See if rings any bells.

If you are undergoing celiac testing DO NOT use steroids for the rash. It will interfere with testing.

  • 2 weeks later...
JamieL Newbie
JamieL
Posted

I had the same thing happen to me! I've had a very mild rash on the right side of my neck that would appear and disappear over the last year. I had both my doc and naturopath look at it. Doc said allergy to something I wear naturopath said thyroid. Then five days ago after being in the sun for a short time I broke out with this same rash all over the front of my neck. First it itched insanely then after a day it started to burn and blister. I have been gluten free for the last six weeks. I follow a paleo diet, and I decided to eat a slice of carrot cake and ice cream that afternoon while sitting in the sun at a picnic. I lived with it for a few days hoping it would go away or at least calm down. I finally went to a walk in clinic yesterday and the doc gave me some steroid and antibacterial cream. Overnight it has taken away the blistering but now I am left with what looks like scales on my neck. The skin is severely dry. I am seeing my naturopath tomorrow and hoping he can help me figure out what is happening. It is very frustrating. Even though the walk in doc said the rash is unlikely from something I ate, I am still hesitant to eat anything. I'm at a loss as to what is causing it. It is not anything I am putting on or near my neck like my doc insists. I've paid close attention to all that over the last year.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,716
    • Most Online (within 30 mins)
      7,748
    tomwille
    Newest Member
    tomwille
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New to gluten-free

      By trents · Posted

      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      New to gluten-free

      By QueenBorg · Posted

      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      Refractory celiac disease

      By knitty kitty · Posted

      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
    • Grahamsnaturalworld
      Refractory celiac disease

      By Grahamsnaturalworld · Posted

      Ok, thanks for the advice, the only advice I've had that's made sense after 21years since my slight symptoms all my life turned into nasty symptoms 21 yrs ago and around 50 gp's and specialists all chasing the symptoms and not looking for the cause, after 9 years of misery I discovered my symptoms matched celiac disease and a blood test proved anti bodies to gliadin but it was too late it has changed into r.c.d. thanks again.
    • trents
      New to gluten-free

      By trents · Posted

      Welcome to the forum, @QueenBorg! Just for the sake of clarification, your desire to avoid gluten is connected only with your dx of fibromyalgia and not celiac disease, correct?
×
×
  • Create New...